I've been bald since I was in elementary school and I am soon to be 35. None of the treatments have worked but I have grown to love my "baldness". I'm just looking to connect with other people living with this condition and maybe be some help to people who aren't coping that well with it.
Sorry I'm not very consistent with replies, I'm doing this from work. I think that would be great if there was a support group for kids. As for the support group in NYC, I'm getting the impression that it doesn't meet in the fall and winter, but I don't know. As for myself,
I've been married two years, but no children yet. Congratulations on yours!
How the hell did I wind up here? LOL. Well, I did live in Manhattan. He lived in Astoria.
He had the bigger apartment. He won. I don't love it though, and I want to move some day. The grocery stores suck. Anyway, how about you? Looking at your pictures, you seem like some kind of "official" sort of guy.
LOL. You're funny. Yes, a lot of feta cheese etc. around here. Wow, a US marshall, that must be really interesting and exciting. I'm a graphic designer for women's sleepwear, ho hum. I also work in the city.
Thank you for the friend invite! Looking forward to it!! :) Hey I see you aren't so far away- so is it safe to assume you are watching the world series and rooting for the Yankees!? So what is Oceanside close too? I'm not familiar with it... I do have a relative in Queens. And used to have some on Long Island -but that's been awhile.
Wow- hairloss sense Elementary school. I'm sorry - middle and high school is tough enough with having to worry with AA! You sound so well adjusted now... wish it was contagious! It's a big emotional struggle for me. Good ole' spot roll call each night gets old!! :)! I do however feel very fortunate that (knock on wood) I am still able to hide my spots with my hair.
It is so nice to finally know that I am not alone. I wish I had this site years ago. I think I have come along further in the last couple weeks of being on this site than I have in the last 30 years of having alopecia.
Yes I agree, I think kids thought I had cancer. Not sure. It didn't stop them from being mean at times though. I like to think or hope it is alot easier for kids with alopecia these days. Wigs are alot nicer and it is a little more known about. It is a long path to recovery for me(accepting and being ok with it) but at least I have started the journey. I had found other addicitions to numb the pain like food and alcohol, but slowly I am learning to heal in other ways.
The Raven game was awful!!!! Didn't look like the same team from last week! Lost a bet too! depressing- maybe a bottle vodka and straw will help? haha!
Since you just had injections- are you still using the cream?? Did the doc give you any idea of when you could expect to see some new growth?
Hi no, I have not found a support group and I am drowning. My husband is so awesome. But, I'm tired of crying to him. I lost mine when I was 38. I am now 41. I want my hair back :)
Margaret
Let's do it. Let's get the LI together :) Where are you. I can be reached at 631-680-0148. Been a long day going to bed. You have a new baby! Congrats. Your first? nothing like your first! We have three girls. 11,9,7
Margaret
Hey- I tried to send you a PM- but do not think it went through?? When I hit send nothing happened. So I kept on hitting it! HA- so you either got nothing (which I suspect something is not working) OR you got like 15 of the same thing??
Sorry it took so long to write you back. I liked the group, you get the support, the opportunity to vent, the opportunity to inspire, and gather information. They have a resident dermatologist attend who happens to have alopecia as well. Did you lose all your hair before your eyebrows began thinning?
I'm a bit concerned about the steps that this process can take. I think my biggest problem with this condition is not the hair loss but the lack of knowing what will happen.
Hi Eric. Thanks for the add, and I look forward to hearing more from ya. I'm still learning my way around here at AW, but I'm loving it so far. It's helping me cope with my recent diagnosis, and see what may be ahead. It's great to see so many others and how they deal with it, and helps me learn new ways to do the same!
Hey Eric! Thanks for the comments on my blog and profile. Luckily I have found this site and people like you to be supportive when negative things happen!
Hope you had a great Thanksgiving, too! Take care!
Hi Eric,
I'm so sorry I just saw your message on the NYS group page. We have a support group in Rochester, NY. Where are you? Have you had any luck finding a group?
OMG-- wow it has been awhile!! Fill me in- how is everything in your world? How is the little Bambino?
All is well here. ... same ole. Working and trying to stay out of trouble. My AA is about the same... spots spots spots... some with spouts of hair growing back others just forming. I had a good summer but am excited for Fall.. my favorite time of year! I did have a bit of a heart break today.... Poor Ravens ( I am a little hoarse from the last 5 minutes!) ! so its that time of year again too!
Eric - thank you for the sweet note...it's amazingly helpful, this website and how wonderful meeting others in similar situations who are animal lovers and rescuers as well! I don't know where I'd be without my husband, friends and my pets. They just give you a reason to laugh when you wake up. I mean, seriously, we have no hair .. it's not the end of our world. My dogs would give me theirs if they could :) Hope you are happy and well and it appears that it's your big birthday - happy day to you!
eric.. i dont know what happened... i tried to post a pic and i lost ya... i hope to chat soon!!! you effin rock and i hope you make it to the conference!!!!!
Hey Eric,
How are things?
All is good here. Ready for the weekend!
Thanks for the Chat tonight it was good to catch up with you!
Hope you can make NAAF LA 2011
Jeff
Heather
Anyway, hi. How are you?
Oct 22, 2009
Roger
Roger.
Oct 22, 2009
Heather
Oct 22, 2009
Heather
I've been married two years, but no children yet. Congratulations on yours!
