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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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LeslieAnn Butler

Thank you! I'm glad you are doing well...and I also would love to meet you. Wish they would have a convention in San Francisco, Portland or Seattle!
Wow, RJ is a gifted pianist. Does he have any CDs?
You are both very blessed to have each other...

Mar 30, 2010
LeslieAnn Butler

AHA! Talent runs in the family. That's too bad he hasn't put together a CD because I would love to hear that beautiful music playing in my home! I enjoy collecting the music of people I know personally.
Tell him for me...
Anyway, thank you for doing so much good -- Alopecia World is such a blessing for so many people.
I wish you were closer so I could have you both over and maybe RJ could even play my piano!

Mar 30, 2010
Sandra Dubose-Gibson

Thank you for the birthday wishes. I pray that all is well with you and yours. I will not be at NAAF this year so we will have to plan for other ways to take that fabulous group photo. Let's make that happen. I would love to meet you in person. Many Blessings.

Apr 1, 2010
rj, Co-founder

To my life partner, my heartfelt thanks for your birthday greeting. My life has changed only for the better ever since you sent me a friend request on MySpace a few years ago. I can't help but to teem with great expectations as I look forward to the rest of our journey. Love, rj

Apr 2, 2010
Jasmine Quintero

THANK YOU & SO ARE YOU

Apr 4, 2010
Jasmine Quintero

Hey & Thank you

Apr 6, 2010
Keeley Tomlinson

Thankyou for the welcome...this site has helped me so much already. I live in a small town so it' nice to know that there are other people whp have this condition and i'm not alone :) xx

Apr 6, 2010
Kelci

Hey! Yes I did I finished my first draft for class and got admitted into the next level. So now I'm in the rewriting class and reworking my script. If you want to read the first draft let me know. I can e-mail it to you.

Apr 6, 2010
sahin yasin

Thank you for welcome ;)

Apr 6, 2010
sean franklin

Thank you for the welcome to this site!

Apr 6, 2010
JeffreySF

Hi Cheryl,

I miss you too.
But I'll see you in 77 days!

Jeff

Apr 7, 2010
tahnie elizabeth grant

hi. thanke u so much 4 having me :) so how r u :)

Apr 8, 2010
Mark

Hey,

Thank you, co-founder Cheryl!

:)

Mark

Apr 8, 2010
Stacey Bowman

Thank you for welcoming me. Everyone is so beautiful here. Great to have found this site.

Apr 8, 2010
Mayte

Thank you very much. I am happy to have found you guys!

Apr 8, 2010
Alexandra

thank you!
Im very excited that there is a site like this!

Apr 9, 2010
Jessi

Hey Cheryl,
Thanks for the warm welcome... sorry it took me so long to reply!

Apr 12, 2010
sean franklin

thank you for adding me as a friend!

Apr 13, 2010
Caroline Prideaux

Hi,
thanks for the welcome.
Is nice to know there's somewhere to go and talk to people in the same situation as me.
love the site

Apr 13, 2010
Shannon **Jose's Mommy**

thanks a bunch for a warm welcome =)

Apr 14, 2010
Rhonda Pillard

Thank you Cheryl for the positive feedback. This has been hard on all of us. My little girl is doing great with Alopecia. At least she knows what happens. even at 6 yo, she can tell people what she has. The one thing she forgets to tell kids or other people she sees is that it is not contagious!! We shaved her little head because she had bald spots and maybe about 10-15% hair left on her head. Her teachers have informed students about this and When she get's into the next grade, I and a one other person will be talking to her class. Thanks again.

Apr 14, 2010
Robynn Jonsen

Thank you!! This site is amazing!! Dont know why I didnt look for it sooner!!

Apr 14, 2010
David Freeburn

Cheryl, has anyone brought to your attention the news story shown last night on NBC nightly news? I would like to find out more about the appearant discovery and potential cure discussed. I have a son who is suffering significant socially from this disorder and would do anything to help him.
Regards, Dave

Apr 15, 2010
Christy Cyphers

hey, the My Black Is Beautiful is a movement by Proctor and Gambe and BET...spreading the word about what Black women this is bueatiful about themselves..also to promote the new Pantne relaxed and nature products and the Queen cover gilr collection.

Apr 15, 2010
David Freeburn

Go online, search,NBC NEWS ALOPECIA, It's about the third story down, lady doing research, identifying the human hair growth gene

Apr 15, 2010
Rhonda Pillard

I think I will when I can. Thanks again and I am sure I will have lots of questions.

