Welcome to AW! hope your having a good day :o)

Thanks for the friend request, i have bipolar and other issues so i can relate to the depression. Always here to talk and your a beautiful lady and no loss of hair will change that. I hope you draw strength from the people on this site who have been and are where you are. So keep your head up and welcome agian :o)

Hiya! thanks!
You are also very, very pretty! :)
And how are you today?

Hi Julie, how are you, thanks for the add. I read your profile and I totally understand your feelings, here in this site you will see that there is many people in a similar condition than you. You seem to be a very intelligent person and pretty sure you can deal with this decease. I do not like the word suicide. If you don not mind what is Telogen effluvium I am not really familiar with it ...

You are absolutely stunning girl! Thank you so much for your kind words and I am always here for you if you ever want to talk or need advice! Losing my hair was the worst experience I ever had to go through, and am still going through it constantly each day. I have completely lost all my hair on my head and are starting to see bald spots in my eyebrows which is so upsetting, I try to stay positive but this disease does get me down alot of times and I know exactly how you feel. I take each day at a time and try to see the good in everything i guess.. Always keep your chin up hun and realize god wouldnt have given you this if he didnt think you couldnt handle it!

Hi there I just wanted to say hi and welcome. I have felt what you are feeling and boy it so gets to you some days. The pain is the worst. Ach!
Big hugs and take comfort you are never alone in all of this
xx

Hello! I read your profile and I to felt the same way many times. I started loosing my hair in March went to the dermatologist in April and my hair is coming back :) It is taking forever, but I am thankful. This is a great support place.

Hi Julie Ann, that sure is a beautiful fish you caught there, what lake are you on?
Concerning your profile..."pain is worse than hairloss" I think not just some of the time
but ALL the time.

Galvin

Hi Julie,
I see you are from Wausau Wisconsin. I also am from Wisconsin. I do not have alopecia, but have seen my daughter go through the challenges of alopecia. You are right; the doctors really don’t know much about alopecia. Natalie had gone through an array of treatments, including steroid shots, oral steroids, and creams, nothing seemed to work. Not knowing what this disease was and not being able to cure it was by far the most frustrating element of all.

This site has been a great resource and affirmation for me and my daughter. Knowing others are going through what you are can be comforting……..you are not alone. Reach out and get strength from people on this site. You do have a place on this earth and you are more than your hair. Please know that you are loved. Reach out…you have much to offer.

hi please add me!

Hi Julie! I see that my Mom has already introduced herself :) (Jean from Wisconsin.) I grew up in Milwaukee and have just recently moved out east. Please feel free to ask me any questions about alopecia. It's a difficult journey, but I promise that you will come out of this on top! This website is a great place to find support. Please know that you are not alone. Take care :)
-Natalie

How is your hair doing lately?? You are SOOOO beautiful!

Thank you very much for that nice comment:) hope you are doing okey :) And you look beautiful youself!:D

hugs Evy!:)

Sorry! I didnt realize I had a request from you! :) I am doing "okay" I feel like I wanna crawl in a hole and hide sometimes, but then I realize how much worse it could be. How is your hair doing? I have the pain like you do and its enough to drive you CRAZY! Is yours shedding too, or is it just pain? You are SOOO beautiful and you are an inspiration to people that have this, so keep your head up! :)

Hello and welcome, Julie!
How are you today?
When I had areata my head used to hurt, too.
Now that I have universalis, I am fine!
LeslieAnn

I am thinking about you...and hoping you can get through this stage. Changes are coming...within you, too. Change is hard...but sometimes we are surprised as to where change leads us.

Thanks for the add Julie. I loved the Big boys too when I was living in Michigan, but I dont see them here in Florida. I hope your pain goes away.

Devin

Hi, Julie Ann, thank you for the friend request. I know from experience that losing one's hair is so difficult to go through. I'm so sorry to hear about the pain you are experiencing on top of this. My heart goes out to you as well as my prayers. You are beautiful, too. Stay strong :)

Hi, Julie. Feel free to chat with me any time.

I think i have the name to your scalp pain and if you havent already read it its called Trichodynia.

Hey Julie, yes, I have diffuse alopecia areata....it's the same thing as alopecia areata...except it's a diffused version. This made it difficult to diagnose. I went to a hair specialist doctor, Jerry Shapiro, here in New York. He's the one who diagnosed me. I also mentioned the burning sensation...he said that they are well aware of it and don't know what causes it. I don't know if my hair will grow back, it's on a downward spiral, but the burning has subsided considerably...don't know why. But I was where you are right now, and I'm sorry what you are going through cause I've been there....it's horrible!!!!! And no one understands, they think you are exaggerating. My mother always says...AND it pisses me off...that I will have to learn to live with it. I'm telling you, I was ready to jump off a cliff. It hurt so bad. I think it may be part of the whole autoimmune thing...I'm not sure. In my case, I think it was caused by a hormonal shift, but that's not true for everyone. Yes, I've been there, I too, have had ALLLLL the tests done...some more than once because I also felt like shit, but nothing showed up on tests. So, I'm just (barely) dealing with it. I don't know if any of that helps,
but I just wanted to let you know that I understand. BTW, don't let your doctors make you think that you are crazy and need to speak to a therapist...that's what they say when they don't have an answer to your problem.

