25

Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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JeffreySF

Hi Cheryl,
It's like Alopecia was my calling.
I couldn't live without The Rat Pack!!!
Hugz!
Jeff

Jul 8, 2011
Hallie

hey thanks for making me feel welcom =D i was wondering if u could help me out with some stuff...........

Jul 11, 2011
Gabby

Hi Cheryl!!! thank you very much :D I hope you remember me :D lol I sent you a message on Facebook and you told me about here :D thank you very much I feel sooo happy here :D and I'm doing so good hope you're doing good as well :D XoXo

Jul 16, 2011
Michelle

Thanks for the friend request Cheryl. I hope to meet you someday at a conference.
Michelle

Jul 25, 2011
Lorna

Hey, I'm doing ok thanks. Feeling more confident again in my decision to do the FB outing. Will take a bit of time to sort out the family fall out from it though. How's things with you? This site is fantastic! You must be so pleased at how much support has come of it. X

Jul 26, 2011
Wendy Green

Thank you for the invitation, however we are busy that day.

Jul 28, 2011
Linda

Hi Cheryl, how are you and the "hubster" doing? I've been sooooo busy lately with work, family and my daughter's wedding. It is August 13th, I can't wait until it is over!

Jul 29, 2011
R0BB

Thanks for the kind words Cheryl .

As long as I feel that Im leaving a positive message here ...it is truly my pleasure.

Jul 29, 2011
Clayton

Leave it to you to be on the ball, Cheryl. :-)

It's good being back, thanks...

Jul 30, 2011
Aeron Howarth

Thank you for the warm welcome...2 years ago. I just never really got on much and didn't know how to use this site or anything but I got back to you! (:

Aug 6, 2011
Tallgirl

Bald Girls Do Lunch on the Today Show‏ - YouTube

www.youtube.com/watch?v=r15A3DvX8QU
5 min - Jul 27, 2009 - Uploaded by alopeciaworld
Bald Girls Do Lunch on the Today Show, Monday, July 27, 2009. http://www. alopeciaworld.net. ... You need Adobe Flash Player to watch ...

Aug 11, 2011
10yr old Jada and her mommy

Thank you much I like this page....Jada

Sep 5, 2011
Anna Seagle Craft

Thanks Cheryl! I love the new site! This is going to be a great month of awareness!! Thanks for all you do!!

Love, Anna

Sep 7, 2011
Elocin

Thank you very much for all your wonderful comments. I haven't been on here in a while, but it's nice to be back. This site is awesome! And I just wanted to share with you that my community just had our 3rd Annual Alopecia Awareness Fundraiser event on August 31. We raised around $2,600 for the NAAF. =)

Sep 9, 2011
Meaghan

thank you soooo much!!!!!!!!!!!
IM SO EXCITED TO BE HERE!:)

Sep 17, 2011
Anna Seagle Craft

Thank you Cheryl! We are doing great! And I am very satisfied and content with Trent and his reaching out to others!! I attribute all of this to YOU and the foundation for educating us when we needed it the most!! Thank you again!!

Sep 20, 2011
Sarah Eisenhardt

Hi have you thought about joining us at the apple orchard this Sunday here is the link to the event.
http://www.alopeciaworld.com/events/apple-orchard-with-children-s-a...

Sep 29, 2011
Linda M Mizell

HEY CHERYL YES I AM ENGAGED THE BIG DAY WILL BE SOON DON'T REALLY WANT TO RUSH THINGS THIS WILL BE FOR ME AND MY FIANCEE' SECOND MARRIAGE SO WE DECIDED TO WAIT TIL MY SON GRADUATE FROM HIGH SCHOOL WHICH WILL BE THIS JUNE 2012 THANK YOU JESUS!!!! :) AND THAN SHORTLY AFTER THAT WE WILL BE PLANNING A WEDDING....AMEN I WILL BE SURE TO KEEP YOU POSTED:)

Sep 29, 2011
Amy

Cheryl, thank you so much for starting this site! It has helped me so much.
Amy

Oct 2, 2011
Jennifer Krahn

Hey Cheryl,
Thanks for the phone call yesterday. You are an inspiration as is this site! Keep it up!

