I was diagnosed with Alopecia Areata on 10/4/10. I first noticed my bald circles back in August. I am 49 years old, married, with three grown sons, a daughter in law,and one grandson. My interests/hobbies are: scrapbooking & photography, reading, quilting, parasailing, going to the beach, American Sign Language, listening to music that makes me feel good. I have two Cavalier King Charles Spaniels, Bella and Copper. They always seem to make my day! I have been distant from AW for a while now. My mom was diagnosed with Small Cell Lung Cancer a year ago, and passed away April 18, 2014. As for my hair, it's thin, but it's in. It just wont grow, so I stopped getting hair cuts almost completely. Trying to adjust to a 'new normal' without my mom.
Hi Diana!
Thanks for your reply.
I´m sure you´ll like this community! It supported me a few months ago when I was new to this condition as well (diagnosed January 2010). Now I´m trying to get used to it :-). Do you fell Ok with it?
I really like your profile picture...you look really nice.
Please excuse my English. It isn´t my mother tongue (I´m from Germany) and therefore I guess I´m making a lot of mistakes...
Greetings from Germany ;-)
Hey Diana :-) !
I exactly know how you feel right now. I was diagnosed with AA in february 2010 and within two weeks my whole head was bald. I was so shocked and so scared of looking in the mirror. What I expirienced till then is that you can learn to live with this "disease" (I think it isn´t really one).I know there are lots of ups and downs (my up: the great acceptance of this by my friends and family and the support they gave me. My down: to shave my head completely yesterday after the regrowth) but all in all it shouldn´t keep you away from living your live like you want to!
Youre newly diagnosed with it, so give yourself the time to learn coping with it. Its possible that the injections will help and the regrowth will start soon. Don´t worry and think to much of it...when I started to loose my hair, I wished that it would be just over as soon as possible because it just freaked me out to see my hair lying around everywhere but not ón my head.I even refused to comb it for a certain time ;-)(I wouldn´t recommend that) After a week about 70% of my hair has been gone and so I decided to stop the whole thing and shaved it!! Personally, I think, it was the best thing to do in my situation.
Afterwards I started the whole cortisone thing..it didn´t work and so I´m now trying DPCP which causes a strong allergic reaaction and both irritaes and makes you skin itch. Now I hope for some more results. There are a lot of things you can try. But don´t make your word rotateg around it ;-)
So what I want to say it that whe whole thing may sound really scary...but after all its just your hair and you are not your hair. Don´t let it control your life and live like you did before. Don´t worry and stay strong :-).
Its my first comment like this...so I did my best to explain the situation!! I hope it isn´t too confusing.
Hi Diana, Seems like we have alot in common I was diagnosed on sep, 13th with alopecia areata, but I also got a biopsy to rule out other things..Such as Lichen Planus and all..I am to finding hair everywhere and its very depressing..I started out with one silver dollar spot on the crown of my head, than 3 weeks later found 2 more spots right next to the big one seeming like it was coalacing into one big spot..I opted out of the injections to see what else I can do without harming my body..I have been using OLUX Foam, but it seems like the foam stops my itching and redness, but causes my hair to fall out alot more than it did before I had used it..I completely understand how you feel..I am so sorry you are going through this as we all are looking for answers..I personally myself is a 27 yr old nursing student in my last year and has lost alot of clinical due to my depression from bald spots and AA..I often wonder why this is happening and when it will stop..Ill be parying for you :) Try to stay strong I know this is hard because I have not yet accepted this and I am in denial..I am so afraid to lose all of my hair...But the more itchy my hair is the more I wanna scream out and freak out..Hang in there
Hi Di! Thanks for the pal add! I wondered why I was getting that "being watched" feeling... now I know it was you!! :)
Sorry you're having a hard time with the AA and you don't think Himself "gets" it. But you gotta remember us guys are rubbish at expressing ourselves... the best we can do, most of the time, is a simple "I love you" and then we think we've done our bit. So maybe you need to get your own feelings in order, so you can tell him exactly how it is for you, and see if he can relate to that? And if that doesn't work, a nice piece of 2-by-4 should do the trick. ;) xxx
Good Morning Diana! I love how you call AA spots "crop circles." I was just watching that bit on the History channel recently about crop circles and ancient gods, the pyramids, etc.
