Wow. I'm so happy to have found such a cool website on alopecia ! I'have had alopecia since my early twentys. I'm now 34. I finally decided to shave my head about 2 and a half years ago. God, did that feel good. I wear hats at work and I enjoy wearing hats and buying them. I have every color of the rainbow in them. I'm not quite confident yet to go around outside of my place without wearing them yet. But I feel that I will get there with the support of this website. Not to mention the weather is getting warm and it will just be to hot to wear one !
Hi Kristine,
Exciting about your wedding!
You can have someone make you a wedding cake topper. Google it -- you will find people who will do likenesses of you from your photos.
LeslieAnn
Hi Kristine, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
Thanks for the comments. I love your wedding hat - did you design it yourself. I often think about what I might wear if I got married one day if I still don't have hair (not that I've found a husband yet!).
Thanks for your sweet words. It sounds like you're doing great! I wish we all lived in the same part of the country and could all get together.
I tried something new this morning...instead of beginning my day with the first thought before getting out of bed being: "Damn! I'm still bald!" (believe it or not, I start many days that way.), I consciously thought "Damn! I'm healthy and special!"
As every month goes by, I realize that my problem isn't ON my head, it's IN my head!
HI Kristine, My turn ;). It has been a journey with rj and I. First the distance, the immigration issues, even our differences in personality. rj makes me strive. It seems that where I am weak he is strong and where he is weak I am strong. So we are both being stretched and growing daily. Thanks for your support.
Hi Kristine
That's great that you want to help other alopecians! I started my support group through NAAF which you can do online I believe or at least request the forms to do so, they just ask for a small donation and send you a binder full of information, their news letters and pamphlets for your members, events, etc. They require you to meet at least four times a year which is what I'm doing this year. Last year I wanted to meet every month but found that I didn't have a very good turnout that way. Meeting every two or three months seems to work best for us but Canadians are funny that way too sometimes so you may be able to get away with more, depends on the group. I also wrote the local news paper about doing a story on the start of my group and explained what alopecia is and they were really good about getting my story out. You don't have to start your group with NAAF either but they are good to start with at least because they do send all that wonderful info. and you can also get away with meeting more frequently when you do special things like a woman's lunch or some sort of kids event, pub night for the guys/adults, etc. These special events are also a good way to raise money for your group or for donations to alopecia related groups for research or wig grants and such. I hope you have as much fun as I do being a support group leader and I wish you the best of luck. If you ever have any questions please feel free to ask. Take care :)
I've got roughly 40 in my group however usually only about a dozen or so make it to the meetings. The package doesn't have a set fee, you can donate however much you want to. I hold most meetings in my home, hopitals/medical clinics are popular as well as restaurants, that's up to you. Take care! :)
Hi Kristine, Thanx. I love your profile pic. Its pretty. Am still working on breaking the shyness with my alopecia. Its a difficult step. :> Anyway... am glad to find am not alone... :>
Hi Kristine, yeah when I saw that you live in Idaho I was excited! I live in Boise and have lived here for the 2nd time but only a little over a year now. I havn't met many people since being here and only ment one person with Alopeca. That would be awsome to meet you some time and have lunch. I have had alopecia for 5 years now and it hasn't been easy but I'm making the best of it.
That would be awsome! Currently working on getting a car soon and then I'll be unstopable. lol! Lived here over a year now with out one but it's time now. I'm tired of not having one. Plus I plan on moveing into a better, bigger apt and the location requires one.:) I look forward to our chats about life and hair. lol! I am a shy person, so it's been hard dealing with this. There have been times people have said things to me about it or noticed I was wearing a wig. It was uncomforable at first. Now I think I'm used to it. I wear hats and wigs but It would be hard to go with out either.
Honey,ALLAH will cure your mother as soon as possible.i pray for here. I am please to meet you and I want to be in touch always. I hope that visiting Egypt and see the beautiful features and good warm atmosphere. This my email at facebook msi2010@hotmail.co.uk waiting u.. Take care
I have a love hate relationship with my wigs as well! I get a ton of compliments on them like how great my highlights are! And then they ask where I get my hair done! I just say thank you and my friend does my hair! If they only knew!!! Thank you for the compliment. I never.go in public without my wig on. Your pictures are fantastic!