Hi Julie, I'm glad that I helped you out :)

haha it's my friend Madeline's picture but yes Derek does have a brother unfortunately he is already married too!

I got Alopecia when I was 7 years old. I wore a wig until I was 13. I stopped because it annoyed me and I didn't feel like I could be myself in it because I was always scared it would come off. Being athletic wigs never helped me be as competitive as I wanted in sports. I happened to make some really awesome friends at the NAAF conference who helped me realize it was ok to be bald and love who you are so now I'm fortunately very comfortable with being bald.
I've only had scalp pain once when I grew like 2 patches of hair back on my head. I shaved them because they hurt and they never came back. I have totalis right now. What about you what is your story? No problem for the add :)

Hiya Jools - ta for the pal add! Glad I could make you chuckle a bit.... hey, life's too short to be miserable for long!
Sorry you're having a tough time right now, but it's to be expected when you have a major loss and a change in your appearance. But it's always worth remembering that there's something "wrong" with everybody... even (supposed) gorgeous famous peeps!
(This doesn't apply to me, obviously. And probably not you either, really... :) )

just read what you said about doctors and i am tottaly in agreement, Its our bodies and we are interested in whats going on i believe if we are not asking for anything illegal then why cant they take another test sheesh like as if i love giving them my hard earned money lmao its like dont flatter yourself i didnt come in here for the fun of it.

YOU ARE SO BEAUTIFUL,THIS TO SHALL PASS

Heey! Thank you for your sweet words! I always try to stay positive in every situation, it may sound cheese but it works! (Always look on the bright side of life)
The biggest mistake people ordinary do is to count all of the setbacks and tragedies that we encounter in life. I always count all of my blessings. Only the simplest thing in life - The fact that I can walk, talk and that I have a job. Those are some things we underestimate daily.
I know it can be hard at times, but please stay strong and know that it will get better with time. If you have any questions or anything. Don't be a stranger!
Love / Jen

JUST wanted to see how your doing?i have been keeping you in my prayers.

I just have read your post, and you are suffering the same problem than me....i got a lot of pain in my scalp and hair loss, in my page I have put that I have alopecia areata but the doctor say that I have effluvium telogen, but a really bad one.
i wanted have a biopsia too, but the doctor said that it is not necesary because it is a efluvium ...and the pain ......they said it is because there is inflamation in my scalp but my scalp looks perfectly fine and healthy and, I am having celesemine for the pain ...but i cant take that forever!! it has a bit of corticosteroid.....

by a

i from spain so my english it not good, i would like keep in touch because our problem is similar..
the trusth is that any doctor knows the reason of this.....when they say the word ...stress...uff .....Iam completly sure that it is not the problem, i know there is something else.
well, i am trying anything....now i think that it could be something that i am eating what is causing this......so i ditch the free product like coca cola light and gluten

Hey! i just wanted to say you are beautiful and keep your chin up ;) I hope you are feeling better.

hihihi.....greetings from old germany and crasy volker to anice princes,-))))

Hey Julie, I'm doing alright, my hair is getting a lot worse, but the pain I was having which I am guessing was fibromyalgia is much better. How are you? I know how that constant pain can almost make you go insane. The only good thing a bought it is now that it has subsided it makes the Alopecia seem not as bad:)

Devin

Send you a smile,andddd hmmmmmm hahahahah

and 1000 more :-)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))....

Hey, no I didn't get your message either....WTF? Anyway, I'll have to re-write my reply when I get a chance.
:P

Hi julie, how are you? Yes, I got that message, that's the one I replied to and you didn't receive...hmmm? Anyway, I'll try to recall what I wrote. Firstly, I want to slap the crap out of your therapist. I went to a million doctors and they all made me feel like an idiot...except for one, Jerry Shapiro (a hair specialist) He is the only doctor I went to that heard of the burning scalp thing. Unfortunately, the whole burning thing IS real and many people on this site have experienced it. YOU are not causing it and it is NOT your fault!!!! It's just that something quirky is going on in your body. Next time you see your therapist, give him a swift kick in the balls and ask him not to think about the pain OR it's just in his head...LOL!! There are several diseases that doctors didn't believe existed and now they do, like fibromyalgia. You are not crazy and you are not creating this pain, although I know it could drive you crazy. But don't feel like an idiot....I hate most doctors. As for advice, I'm sorry I wish I knew what would help myself. Just wait for the results, and know that you can reach out to me whenever you want.

Thank you for your compliment...you too are a beautiful lady if I may say so!!!

Thank you very much!:D I had a wonderful day with good food and presents:)
Hugs Evy

Okay, I will go to my church and have a word or two with GOD. I get tired of His tests too! I will let him know how we feel. :(