Oct 5, 2011
MAT´S MOTHER

HELLO CHERYL, IAM A BRASILIAN MOTHER OF A 17 SON WITH ALOPECIA IAM DOING THE BEST I CAN TO SUPPORT HIM , IT LAST ALMOST 2 YEARS, AND IT IS VERY HARD. ALOPECIA WORLD IS A BLESS FOR ALL OF US THAT FEEL SO DEEP ALONE , IT GIVE US THE CHANCE TO LEARN, SHARE AND UNDERSTUND THAT WE ARE NOT ALONE IN THIS ISSUE. THANKS,AND GOD BLESS Y . HUGS, CLAUDIA

Oct 10, 2011
Angie

Thank you Cheryl, good! face book is a good place that allowes voices to heard.

Oct 12, 2011
Deana

I am not very sure how to navigate this website
yet. I am having a hard time downloading a picture from
my iPhone because there does not seem to be an
Attachment option : / I am looking forward to getting to
know the members here ;D

Oct 14, 2011
b

Thank you Cheryl for being so welcoming!! I am so relieved to see I am not alone. It is so awesome to see so many smiling. I'm not smiling yet, but hopefully it won't take long for me to be smiling too!!

Oct 14, 2011
Gabe

Thank you. Its nice to be connected to a community with the same affliction.

Oct 17, 2011
vanessa

thank you for the welcome :)

Oct 18, 2011
Disaster

Thank you for the welcoming message

Oct 18, 2011
Luvinmesumme

Thank you Cheryl.

Oct 19, 2011
vanessa

thanks very much for the great welcome :)

Oct 21, 2011
jazz

awesome thanks!

Oct 25, 2011
jazz

thanks for the welcome

Oct 25, 2011
lynn

HI Cheryl, This seems like a great site. Being fairly new to alopecia, I really haven't been on any blog sites.

Lynn

Oct 26, 2011
Kimberly Gallagher Fardone

Thank you for the great welcome!!!

Oct 27, 2011
Herminia

thanks for inviting me..

Oct 29, 2011
mabaker

Thank you x

Oct 31, 2011
darlin1925

Thank you,
I have been so lost not knowing what to do and at the point of giving up when I get an email from you helping me out I wish I had words to thank you but there just are never enough t explain how you have made me feel just knowing that you cared enough to show me the way and I know you have to be so busy at everything you do here and at home to show me the light of hope thank you and God Bless you.

Oct 31, 2011
ali hinkle

thank you for giving me a place to deal woth this

Nov 1, 2011
rbr32

thank you cheryl! i have had alopecia for over 20 years. it has been a long battle. I'm so glad I found this site! Looking forward to meeting everyone on the site and sharing/swaping stories!

Nov 1, 2011
Katrina

Thanks for your message Cheryl:-)

Nov 2, 2011
Andy

Hi Cheryl, thanks for your message. I'll definitely check the link out :)

Nov 2, 2011
Karli R.

Thank you for the welcome, Cheryl!

Nov 3, 2011
Nachiketa Sanyal

Hi Cheryl, can u pls tell me how to delete a group on this website?
I am the group admin, but i dont see any option to delete or any tech support either
thanks!

Nov 7, 2011
Nachiketa Sanyal

"Indians with alopecia". A similar grp exists, so i dont want to duplicate.

Nov 8, 2011
Nachiketa Sanyal

thnx a bunch cheryl! :)

Nov 8, 2011
Kyra

Thank you so much for the welcome! I know I'm a bit late for commenting back but I'm still getting used to the site :)

Nov 8, 2011
Theresa

Thanks a bunch Cheryl!!!! Happy to be amongst God's special people.

Nov 8, 2011
Bruce

Thanks for the welcome, Cheryl. I can't believe how much help this site has been in just one week! (Of course, I can't believe how fast I'm losing my hair, either! LOL I've lost more than 50% of my hair already.)

Nov 9, 2011
Bruce

It's not just the mirror--I'm looking at the sink, the shower, and my sheets and wondering whether there's more hair in those places or on me!!!

Nov 9, 2011
Sarah

Hello there Cheryl. Thank you for your note! From some of the things you have written about on this site, you are an incredible inspiration to many... thank you. Every day, I'm filled with doubt, and wonder if there's hope to be had still. Being 28 (on sunday), divorced already, and used to never having a problem with my hair which was always long, thick, and curly. This journey has been confusing, frustrating, sad, and unlike any other I've faced thus far. One of the very few sources of hope for me is this website, I'm so glad it exists. thank you very much for your strength, your words of encouragement, and all you do. Sincerely, Sarah K.

Nov 10, 2011
10yr old Jada and her mommy

Hello

Nov 12, 2011

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