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emma

45, Female

manchester

United Kingdom

Profile Information:

Relationship Status:: In a Relationship
About Me:: hi all, ive just found out i have alopecia areata, ive only got the one patch, doctors dont really explain much, and from the sites im going on im reliseing i should be grateful thats its only one hidable patch, but cant help be bit upset, ive join this site cos ive only seen 2 pic's of the same as me, plus not sure if its gonna stop at one patch

well 4 months on my patch is bigger and i have 3 more smalller patches, i wasn't brave enough to shave my head but have had it cut short to try and hide everything
Do you have alopecia?: Alopecia areata
Are you age 18 or older?: No - I am not 18 or older

Comment Wall:

emma

my patch wen i first found it

Aug 15, 2008
Roger

Youre welcome!

Roger =)

Aug 16, 2008
Cheryl, Co-founder

Hi Emma, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder

Aug 16, 2008
Victoria Laughren

Hey emma, I have the same patch as you, its getting hard to cover for me. Thinking of shaving it.

Aug 18, 2008
Victoria Laughren

Mine is about the size of yours, 3 months now since I had it. Its getting bigger, but it not at a rapid pace. It seems hopeless, my dermatologist told me my hair would grow back in 12 weeks. I see her again in a few weeks, but nothing has grown. I know I suppose to bring positive thoughts to this site but now I feel so, I don't know can't describe it.

Aug 18, 2008
Victoria Laughren

Thanks so much Emma for your kind words! I see that you are in the UK, it's lovely there. Rains a little too much for my liking though.

Aug 18, 2008
Liliana

Welcome Emma!
I can totally relate with your condition, mine started 16 months ago, it started with one patch at the back of my head, and later in the months I ended up with 6 patches around the crown area, now I have total regrowth in 4 of them and the last 2 are slowly filling in but I still have hair loss through out, my patches were not visible and I was able to cover them and even wore make up to diguised them since I have dark hair, but I probably have half of my hair left.. :( and yes the worst part is not knowing what is coming next, I am sharing my story so that you know that you are not alone! and that there is tons of support here, feel free to ask any questions or just chat if you want to. Best of luck... Lili

Aug 21, 2008
Victoria Laughren

Hey Emma, how are you? my hair is falling out everywhere. I had a good cry this morning over it as I stood at the sink with clumps of hair in my hands. When are you in to see your dermatologist?

Aug 24, 2008
Victoria Laughren

Hi Emma, That is total shit! you have to wait until you get more patches?? I am sorry to hear that. I see my doc again soon, but who knows.......its a waiting game! How are you doing??

Aug 26, 2008
Victoria Laughren

Hey Emma, just got back from home, went to visit my mother and friends on vancouver Island. I saw a naturalist specialist there and told me to start drinking nettle tea, a b-complex vitamin, and an Ashwaganda Tincture. Interesting indeed........How are you? ANything new and exciting???

Sep 1, 2008
manu

Hi Emma, my very first spot was like yours, I did not know until some one else told me....

Sep 1, 2008
manu

Well Emma, its hard the first time you notice it, isn't it ? ... now I have to wear a cap all the time, some people who does not know what is happening to me make jokes, but I prefer to laugh....

Sep 2, 2008
manu

Hi Emma thanks for answering. Well I have have AA since 1997 approximately and the jokes are not really rude...one of them said he actually pictures me in my casket wearing still a cap.....that was actually funny.... : )

Sep 3, 2008
Victoria Laughren

Hi Em,
All I can say is that the vitamins and Tea are making my urine look like something toxic and floresceunt. I went to see my dermatologist today and I got the needles. My head hurts. Have you gone in yet? I think I have some fuzzies growing, but what good is it when its spreading 2x faster!!!! ANyways I am off to yoga! Let me know how your appointment goes.

Sep 8, 2008
Victoria Laughren

Oh Em, I found another spot, its bad too. My hairline at the back is raised 1.5 inch in the middle. I had a cry today.

