0

Susan Innes

Female

Waunakee, WI

United States

Profile Information:

Relationship Status:: Single
About Me:: Retired art educator and medical transcriptionist whose retirement includes drawing, painting, and rescuing small dogs. Some of my favorite places are the local dog parks:).
Do you have alopecia?: Alopecia universalis
Are you age 18 or older?: Yes - I am 18 or older

Comment Wall:

JeffreySF

Hi Susan,
Welcome to Alopecia World.
Jeffrey

Jul 29, 2011
LeslieAnn Butler

Hello and welcome, Susan!
How are you today? I have universalis, too and I also do portaits!
Leslie Ann

Jul 30, 2011
LeslieAnn Butler

I have never been to a conference, but yes, the print you saw is from a painting I did especially for the National Alopecia Areata Foundation, called "Bald Boogie." It's the cover of my book, too!

I'm sorry about your husband. That is so hard. I also was widowed very early in life when my first husband died of cancer at age 27.

How does it go on eBay? Sounds like it would be fun!

If you get my book, let me know ow you like it!

Leslie Ann

Jul 30, 2011
JeffreySF

Hi Susan,
Welcome again! I know who James is but have never met him. Ithought he was going to sttend the Indianapolis Conf. Maybe he did and we just didnt meet.
Hope you are having a good day!
Jeffrey

Jul 31, 2011
Sue

I don't think it runs in the family, although there has been some hair loss just not as dramatic as mine. I believe mine has been due to trauma as my marraige broke down in 2002 when I split with my husband due to him being involved with a female colleague 15 years my junior, I had health problems at the time. Later on, my daughter was sexualy assaulted and then raped and I think allof this led to my hair loss but there does not seem to be any clear guidance on why we lose our hair. How about yourself is yours hereditary or due to trauma/stress?

Aug 4, 2011
Sue

Apologies for my ignorance but I haven't heard of NAAF, where and when are the conferences held? Hope you are well, Sue.

Aug 6, 2011
L'Dyne Brennan

Really thrilled to hear from you. Thanks for your response. I am feeling well physically, however, it is deja vu with my hair falling out.

Aug 12, 2011
Lindsay Walter

Hey Susan!
I totally know where in Minnesota & Wisconsin that is! i LOVED the NAAF Conference, such an awesome & inspiring experience! It was great to meet so many different people and hear their stories! I went as a counselor the last two years and it really has been the best thing I could have done for myself personally. I have learned so much! I also just got back from the CAP camp in Ohio, which was an awesome camp as well! I believe that in anyway that you can get involved and meet other people with alopecia can help you! How are you doing with everything?!

Aug 21, 2011
Ktownnana

Hi Susan, would love to be your friend on AW. I think we have a lot in common. I am also a widow after being married for 42 years. This year would have been our 45th. anniversary.

Aug 21, 2011
Ktownnana

Susan, no apology needed. I have been on jury duty this week and I haven't been on my computer that much. I work as our church secretary part-time from home; it is volunteer, but I love doing it. I love this web site--I went to the bank this afternoon and the teller commented on how pretty my hair looked and was the hairstyle hard to maintain. I am finally getting courage enough to be truthful and admit that I have alopecia and I wear a wig. She looked shocked when I told her and she said she was a hair stylist before she went into banking and she would never have known I wore a wig. Before getting on this web site, I probably would never have been able to have shared that. It is so wonderful to know that there are so many of us out there and I don't feel so alone anymore. Take care and please stay in touch.

Aug 25, 2011
Ria

Susan, Thank you so much for your kind words, I am with a man who is there for me but i still feel alone, I dont think anyone can comprehend what we go through unless you've been through it yourself. thats awesome that your so close id love to go get some lunch one of these days.

Sep 2, 2011
Natalie

Thanks for the kind comments, Susan! DC really is a great city! So beautiful - so much to do and see! Hope you are have a great Fall (autumn in WI is the best!).