Hi Diana,
Glad you enjoyed the pics and the music.
How are you doing with the alopecia? It looks like you are getting to meet some new friends.
Hugz!
Jeffrey
Hi Diana,
Thanks for "friending" me. It's feels good to make connections with people who are going through the same thing. It's good therapy and I really need that right now. I've been having such a hard time being myself and it's been such a roller coaster ride these past 8 months. I hate the feeling of losing control!
Diana, how is my favorite woman in the world? I hope your holiday went well and you were able to relax some..Have a great New Year!!! xoxoxo hugs Miss you..
Thanks for the friend invite! I enjoyed all your pictures-- LOVE Copper :) Sorry you had to cut all that beautiful hair! GRRRRR - I find for myself that I need my hair long enough to have "combover" flexibility and short enough to not look too stringy. What a choice...hahaha. BUT I'm happy to have every strand hanging in there - so not complaining.
Hey how are you?
thanks for adding me:)
its a very good site, makes ppl feel gd who have alo.
i have the uni alopecia, my hair is very weird actually...if you read what i wrote.. its odd not like some ppl who have alopecia... O.O
Hi Diana! Great to hear from you. Did you hear about the NAAF Dallas event this Saturday? It is a family oriented event at a game type place. Let me know if you didn't receive details and I can forward on the evite. Hope you are doing well. Looking forward to seeing you again.
I'm a little slow getting around to blogs/discussions sometimes and just now read about you losing little Luxy. I am so very sorry. My westie is 15 with several heath issues and I'm not to sure how much longer I will have him ... so I can relate. They really are part of our family. ( and in some cases the best part! :) ) Keeping you in my thoughts & prayers.
Mia
How are you doing?
I´m Mia.
Oct 8, 2010
Mia
Thanks for your reply.
I´m sure you´ll like this community! It supported me a few months ago when I was new to this condition as well (diagnosed January 2010). Now I´m trying to get used to it :-). Do you fell Ok with it?
I really like your profile picture...you look really nice.
Please excuse my English. It isn´t my mother tongue (I´m from Germany) and therefore I guess I´m making a lot of mistakes...
Greetings from Germany ;-)
Oct 8, 2010
JeffreySF
Welcome to Alopecia World.
Jeffrey
Oct 9, 2010
Mia
I exactly know how you feel right now. I was diagnosed with AA in february 2010 and within two weeks my whole head was bald. I was so shocked and so scared of looking in the mirror. What I expirienced till then is that you can learn to live with this "disease" (I think it isn´t really one).I know there are lots of ups and downs (my up: the great acceptance of this by my friends and family and the support they gave me. My down: to shave my head completely yesterday after the regrowth) but all in all it shouldn´t keep you away from living your live like you want to!
Youre newly diagnosed with it, so give yourself the time to learn coping with it. Its possible that the injections will help and the regrowth will start soon. Don´t worry and think to much of it...when I started to loose my hair, I wished that it would be just over as soon as possible because it just freaked me out to see my hair lying around everywhere but not ón my head.I even refused to comb it for a certain time ;-)(I wouldn´t recommend that) After a week about 70% of my hair has been gone and so I decided to stop the whole thing and shaved it!! Personally, I think, it was the best thing to do in my situation.
Afterwards I started the whole cortisone thing..it didn´t work and so I´m now trying DPCP which causes a strong allergic reaaction and both irritaes and makes you skin itch. Now I hope for some more results. There are a lot of things you can try. But don´t make your word rotateg around it ;-)
So what I want to say it that whe whole thing may sound really scary...but after all its just your hair and you are not your hair. Don´t let it control your life and live like you did before. Don´t worry and stay strong :-).
Its my first comment like this...so I did my best to explain the situation!! I hope it isn´t too confusing.
Oct 10, 2010
Trish
Oct 10, 2010
JeffreySF
I hope you find strength and comfort here. I know I have.
Jeffrey
Oct 10, 2010
LeslieAnn Butler
How are you today?