Oct 23, 2009
Heather
He had the bigger apartment. He won. I don't love it though, and I want to move some day. The grocery stores suck. Anyway, how about you? Looking at your pictures, you seem like some kind of "official" sort of guy.
Oct 25, 2009
Heather
Oct 25, 2009
Lynn
Oct 27, 2009
Heather L
Thank you for the friend invite! Looking forward to it!! :) Hey I see you aren't so far away- so is it safe to assume you are watching the world series and rooting for the Yankees!? So what is Oceanside close too? I'm not familiar with it... I do have a relative in Queens. And used to have some on Long Island -but that's been awhile.
Wow- hairloss sense Elementary school. I'm sorry - middle and high school is tough enough with having to worry with AA! You sound so well adjusted now... wish it was contagious! It's a big emotional struggle for me. Good ole' spot roll call each night gets old!! :)! I do however feel very fortunate that (knock on wood) I am still able to hide my spots with my hair.
Hope you are having a great night.
Heather
Nov 2, 2009
JeffreySF
Thanks for the chat tonight.
Let me know how your Derm appt goes tomorrow.
Jeffrey
Nov 4, 2009
Heather L
Hope the derm appointment goes well today! Fill me in when you get the chance!
good luck!
Heather
Nov 5, 2009
Jacquie C
It is so nice to finally know that I am not alone. I wish I had this site years ago. I think I have come along further in the last couple weeks of being on this site than I have in the last 30 years of having alopecia.
Nov 8, 2009
Jacquie C
Nov 8, 2009
Heather L
The Raven game was awful!!!! Didn't look like the same team from last week! Lost a bet too! depressing- maybe a bottle vodka and straw will help? haha!
Since you just had injections- are you still using the cream?? Did the doc give you any idea of when you could expect to see some new growth?
hope you had a nice weekend!!
Heather
Nov 8, 2009
margaret staib
Margaret
Nov 10, 2009
margaret staib
Margaret
Nov 10, 2009
Heather L
Nov 10, 2009
JeffreySF
Whats up?
So a slow thyroid eh? When do you get to retest? Has your thyroid always functioned properly in the past?
I'm off work until saturday so 3 days of fun in store for me woo hoo
Jeffrey
Nov 11, 2009
Maureen
Nov 11, 2009
Jocelyn
Sorry it took so long to write you back. I liked the group, you get the support, the opportunity to vent, the opportunity to inspire, and gather information. They have a resident dermatologist attend who happens to have alopecia as well. Did you lose all your hair before your eyebrows began thinning?
I'm a bit concerned about the steps that this process can take. I think my biggest problem with this condition is not the hair loss but the lack of knowing what will happen.
I hope you had a nice start to your weekend!
Nov 13, 2009
Callie
Take care, hope to chat with ya soon!
Nov 23, 2009
Callie
Hope you had a great Thanksgiving, too! Take care!
Nov 28, 2009
Elizabeth
I'm so sorry I just saw your message on the NYS group page. We have a support group in Rochester, NY. Where are you? Have you had any luck finding a group?
Dec 3, 2009
JeffreySF
Congrats on your new NAAF Group!
Jeffrey
Dec 4, 2009
Heather L
Heather
Dec 24, 2009
Heather L
Heather
Dec 27, 2009
JeffreySF
Happy Belated Birthday and wishing you a Happy New Year!
Jeff
Dec 31, 2009
Sam Sam
Sep 16, 2010
kaitlin lavin
Sep 18, 2010
Heather L
All is well here. ... same ole. Working and trying to stay out of trouble. My AA is about the same... spots spots spots... some with spouts of hair growing back others just forming. I had a good summer but am excited for Fall.. my favorite time of year! I did have a bit of a heart break today.... Poor Ravens ( I am a little hoarse from the last 5 minutes!) ! so its that time of year again too!
Hope all is well with you!!
Heather
Sep 19, 2010
soniamarry
Oct 20, 2010
christine policicchio
Oct 28, 2010
Rebecca Strobel
Oct 30, 2010
christine policicchio
Nov 1, 2010
JeffreySF
Stopped in to say hello.
How are you?
All is good here.
Jeffrey
Nov 2, 2010
soniamarry
Nov 3, 2010
JeffreySF
Stopping in to say hello. "Hello"
Have a great weekend!
Jeff
Nov 12, 2010
Chentil Changing
Nov 20, 2010
Chentil Changing
Nov 20, 2010
JeffreySF
Jeffrey
Nov 24, 2010
Essence
Nov 25, 2010
Heather L
Eric,
HAPPY HAPPY BIRTHDAY!! Hope it is a wonderful day!!
Heather
Dec 27, 2010
soniamarry
Dec 27, 2010
soniamarry
Just dropping in to say hello. Hope all is well!:)
Jan 20, 2011
JeffreySF
How are things?
All is good here. Ready for the weekend!
Thanks for the Chat tonight it was good to catch up with you!
Hope you can make NAAF LA 2011
Jeff
Feb 5, 2011
lanaya lopez
Feb 27, 2011
lanaya lopez
Feb 28, 2011
Abigail Leo
Apr 4, 2011
lanaya lopez
how are you? stop to say hi. i hope all is well
have a great ay
Apr 10, 2011
lanaya lopez
Apr 10, 2011
lanaya lopez
Apr 24, 2011