Im 28 single mom who was just diagnosed with alopecia. Im not taking it very well, but Im trying to cope. A year after I found my first patch and I shaved my head Im still trying to deal with everything.
I've been making the best of things. I have a Mohawk (sort of) and the friends that know about my alopecia are very supportive.I still dont go out very much without a wig or a hat it was pretty positive the few times that I was bald in public and I posted a few pictures of me without a wig on my Facebook Im getting a little more comfortable with myself. Im still a work in progress.
Hello and welcome, Trixie!
I know how hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and it's available on this site under "Bookshelf." Let me know if there's anything else I can do!
LeslieAnn
Thanks...Trixie! I have telogen efluvio but my hair is still falling out..O seldom go out ..sometimes with a pony taol and a hat..I dont want to tell people about this..I don“t know how to handle this..
Hi my name is Judy hope your feeling better, its hard i was dignosed when i was 7 with only patches all these years. I'm 40 years old and have had my worse time the AT I'm considering shaving, yes it's hard but I also beleive thing in life happen that are scary but nothing happens that you can't handle. look at this way it can be a sickness that deadly. dont get me wronge it is so hard my hair is so thin I wont take pictures that picture of me was when I had a full head of hair. My 13 year old donate her hair to lots of love to help people like us, she has always had long hair and recently cut 12" to help mommie cope with the fact that its just hair. Hope this helps u
Hi, Trixie. Welcome to our sanctuary :-), it's been so long since I've been here, I almost feel like a newbie, but that will change now that I have my life back from the city's kids, whew!
Anyway, I can tell you're comfortable here, as I've read a little of this page, it's good you're comfortable enough to talk to us. I hope to see you on the pages around here, be kind to yourself, Clayton
Hi Trixie, thanks for us becoming friends. Alopecia is something that all of us have to cope with in our own way. I've had it for decades but not until I went to a support group did I start getting re-involved and it has helped me to understand and acknowlege people with Alopecia. It's made me start a motivational talk for Alopecians to come together. In Ohio they should have support groups too.
hey! thanks for the info. i will definitely take a scarf! i LOVE Harry Potter too!!! i didnt even know they had a theme park! where is it?? id love to go!! and your son is right about changing wigs, it would be funny! i have the same type of "twisted" sense of humor lol.
Linda
Jun 13, 2009
LeslieAnn Butler
I know how hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and it's available on this site under "Bookshelf." Let me know if there's anything else I can do!
LeslieAnn
Jun 13, 2009
Tracy and Amanda
Welcome! You will find tons of support here!
Tracy
Jun 15, 2009
Roger
Roger.
Jun 18, 2009
Karina
Jul 6, 2009
Karina
Jul 7, 2009
JUDITH
Jul 28, 2009
Mary
Aug 11, 2009
Clayton
Anyway, I can tell you're comfortable here, as I've read a little of this page, it's good you're comfortable enough to talk to us. I hope to see you on the pages around here, be kind to yourself, Clayton
Sep 29, 2009
Clayton
Be well.
Oct 2, 2009
Galvin
Dec 18, 2009
Frank Pratt
Jan 3, 2010
Gale Moorman
Feb 3, 2010
Danielle Pace
Jul 2, 2010
Ashley Garrett
Aug 8, 2010