LeslieAnn
Oct 11, 2010
BT
Oct 18, 2010
Tallgirl
Oct 23, 2010
Trish
Oct 23, 2010
Donna Schillaci
Thank you, your too sweet! If there is anything I can do, or you just want a friend, I'm here for you!
Donna~~
Oct 31, 2010
Rhonda in Texas
Nov 4, 2010
Norm
Sorry you're having a hard time with the AA and you don't think Himself "gets" it. But you gotta remember us guys are rubbish at expressing ourselves... the best we can do, most of the time, is a simple "I love you" and then we think we've done our bit. So maybe you need to get your own feelings in order, so you can tell him exactly how it is for you, and see if he can relate to that? And if that doesn't work, a nice piece of 2-by-4 should do the trick. ;) xxx
Nov 4, 2010
soniamarry
Nov 4, 2010
Elizabeth
Nov 6, 2010
soniamarry
Nov 6, 2010
soniamarry
Nov 8, 2010
Elizabeth
Nov 9, 2010
Angie P
Well, I had better act like I have to go to work tomorrow, er today, and smack the sack. It was so nice chatting with you. :)
Nov 11, 2010
Angie P
Nov 14, 2010
Kim Karacz
Nov 14, 2010
JeffreySF
Glad you enjoyed the pics and the music.
How are you doing with the alopecia? It looks like you are getting to meet some new friends.
Hugz!
Jeffrey
Nov 15, 2010
JeffreySF
Make sure and get the help and support you need.
Jeffrey
Nov 15, 2010
Kylie Bamberger
Nov 16, 2010
soniamarry
Nov 16, 2010
Trish
Nov 17, 2010
Trish
Nov 19, 2010
Trish
Nov 20, 2010
Phyllis Wallace
Thanks for "friending" me. It's feels good to make connections with people who are going through the same thing. It's good therapy and I really need that right now. I've been having such a hard time being myself and it's been such a roller coaster ride these past 8 months. I hate the feeling of losing control!
Dec 1, 2010
Have a blessed Christmas, Diana! :)
Dec 2, 2010
Jennifer Boucher Wilkerson
Dec 19, 2010
Trish
Dec 27, 2010
Heather L
Thanks for the friend invite! I enjoyed all your pictures-- LOVE Copper :) Sorry you had to cut all that beautiful hair! GRRRRR - I find for myself that I need my hair long enough to have "combover" flexibility and short enough to not look too stringy. What a choice...hahaha. BUT I'm happy to have every strand hanging in there - so not complaining.
Hope you had a wonderful holiday!
Heather
Dec 28, 2010
Mary
Dec 29, 2010
soniamarry
Jan 1, 2011
Paul DeMars
Jan 17, 2011
Maya :)
thanks for adding me:)
its a very good site, makes ppl feel gd who have alo.
i have the uni alopecia, my hair is very weird actually...if you read what i wrote.. its odd not like some ppl who have alopecia... O.O
Jan 19, 2011
JeffreySF
It's gonna be great!!! Who did you get for a roomie?
Jeffrey
Feb 10, 2011
Heather L
Heather
Feb 14, 2011
Mackenzie
Feb 14, 2011
JeffreySF
June will be here before you know it.
Jeffrey
Feb 15, 2011
Angie P
Hope you and yours are doing well.
Mar 12, 2011
Mackenzie
Mar 21, 2011
Kim Karacz
Mar 23, 2011
Heather L
I'm a little slow getting around to blogs/discussions sometimes and just now read about you losing little Luxy. I am so very sorry. My westie is 15 with several heath issues and I'm not to sure how much longer I will have him ... so I can relate. They really are part of our family. ( and in some cases the best part! :) ) Keeping you in my thoughts & prayers.
Heather
Apr 6, 2011
Angie P
Apr 13, 2011
Tallgirl
Jun 28, 2011
JeffreySF
It was great meeting you at NAAF LA.
Hope all is good with you!
Jeffrey
Jul 2, 2011
JeffreySF
I know the Conf goes by so quickly. I wish it would last longer.
Have a great day!
Hugz!
Jeffrey
Jul 4, 2011
Rosie
Jul 17, 2011