My twelve year old daughter Kiah has universalis. I just want to keep networking, learning what I can from others, and finding other kids that she can hopefully be friends with! We have been attending NAAF conferences and supporting NAAF for about 8 years now and want to keep doing as much as we can to raise awareness!
Hi Josh & Kiah, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
Hi Josh,
How are you doing? Often it's harder on the parents than it is on the kids! Just wanted to say hello. I've had aa for about 30 years and have written a book for women and girls called, "If Your Hair Falls Out, Keep Dancing!"
LeslieAnn
Hi Josh, Welcome!!! I have a 6 year old daughter who has had Alopecia for a year now. After trying several different treatments her hair recently started to regrow. We hope for it to continue. In the meantime, my daughter is a very happy and spunky gal. She wears a wig and headbands. If you ever needs some suggestions on head coverings feel free to email me.. How has your daughter been handling her AT? She is absolutely beautiful!!!
Cindy
Hello Josh and Kiah- In case you are interested, I just formed a new Wisconsin group in this organization so all of us Wisconsites and new members looking for local people could share local information and events. Hope you will join! ((Hugs)) Susan
Hi Josh! It is nice to know there are other people in the area who have experienced some of the same issues as us. Your daughter is young. My daughter was a bit older before she lost all of her hair. It has been an interesting ride. My daughter is very independent and now lives in Washington D.C. and is doing very well. Yet, we both are willing and able to help in any fundraiser/ awareness event. Kiah is beautiful! She is at the age that tends to love winter. Enjoy the little snowfall we have gotten. If you hear about any events in the area, let me know. Thanks! Don't visit this site too often anymore. But will try to check in periodically.
Hello Josh and Kiah - A donation for the Bowl-A-Thon is being mailed to NAAF this week. Although a friend and I were planning to attend the event yesterday, storms were passing through during the morning (close to leaving time) so we decided it was not going to be good for 2 old ladies to be driving on I94. Really sorry to have missed it; we were looking forward to meeting you. Hope the event was a great success!!!
Hi Josh and Kiah, My daughter, Natalie, said she met you at the Capital. She works for a congressman in Washington D.C. It was during the NAAF convention. Someday I would like to attend one of the conventions. Anyways, I know you are organizing a fundraiser at Harley Davidson in September. I have a couple baskets to donate for the auction. One is a basket with coffee and mugs. The other baskets have an array of primary and intermediate books. Let me know how I get in touch with you...phone? E-mail?
It was wonderful to meet the two of you at the NAAF Conference a few weeks ago! I hope that I will be able to make it to one of you fundraisers at some point in the near future :)
Roger
Roger.
Jun 24, 2008
Julia
Take Care and I'll be in contact with you very soon!
Tell her that I said hello.
Jun 24, 2008
JeffreySF
Welcome to Alopecia World.
I hope you will meet some little ones for Kiah.
Jeff
Jun 25, 2008
Cheryl, Co-founder
Jun 25, 2008
LeslieAnn Butler
How are you doing? Often it's harder on the parents than it is on the kids! Just wanted to say hello. I've had aa for about 30 years and have written a book for women and girls called, "If Your Hair Falls Out, Keep Dancing!"
LeslieAnn
Jun 30, 2008
Orbit
Jun 30, 2008
Cindy
Cindy
Jul 15, 2008
April & Alyssa
april and alyssa..
Jul 27, 2008
Julia
I'll email the photos, too.
Thanks!
Tell your baby girls that Miss Julia said HI!
Aug 19, 2008
Roger
Roger.
Aug 26, 2008
soniamarry
Oct 6, 2010
soniamarry
Oct 21, 2010
Susan Innes
Hello Josh and Kiah- In case you are interested, I just formed a new Wisconsin group in this organization so all of us Wisconsites and new members looking for local people could share local information and events. Hope you will join! ((Hugs)) Susan
Nov 29, 2011
Alayna's dad
We love your video!
Dec 14, 2011
Jean
Hi Josh!
It is nice to know there are other people in the area who have experienced some of the same issues as us. Your daughter is young. My daughter was a bit older before she lost all of her hair. It has been an interesting ride. My daughter is very independent and now lives in Washington D.C. and is doing very well. Yet, we both are willing and able to help in any fundraiser/ awareness event. Kiah is beautiful! She is at the age that tends to love winter. Enjoy the little snowfall we have gotten. If you hear about any events in the area, let me know. Thanks! Don't visit this site too often anymore. But will try to check in periodically.
Jan 14, 2012
Susan Innes
Hello Josh and Kiah - A donation for the Bowl-A-Thon is being mailed to NAAF this week. Although a friend and I were planning to attend the event yesterday, storms were passing through during the morning (close to leaving time) so we decided it was not going to be good for 2 old ladies to be driving on I94. Really sorry to have missed it; we were looking forward to meeting you. Hope the event was a great success!!!
May 7, 2012
Jean
Hi Josh and Kiah,
My daughter, Natalie, said she met you at the Capital. She works for a congressman in Washington D.C. It was during the NAAF convention. Someday I would like to attend one of the conventions. Anyways, I know you are organizing a fundraiser at Harley Davidson in September. I have a couple baskets to donate for the auction. One is a basket with coffee and mugs. The other baskets have an array of primary and intermediate books. Let me know how I get in touch with you...phone? E-mail?
Jul 23, 2012
Natalie
It was wonderful to meet the two of you at the NAAF Conference a few weeks ago! I hope that I will be able to make it to one of you fundraisers at some point in the near future :)
Aug 3, 2012