Hey there Khristine.... jus wanted to say 'well said' on yer comment on the 'I have never been so hurt emotionally..' blog post. Love your pics by the way, so lovely indeed! HiPpy hugS shO :)
I added a link to my blog hopefully we allowed them and admin folk won't take it down. It doesn't have the girls story before she sings but can feel her through her music.
rj, Co-founder
Aug 26, 2008
LeslieAnn Butler
Exciting about your wedding!
You can have someone make you a wedding cake topper. Google it -- you will find people who will do likenesses of you from your photos.
LeslieAnn
Aug 26, 2008
LeslieAnn Butler
Aug 26, 2008
Cheryl, Co-founder
Aug 26, 2008
Cheryl, Co-founder
Aug 26, 2008
Cheryl, Co-founder
Feb 8, 2009
Jude
Thanks for the comments. I love your wedding hat - did you design it yourself. I often think about what I might wear if I got married one day if I still don't have hair (not that I've found a husband yet!).
Mar 3, 2009
Mary
Thanks for your sweet words. It sounds like you're doing great! I wish we all lived in the same part of the country and could all get together.
I tried something new this morning...instead of beginning my day with the first thought before getting out of bed being: "Damn! I'm still bald!" (believe it or not, I start many days that way.), I consciously thought "Damn! I'm healthy and special!"
As every month goes by, I realize that my problem isn't ON my head, it's IN my head!
Good luck, and keep on loving the woman you are.
Mary
Mar 6, 2009
Cheryl, Co-founder
Apr 25, 2009
Carol
That's great that you want to help other alopecians! I started my support group through NAAF which you can do online I believe or at least request the forms to do so, they just ask for a small donation and send you a binder full of information, their news letters and pamphlets for your members, events, etc. They require you to meet at least four times a year which is what I'm doing this year. Last year I wanted to meet every month but found that I didn't have a very good turnout that way. Meeting every two or three months seems to work best for us but Canadians are funny that way too sometimes so you may be able to get away with more, depends on the group. I also wrote the local news paper about doing a story on the start of my group and explained what alopecia is and they were really good about getting my story out. You don't have to start your group with NAAF either but they are good to start with at least because they do send all that wonderful info. and you can also get away with meeting more frequently when you do special things like a woman's lunch or some sort of kids event, pub night for the guys/adults, etc. These special events are also a good way to raise money for your group or for donations to alopecia related groups for research or wig grants and such. I hope you have as much fun as I do being a support group leader and I wish you the best of luck. If you ever have any questions please feel free to ask. Take care :)
Apr 28, 2009
Carol
Apr 28, 2009
Mallory Crowner
Nov 18, 2009
Mallory Crowner
Nov 18, 2009
Kirsteen Forrest
Nov 18, 2009
Andre
Nov 19, 2009
Essence
good to virtually meet you too :D
Feb 1, 2010
Leslie Riches
Feb 18, 2010
Tina
Mar 10, 2010
Mary
Mary
Mar 27, 2010
beth piper
Jan 9, 2011
beth piper
Jan 9, 2011
Mohamed Khater
Mar 7, 2012
Lorretta Almerood
Aww Very Pretty ..
Mar 8, 2012
Bald and Fabulous AKA Terri
hi Kristine. Thanks for the friend request. I hope all is well with you? Its wonderful that you embrace your baldness such as I.
Mar 9, 2012
Mohamed Khater
Honey,ALLAH will cure your mother as soon as possible.i pray for here. I am please to meet you and I want to be in touch always. I hope that visiting Egypt and see the beautiful features and good warm atmosphere. This my email at facebook msi2010@hotmail.co.uk waiting u.. Take care
Mar 9, 2012
Amy
Mar 11, 2012
Amy
Mar 13, 2012
ShoCorona
Hey there Khristine.... jus wanted to say 'well said' on yer comment on the 'I have never been so hurt emotionally..' blog post. Love your pics by the way, so lovely indeed! HiPpy hugS shO :)
Mar 16, 2012
Lexi
Loved your reply on Alopecia changed my life...you know the one....tick tock, tick tock baby. That was priceless. You F'in Rock
Mar 18, 2012
KFlame
Mar 25, 2012
KFlame
Mar 25, 2012