Sep 6, 2011
Joan

Hi Susan, I have only been to one wig shop in Medford (it is the biggest one in town) but I could find nothing that looked slightly real and the selection for petite sizes was very limited. It seemed like the gal was ready to sell me anything, even if the style was very different from my wishes. That experience has left me feeling like I will have to end up with a wig that looks unreal. Does synthetic hair always look so shiny and fake? Is it best to get a human hair wig? Is it possible to find a petite, mono-filament, front lace wig for the most natural look? I am so new to this...any help is appreciated.

Sep 11, 2011
Joan

Hi Susan, Thank you for the names of some wig companies that sell more natural looking hair. I think my biggest problem is going to be finding a natural looking wig in a petite size. I like many of the Jon Renau wigs but the petite selection is very minuscule. I think you mentioned needing a petite size as well. Have you found that it is possible to special order any of the Jon Renau, or Rene of Paris wigs in a Petite size?
Joan
Joan

Sep 16, 2011
Keefeday

Many thanks Susan for your kind words of encouragement its good to find a site like this where you can be excepted for who you really are :)
Kind Regards
Keith
X

Oct 25, 2011
KimF4L

Thanks for the email Susan. I actually have a BFA it was my initial major in under grad and I was a middle school art teacher for a bit but always had the "tough" kids in my class as I think they were always my love =) So I went and got my masters in special ed specializing in behavioral issues. I always use art in my classes though and these kids are often excellent artists and musicians. Animal rescue is my other passion that is wonderful what you did. Thanks for sharing take care and have a great day =)

Oct 27, 2011
jfsawyer

Hi Susan,

I am very grateful for your words. I am starting to realise that this is a crucial point in both our lives.
My fiancee does not seem to be suffering as much as I am with this situation, although she is the one with alopecia.... I am the one reading about treatments and possible solutions/ consequences...I know what wig types there are and pro and cons of minoxidil and fue transplant
She initially was in denial and now she more aware of what the near future will reserve.

She is the most caring person in the world and thinks the world of me. And says she is happy as long as I am.
I must admit that for me, it is a horrible pain to see her having less and less hair on her head. The image I had of her is changing daily.
I should also admit that this influences how I am physically attracted to her.

she is the woman of my life and I do love her, but I fear that I will not be happy if I do not feel attracted to her.

This is the most selfish thing I have ever written and I am consumed with guilt and fear. I just dont know what to do anymore.

Thanks again
jf

Nov 2, 2011
Norm

L O, Soo - glad I can make you smile :)
The way I look at it, there's more than enough grief in life to go round - and there are certainly worse things to have happen than losing your hair. So if I can show that in a different perspective, and maybe make people see the funny side of things, that's Job Done for me!
You seem to have a handle on it as well, and dish out good advice.... it's cool to bat some witty banter about with ya! Some of us don't need hair to be ace, do we? ;)

Later!
- The (Social) Norm ;)

Nov 5, 2011
Mark S. Hansen

Hi Susan thanks for writing back. There used to be a support group out at Freodeart hospital is west Milwaukee some years ago. I had only been to one about 12 years ago. I recently found a few women from Mwaukee who's names were listed on the internet as contact persons. I called someone named Jennifer Trinko about 6 months ago and she told me that the group that was at one time still meeting there was now for kids or for parents with kids. But when I called her back about a month ago I was told that even that group had apperently disbanded because not enough people could get to the group regularly. So, I have to go. Got to get back to job search. Later, Thanks, Mark Hansen

Nov 9, 2011
Paty

Good morning Susan. Melbourne is on the east coast of Florida about 45 mins south of cape canaveral. Im actually 3 miles from the east ocean but a native Michigander. Ive lived here for just over a year now and am in love with the weather. Thought id miss the snow but it hasn't happen yet.
I am a little ashamed to say I have never been to naaf conference. I would love to go but am a 24/7 mom to 5 kids and simply never have time to escape to one. I know, unlike my kids, the conferences aren't going any where and i will eventually attend. Just have to be patient and wait till the time is right. Great thing come to those who wait, sometimes.

Hope you enjoy today new friend.
Paty

Nov 11, 2011
sendrifter

Hello Susan thanks for the comment on my photos. Camber and Chloe are my pets and Boo is my dad's dog. I will be sure to add more pictures.

