I am the author of Boldly Bald Women, an international Amazon Best Seller guide to help women navigate the emotional and social impacts of hair loss. It is a delightful combination of 25 stories of brave women coping with their hair loss in new ways - many of them from Alopecia World.
I have alopecia universalis and am very happy as a bald woman. It has become my calling to help women leave embarrassment and shame behind and cherish themselves just the way they are.
Thank you so much for reaching out to me. I will definitely purchase this book. I need all the help that I can get. I have been hiding behind wigs now for over 30 years. Started in my teens and I will be 57 this year.
I talk about all different topics I'm 24 and I been thru a lot and I jus love to encourage younger girls just like someone encouraged me to change my lifestyle..
Hi, Pam! Thanks for the welcome! I'm glad you can relate to the cowlick, haha! I think finding others who can relate to this is making things easier for me. I've not been on this site much but plan on looking through the various discussions to find out more about FFA. Do you have any other autoimmune diseases? Since I have vitiligo universalis and now FFA, I'm curious if there is a correlation between these diseases? Does having one make you more likely to have another? I was just tested for hypothyroidism and that would make 3, THREE! autoimmune diseases if I'm diagnosed with it. Sigh...
I love your profile pic! You seem so happy and that's a good thing! :)
Thanks for your comment. I appreciate it.I am not at the place you are but maybe one day. I have lived my life helping others and have always had a hard time accepting help myself. I don't have alot of support in dealing with my Alopecia, because unless you have a hairloss problem as a woman you don't understand. I have not lost all my hair at this time but it comes and goes. I have had a couple small spots (quarter size) occur at this time but also female pattern baldness is getting worse. I can see through the hair at the front top of my head. I have tried Toppik and other sprays but they look terrible. I have tried all the other things to try to get hair to grow and they do not work for me. I just had spinal cord surgery 5 mos ago and I am sure that is adding to my hair loss along with my Hashimoto's Thyroiditis. I sound like a mess don't I LOL? I don't like going out because of how I look. I know some came handle it better then I am and have the hairloss worsethen I do and I feel guilty. I can't afford the cost of the wigs and I have bought a couple cheap fake hair wigs but they have to much hair around my face. Until I can afford a nice looking wig I will hide out most of the time in my home. But being able to come here helps.. Thank you all.
Hi Pam, thanks for your warm welcome. It was especially nice to hear from you because I had gotten a chance to read some of your posts and was drawn to your outgoing, confident demeanor. I'm very shy and kind of quiet, myself (only sheer panic could have induced me to be so open on this site). Were you always so upbeat and friendly? If not, was there a turning point after experiencing hair loss that helped you to smile, laugh, and reach out to others? I'd love it if you could share an experience that signaled the beginning of a new attitude towards all of this.
Its funny, whenever I have a life change or crisis, I o to the hairdressers to feel better. After finding several new spots last night, all I want to do today is shave bits off and play with my hair while ive still got some.
I feel in my gut I will lose it all. Its happening so fast.
hi my girl Amanda just turned 9 she is completely bald from alopecia currently. im on here to learn and share and seek ideas for her sake. I recently purchased some temporary tatoos on amazon and we wear them on her scalp! Nice to meet you all!
Pam thank you for writing me back. You seem like a person that has embraced life to its fullest. I am at a point in my life that I feel very ugly. I do not have any pictures of myself due to this condition. I wear wigs but feel they are very uncomfortable for me. I hope to have the same disposition that you seem to have to face this condition. I am looking forward to making new friends on this site. Thank you for reaching out!
LeslieAnn Butler
Hey Pam!
How are things going with you? How are book sales doing?
Nice to see you here.
Leslie Ann
Sep 26, 2014
Tender Heart
Thank you so much for reaching out to me. I will definitely purchase this book. I need all the help that I can get. I have been hiding behind wigs now for over 30 years. Started in my teens and I will be 57 this year.
Oct 16, 2014
PJ
Oct 24, 2014
Storm Mahzyti
Nov 2, 2014
Storm Mahzyti
Nov 2, 2014
sandygab
Thank you and nice to meet you.
I would really like for my daughter to meet kids her age with AA. I think this will help her fully accept here condition.
Dec 18, 2014
Jinzy
Hi, Pam! Thanks for the welcome! I'm glad you can relate to the cowlick, haha! I think finding others who can relate to this is making things easier for me. I've not been on this site much but plan on looking through the various discussions to find out more about FFA. Do you have any other autoimmune diseases? Since I have vitiligo universalis and now FFA, I'm curious if there is a correlation between these diseases? Does having one make you more likely to have another? I was just tested for hypothyroidism and that would make 3, THREE! autoimmune diseases if I'm diagnosed with it. Sigh...
I love your profile pic! You seem so happy and that's a good thing! :)
Jennie (Jinzy)
Dec 18, 2014
itzmejudy
Thanks for your comment. I appreciate it.I am not at the place you are but maybe one day. I have lived my life helping others and have always had a hard time accepting help myself. I don't have alot of support in dealing with my Alopecia, because unless you have a hairloss problem as a woman you don't understand. I have not lost all my hair at this time but it comes and goes. I have had a couple small spots (quarter size) occur at this time but also female pattern baldness is getting worse. I can see through the hair at the front top of my head. I have tried Toppik and other sprays but they look terrible. I have tried all the other things to try to get hair to grow and they do not work for me. I just had spinal cord surgery 5 mos ago and I am sure that is adding to my hair loss along with my Hashimoto's Thyroiditis. I sound like a mess don't I LOL? I don't like going out because of how I look. I know some came handle it better then I am and have the hairloss worsethen I do and I feel guilty. I can't afford the cost of the wigs and I have bought a couple cheap fake hair wigs but they have to much hair around my face. Until I can afford a nice looking wig I will hide out most of the time in my home. But being able to come here helps.. Thank you all.
Dec 18, 2014
Feedingsparrows
Dec 18, 2014
Aly
Hi Pam
Its funny, whenever I have a life change or crisis, I o to the hairdressers to feel better. After finding several new spots last night, all I want to do today is shave bits off and play with my hair while ive still got some.
I feel in my gut I will lose it all. Its happening so fast.
Thanks for your kind message
Aly
Dec 18, 2014
Aly
My cat is Called Bilbo Baggins but we' ve all ended up calling him Baggins.
I've had a cat called Gandalf that lived until the age of 21 as well. Another one called Gollum.
Oh and once had a mexican walking fish called Smeegle.
Dec 18, 2014
drjbad
Dec 18, 2014
Molly
Thanks for the welcome. I'm totally new to this, so I'm taking it slowly and trying to get as much info as possible.
Dec 18, 2014
Canty
Hi Just browsing at the moment have alopecia areata total loss 5% hair left, getting on with it ! could be worse.
Dec 19, 2014
Aly
Hey Pam no fair it hasnt been released in Australia.
Im taking my two boys to see it on Boxing Day, which has been our tradition for the last two parts!
x
Dec 23, 2014
Debby
Pam thank you for writing me back. You seem like a person that has embraced life to its fullest. I am at a point in my life that I feel very ugly. I do not have any pictures of myself due to this condition. I wear wigs but feel they are very uncomfortable for me. I hope to have the same disposition that you seem to have to face this condition. I am looking forward to making new friends on this site. Thank you for reaching out!
Debby
Dec 24, 2014