Sep 12, 2008
Victoria Laughren

I'm going to be just fine I think. Just upset, Had a little hope, might have to be getting that wig soon. I'll have to get the electric blue one like britney!

Sep 12, 2008
Victoria Laughren

Thanks hun, appreciate it. I am going to post some of my spots I think. just need an extra hand getting at the back!!!!!

Sep 17, 2008
claire taylor

Hi Emma, hurrah fellow manc where you from?

Oct 5, 2008
claire taylor

im from stalybridge,
My husband works with a few people from middleton he works for bohle uk in dukinfield.
Do you find it easy covering your patch, when i had patches i used to wear my hair up with a hair piece.
I dont have any hair now havnt for about 10 years, but i love wearing my wigs, dont have to mess about straightning,washing, etc.... so gives me an extra half hour in bed in the morning haha.

Oct 6, 2008
claire taylor

yeah it makes sense for it to go or grow, what hospital you under? you can get vouchers for wigs, you get 2 a year, there is a place in manchester called salon maier they are really good, i did a short film for the NHS and they filmed me at the wig shop, If you go on videos on this site type in claire NHS it should come up, its quite funny let me tell you the camera puts 10lbs on you so i look like a bit of a fatty, not arsed bout my bald head just my fat arse haha

Oct 6, 2008
claire taylor

Hi just looked at website for pauls hair world, looks good, I work for the NHS and your GP should refer you to a dermatologist pretty quick there are goverment targets NHS have to hit, honest it wil save you money if you do need to start wearing wigs, get some anyway even if you dont need to wear them yet just to try them and see how you feel, then give them me hahahaha
How have your friends and family reacted to your alopecia? Did anything trigger it? with me i was onkly a kid of 11 so i dont think anything actually triggered it, think i got it cause god knew i was made to do alopecia story for the NHS website haha im a bald davina mccall lol

Oct 7, 2008
Victoria Laughren

Em! How did the appointment go?

Oct 9, 2008
Victoria Laughren

hey girl, I am doing good, yes the appointments are usually useless. I got regrowth like mad on my big spot, about 1/2 inch long now, all black. Its just shit because its falling out the back of my head even more so. I felt all this itching in the back of my head today and I looked and there was more hair missing! Fuck! What a situation and a half. I hate how everyone tell me " Well its not noticeable at the bacK". For christ sakes you twat it doesn't matter! Its still missing! lol. Anything new and exciting with you? I been so busy with work , I'm working 2 jobs now and I am in Uni again. probably whats making more hair fall out. Did they ever mention it to you that it was stress induced??? They said that to me, I don't buy it though.

Oct 10, 2008
Victoria Laughren

Hey Em, let's see the new hair!!!! , my big bald spot is completely covered now by about an inch of hair. Its very fine like baby hair but solid black. I am grateful for the re-growth but honestly I found 2 more patched about the size of a 10p. Also my hairline at the back is going too! 3 spots for 1 re-growth. Can't be good! Where did you find your other spots. I always do the mirror checks. I stand infront of onr with one in my hand. Hows life? any thing exciting?

Nov 8, 2008
Lia

hi emma =) thanks for the comment. it feels better knowing i'm not alone in this. by the way, i love all of your pictures. work it!

take care,
<3 Lia

Nov 10, 2008
Mark

hey em,

looks like our alopecia is running at the same pace. I found another 3 patches at the back of my hair 3 weeks ago and another 2 on front. Can hide it at the mo but wont be long. Sucks hey. Hows your regrowth ? Do you have the white stuff in your main patch ?

Still think it must have been brought on by stress with me.

Speak soon,
X

Nov 30, 2008
Mark

How did you find out about the white blood cell thing ? Can it be corrected ?

v.brave with the shaved head. How does it look ?

Theres every chance the white hair will turn back original colour ! Here's hoping.....

Catch up soon
x

Nov 30, 2008
Lia

you are brave! and still beautiful with your pixie cut! i could NOT pull that off - PRETTY!