Nov 16, 2011
KimF4L

That is great that you have 3 adopted dogs =) Yes these companion animals are my world, and even more so with all my medical trials in the last few years. Animals are the best!

Dec 2, 2011
Tallgirl

I think your new group sounds awesome. You are JUST the person to run it!

Dec 2, 2011
Natalia

Hallo Susan,
thank you very much for your good warm message. You gave me a very good advise. I felt myself very often alone ,I was sitting very often about my problem, but I decided to begin another life now. I will make my life more interisting and be more aktive, maybe I will find Mr Right also, If not, I will be happy alone.
I saw you photos and I found you are a very nice woman. I think, it was also a large problem for you at the beginning when you have lost your hair, but you have managed this problem, I must manage this problem too.
I was in your country 1 year ago, I was in California.
Best wishes from Duesseldorf,
Natalia

Dec 3, 2011
Jean

Hi Susan,
I received your invite to Wisconsin Alopecians. I am the mother of a young women with alopecia. Where do you meet and what dates? I am interested in possibly joining the group. It would be nice to talk to other mothers who have experienced their child's journey with this disease.

Dec 4, 2011
godfreygirl143

Hi Susan...thanks for the compliment. Your dogs are darling. My puppy is a rescue too...her mamma was rescued and she had 4 pups...I adopted my Missy and they drove her 199 miles to get her to me. No I haven't tried any hats or scarves. I've never been a "hat person"....don't think I've ever wore one. Hey...we're almost the same age but I have a couple of years on you. As soon as I can afford it I'm going to get me some cute turbans, hats and so on. Yes I do need to get out more. I did when the hair loss wasn't so bad, but when it got to having to wear a wig all the time, I'm not dealing with it as well. Haven't been to the gym in ages. I've just GOT to get a grip on this thing for my own good. The combination of the hair loss and the weight gain has kept me in even more. I have a whole closet full of clothes that don't fit...even my underwear (blush) doesn't fit anymore...so that keeps me in even more. I think I'll get a LOT of help and encouragement here. I have already and it's helping a bit...but I just joined. You have a great day and thanks for writing.

Dec 14, 2011
Tallgirl

Hope your start to the new year was reflective and peaceful. I ushered it in at the home of someone from my hometown (high school, church), and we got to talk like sisters. Felt good.

Jan 2, 2012
Tallgirl

Nope. Wore Sandy NYEve and to work the 1st, and will test drive Rizzo soon. No work scheduled yet, but I will print out the syllabus and get started on assignments at the college tomorrow for my class. Must go to some personnel agencies or network...but at least some friends came to my financial rescue this holiday, George Bailey Style. The NYEve friend lives 40 minutes away, and my local friend may go out-of-state this week, so I will be on my own!

Jan 2, 2012
Deborah

Hello Susan
Thank you for your message I have alittle hair on top witch I do shave because it become's sore.the lace wigs I am fine with.it's the cost I have spent so much on so call human hair lace wigs you would be shocked.I have even gone out of my own town.gone with out food and all sorts.can not look at myself do not have a partner because of my hair loss so very much alone..if you no anyone you can put in in touch with to make me a wig I would be so greatfull.by the way I have a small head but a big heart

Jan 29, 2012
Deborah

Hello Susan thank you so much for your lovely message.nice to know that I am not alone with this.it sure can get to you.I some time's say why me but on the over hand why anyone.whish it would grow back but have been told that will never happen .I was scanning ebay this evening they have what they call a thin skin full lace wig on the but it cost some.looked good it was indian hair around £500.00 it was for a small head as well witch came as a shock.really wanted to get it but it's alot of money.think I will have to save for it.will let you no if I find anything,until then do take care and thank you god bless

Jan 30, 2012
Nicole

I agree, although after my first visit to this site it really hit me that I HAVE ALOPECIA!! I think I was in a bit of denial before. I was always looking to when my hair would come back instead of accepting that it is gone. Its still difficult but I'm getting stronger with time.