Apr 19, 2010
Shannen Richards

Hi!! thank u!! what awesome sight! I was looking for info on permanent eyebrow tattooing when I ran across it..... im glad to have found it tho.......... thanks, shan

Apr 21, 2010
Roma

Hello Cheryl,

Thank you for your warm welcome,
Just by looking at the site, you can see the people are kind and wonderful... I hope to share my experiences with everyone!
greetings from France, Shanila

Apr 21, 2010
Roma

You write french well!

Apr 22, 2010
Lynn

Hi Cheryl,
Thank you for welcoming me...a year ago! I haven't really been back since then. Guess most of the time I live in complete denial. I just don't want Alopecia to be the world I live in...yet it is. After 20 yrs, you'd think I would accept this fate and I haven't. I'm still angry about it, I still cry like a baby..like now. Just talking about it makes me cry. I'm also angry that I just can't seem to accept it like a lot of people here.
I literally feel like my hair defines who I am and I don't know how to get out of that.
My hair is at it's worst since I was able to go wig free 15 yrs ago. I had a good 15 yrs and now I'm literally on this site trying to find out where and how to go about getting a wig. So much information and choices with such a delicate decision. Ugh!

Apr 22, 2010
Roma

:) maybe oneday we can have a conversation in french?
Being british myself I have lived in france for 7 years i speak reasonably well though the language challenges me all the time! lolol

bonne weekend

Apr 23, 2010
Jordyn Charthern

too all

Apr 26, 2010
Lynn

I wish there was a section in everyones profile that stated what kind of wig they wear! Seems that's what everyone wants to know..including me :)

Apr 27, 2010
Danielle Royce

do you know of any grants for hair pieces for women with alopecia
i was recently up at a hair show in new york and one of the other hair replacement people said that their were 500 hundred dollar grants out their have you heard this

May 11, 2010
Percy Mills

Thank you very much Cheryl! I was waiting for the admin to get back to me so I am just seeing this comment now.

May 14, 2010
Dave

Thanks for the invite for national bald-out. I no longer live in Michigan, but you can bet Id be involved if I could be there. I love all you do for the site, and helping people make it ok to have this disease. God Bless!

Jun 1, 2010
JeffreySF

Hi Cherly and RJ,

Cant wait to see you both again!

Hugz,

Jeff

Jun 2, 2010
Stephie Dee

THANKS so much for this site and all the work you do here. Just AMAZING!!! o & thanks for the friend invite!

Jun 3, 2010
LeslieAnn Butler

Hey Cheryl, you are the greatest!
LeslieAnn

Jun 7, 2010
Emily

Thank you! Unfortunately I won't be able to meet on the 17th (I'll be in Canada visiting family). But I will keep checking the Michigan group's page to see when there are other meetings. Hope you are enjoying the summer.

Jun 14, 2010
Emily

I am from Montreal, too--West Island! I went to Ecole Secondaire Dorval, and then John Abbott, before moving away for university. How about you?

Jun 14, 2010
Emily

Nice to meet a fellow Montrealer here on Alopecia World!

Jun 18, 2010
Kevin Woolen

Thanks I look forward to it Cheryl.

Jun 19, 2010
Robbi

Thank you Cheryl, I look forwad to meeting you at the conferernce & hopefully at our July 17th get-together. It's always great to meet/know others in the area. See you soon!

Jun 19, 2010
Brittany

Hey Cheryl!!

Can't wait to see you and rj in 3 days! :)

xoxo
Brittany <3

Jun 20, 2010
JeffreySF

Omg Cheryl!!!
I cant wait to see you and Rj in...48 hours!!!

Hugz!

Jeffrey

Jun 23, 2010
JeffreySF

Hi Cheryl,
Cya tomorrow night!

Hugz,

Jeffrey

Jun 24, 2010
Anne Williams

A belated thank you Cheryl. I have just started blogging and have had some wonderful encouraging comments! What a great group.
Anne

Jun 26, 2010
rj, Co-founder

Babe, you are not "bald and beautiful," but beautiful and bald. In other words, you are not beautiful despite being bald, but a beautiful woman who only happens to be bald. You make the look -- the look does not make you. Love, #1 Husband, rj :-)

Jun 28, 2010
Galena

I co-sign with rj Sis. By the way, His Purple Badness aka Prince was seated next to a beautiful and bald woman last night on the BET Awards. Just wondering if you saw it. I was floored... Now that's called Royal Awareness. Much love to you and rj--enjoy the summer.
~G

Jun 28, 2010

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