Dec 21, 2008
MillwallBen

Hi emma, thx for the msg. good to see some pic of people haveing a laugh. Ben

Jan 28, 2009
MillwallBen

my doctor, said there was nothing that could be done, but that was when i only had a couple of patches and i had goon to see him about something eles, so might try him again. what was the cream you mentioned ?

Jan 28, 2009
Carol Solis

welcome to sisterhood of us gals with No hair .. you save alot on shampoo cream rinse, dyes,,haircuts.. buy a great outfit

Jan 28, 2009
Nants the Rebellion Dog

Welcome, Emma! Your story is much like mine...my first spot was last June and I shaved my head about a week ago. I feel empowered as you do by not fretting over hair loss, but taking control of the razor! Good for you!

Jan 29, 2009
Carol Solis

Yeah Emma the only time anyone really gets upset for me is older women,,We live in a very tolerant area part time<( Long Beach )half the women there are bald by choice or have VERY short hair so I dont stand out, just one of the gals

Jan 29, 2009
Victoria Laughren

Hey Em,
Sorry I've been so quiet lately. I love your photos and you are so beautiful. I admire your courage. So what is it like with a clean head? Is it freeing? Lot's of happened over the holidays just getting back into the swing of things. I was just finished a production of the vagina monologues so its been stressful yet empowering. My hair grew back nice and full but when stress hits it falls out in a different spot. So now I am back to that devil woman who calls herself a dermatologist. *SIGH* its never ending! Whats new and exciting in your world?

Feb 11, 2009
stefan

thanx emma hope u r doin fine speak to u soon stef

Mar 20, 2009
stefan

actually its not really aa its a bit compicated to explain but at the end of the day its like the common form of androgenetic alopecia in men now that i cum to think about it it iz aa lol anywayits about 5 years now wat about u n how do u cope wit it? stef

Mar 20, 2009
amy jones

helloooo......Im ok....I dont really know how i feel, Ive had short hair for about 10 years and have always spent time spiking it and things. when i got told I have aa, i just had it all cut shorter so it'd be less noticable! I have a patch at the back of my head simular to one of your pics and my hair is receding and getting thinner, It gets to me that there is no way of knowing wether its going to come back or all go, its mad! how did you cover yours when it first started or did you just have it all shaved off?? I wear hats and scarfs when i go out, which make me feel alot more comfortable. :-)

May 10, 2009
Jonathan Walsh

Hi Emma, yes there a few Mancunians on this web site, we will all have to arrange a big meet up one day!

Aug 5, 2009
Victoria Laughren

Hey Em,
Long time yes indeed. I love your photos. My hair is falling out again all over the place. Going to go for the shave soon. It's driving me mad. Checking out some wigs this weekend. How are you? Any luck with re-growth without treatments? Hope my eyelashes and brows don't go...although, would love to have no arm hair! Talk to you soon!
Vic

Aug 11, 2009
Steve Edwards

Doing pretty good. How're you?

Sep 3, 2009
sophie

Hey there Emma,
my mum was diagnosed with alopecia last year, and unfortunately she dealt with it quite badly. As a result when it came to doing my dissertation at uni, I thought looking into the affects hair loss has in women would be an interesting eye opening topic to research. I however need to carry out some interviews with women in the UK suffering from alopecia, so if you would be willing to take part let me know, if not no problem.

Thanks a mill!
Sophie x x

Oct 19, 2009
sophie

Hey emma!
I'm really pleased your willing to take part! If you want to email me your phone number - on alwayz_bhappy@hotmail.com. We can schedule in a time for the interview - its more like an informal chat, but if there is anything you dont want to talk about, dont worry we will just move on.

Thanks emma!
looking forward to hearing from you soon!
love sophie x

Oct 20, 2009
Tony Fitzgerald

Is this Michael Jackson`s glove or something? :-) Its a crappy list of gifts so I thought you might like urrr....a glove :-) Thankyou for being you!!! T x

Jan 10, 2010