Mar 25, 2012
Heather

Thank you so much for the great message...I am very blessed in my life now...Dealing with AU has been a very big challenge...I am 29 and I have been with my husband for 4 years married 1 year now and we have 2 beautiful children a girl 3 in July and a boy he is 7 months....He loves me for who I am and supports me through ....He is basically my support system and my sister and sister in law and that's about it...My mom well...that's a long story..She just says this is what you have and get out of denial....SO...after 11 years of this condition it is hard and I have to find it in myself to find it in my heart and soul some where that this is me..But, not having the support that I really needed I think that's the problem....So, I am trying...I thank God every day that I am not dying or anything like that...And that some one actually loves me for who I am is the greatest feeling in the world....I know some day...I will find it in myself and get to where I need to be....=)

May 26, 2012
Julius Taylor

Hello,
I am sorry for the delay in responding to your comment. I currently compose Hip Hop music. My label is working on starting a national charity to rid inner cities of gangs violence and pollution.

Jun 14, 2012
Linda

Thanks so much Susan. I am glad to have found this site. I am not sure yet how much will fall out, but knowing I'm not alone this time is very helpful for me. I've been reading this site for the last week and I had to take a deep breath just to sign up. 20 years ago I spent a couple of years trying to find a doctor who even knew what this was. I have somewhat come to terms with this disease, but it's never been easy or fun to see my hair fall out. Hugs back at you!

Jul 30, 2012
imtoosexyformyhair

Thank you.. new to this site and I do not know how to sign up?hmm

Aug 6, 2012
SlowBlue

No..No, I'm glad you didn't have that done. You look great as you are. Too many folks altering their bodies in some way these days. It all adds character anyway. So... just call me Eagle Beak :)

Aug 17, 2012
Baldilocks

Thank you Susan! Its actually a photo I found on the internet, but it melts my heart so I kept it :) I am so happy I found this site!

Aug 31, 2012
Jean

Hi Susan,
Thank you for the words of encouragement!
I have 2 wigs, but have found them to be very uncomfortable, hot and itchy. One was very expensive and one not. My husband has been a rock through all of this. He understands when I have my crying jags and just sees me through it all.
I am considering seeking the help of a counselor, and do have some names from my doctor. I just haven't made that step and I don't know why.
It's nice to have found this website. The other one I used only asked for money, which if they really thought about it, we spend most of our "extra" money trying to find ways to have hair!

Nov 19, 2012
Debbie

thank you ,Susan would love to join the group from Wisconsin :)

Jan 23, 2013
Debbie

Hi Susan,
After a long day at work I went home and had myself a good cry last night. I am feeling better this am and ready to take on a new day. I thank you and others on this site for helping me come to terms with the fact that my hair mostlikly will never grow back. It helps to know their are others that are like me,and look forward to the day when I can help someone else who is looking for support.

Jan 24, 2013
DANNI

Thank you Susan for inviting me to your group I appreciate it! :)

Feb 22, 2013
bkundert7

Thank you for your kind words. I really appreciate it! I am so glad there is a group in Wisconsin. I would really like to join. I has been very stressful going through this alone. I am so glad I found this website :) We should definitely meet sometime. I am in the process of moving to another place in Madison so maybe this summer we can get together. Thanks again for your support!
Bridget

May 15, 2013
Michelle

Thank you so much, Susan! I was intending to join the Wisconsin group, as I would like to get to know some people in my own neck of the woods. I was first diagnosed with AA in March, and now that I'm seeing it progressing, I'm starting to really need support from others who suffer from this, too. I really appreciate your reaching out -- it's so good to know we are not alone! :)

Michelle

May 23, 2013
Mary

Susan, Thank you. I am having some trouble figuring out how to navigate around the website, leave comments, or join groups. It probably doesn't help that right now I am out of town & on a slow internet connection. I will join the WI group when I figure out how to do so.

Aug 16, 2013
Mary

Susan, I am having a bit of trouble navigating the site. Thanks for your post...I will join the WI group as soon as I figure out how to

Aug 16, 2013
Nuruzzaman Rana

You're welcome!

Oct 13, 2013
Chris

I would love to join the group from Wisconsin. It would be great to talk to other people who have AU.

Sep 26, 2014