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Darlenys
- 37, Female
- Hoboken, NJ
- United States
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- In a Relationship
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- Hey!
So I'm just signed up to this site...There will be more info here come :)
* I go to Rutgers University and I'm majoring in Psychology and Spanish Translations/ Interpretations.
* Enjoy Singing! Woo!
* I've had alopecia since I was in the 4th grade. Doctor's really didn't diagnose it though right away, because they weren't even sure what it was. Others would tell me that I was just not eating healthy and that's why my hair was falling out ( I don't know how many of you have heard that before).But I know that what you eat does affect how much or how healthy your hair will be, but it's just weird because I was in the fourth grade! I was recommended to a psychologist because they thought that I was very anxious and they wanted me to join a support group of other kids that had emotional problems (ie. Anger problems, violent kids...me??) My mom wasn't too thrilled about this and just decided that I shouldn't go anymore. Talking about my hairloss with the psychologist was a little helpful, but it was hard... I was thinking that something was deeply wrong with me since I was going to a psychologist.( Side note: so I remember one of the questions too lol, "do you know when it's going to fall out, do you feel it when your hair falls out?" I would ask myself "what?" But I still described to her an answer according to her question, but I never really experienced this.) Now, just about 13 years later, here I am, learning to just accept AA.It was something really hard to cope with at such an early age, as many of you can attest to, with kids making fun of you and just being plain mean. I just don't get why we could be so insensitive to people when we don't even know what's going on with them. But I'm learning and believe that God has a purpose with everything. He knows how many hairs are on our head...n since well some of us don't :) he knows why we don't. There's a purpose that hopefully later on we'll soon come to find out.
I do have a pretty cute small head. Lol I still haven't been able to go fully bare (n I do want to), but it's a working progress:)
Just a little to share.
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes
- Your Website (Leave blank if you don't have one):
- http://myspace.com/darlenys
Oh hair.
So, I met up with Peggy Knight this past Sunday with my mom in the city. She spoke to us about how it (vacuum wigs) works and all the other good stuff. We're planning hopefully getting one, but times are really rough. I'm a full-time student with a part-time job (6 hrs a week..just about), and my mom works to pay the billllss :) My dad works too, but most of it goes back towards his job. It's just crazy. But anyways, like I know my mom loves me, but she showed it a lot more once again, she put down a deposit on that Sunday, knowing that she really doesn't have the money. She had to date the check two weeks from now, so that we can all together chip in. I love my mom! I've seen her cry with me from the beginnings of my Alopecia and she always took me to doctors within the states, even to the Dominican Republic trying to figure out what was wrong. Such a strong woman.
<3
<3
Darlenys's Blog
Would anyone like to speak at my school for a program???
Posted on December 2, 2008 at 9:21pm 4 Comments 0 Likes
Hello everyone!
So as I said before, I attend Rutgers University in New Brunswick, NJ. I would like to have a program (event) next semester (spring 09) focused on "What is beautiful." (got the idea from a vid I saw). I think that it would be a great idea to spread some awareness on campus. I've only met one person (my roomate) that knows what Alopecia is, and that's because her sister has it. Basically, I would like to have a panel also including maybe 3 young ladies and maybe a man,… Continue
So as I said before, I attend Rutgers University in New Brunswick, NJ. I would like to have a program (event) next semester (spring 09) focused on "What is beautiful." (got the idea from a vid I saw). I think that it would be a great idea to spread some awareness on campus. I've only met one person (my roomate) that knows what Alopecia is, and that's because her sister has it. Basically, I would like to have a panel also including maybe 3 young ladies and maybe a man,… Continue
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I HAVE ALOPECIA FOR ABOUT 3 YEARS NOW IT TOOK THE DOCTOR A YEAR TO TELL ME WHAT WAS WRONG WITH ME IT WAS VERY HARD
NO ONE ELSE IN MY FAMILY HAS IT THE FIRST YEAR WAS VERY TOUGH I LIKE YOU'RE MOM HAD A DREAM OF MY HAIR REGROWING
BUT I GUESS IT WAS BECAUSE I WILL ALWAYS BE THINKING ABOUT IT OR CRY OVER IT I WILL WAKE UP AND RUN TO THE
MIRROR WISHING MY DREAM HAD COME TRUE BUT NOTHING
I ALSO HAVE A 2 YEAR OLD DAUGHTER SHE DOES NOT HAVE ALOPECIA THANK GOD FOR THAT BUT AM SCARE THAT ONE DAY SHE MIGHT SINCE I HAD ALOPECIA WHEN A WAS PREGNANT
I ALSO SPOKE TO PEGGY THE PRICE IS A LITTLE HIGH I HAD CONSIDER GETTING IT FOR ME BUT IS TO MUCH FOR MY BUDGET RIGHT NOW MAYBE NEXT YEAR TELL ME HOW IT GOES WHEN YOU GET YOU'RE PLEASE SHE SAYS IS LIKE HAVING YOU'RE
OWN HAIR AGAIN WELL NICE TALKING TO YOU
HOPE WE CAN BE FRIENDS BYE NOW.
Welcome to Alopecia World
Roger.
I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It might make you feel better. Check it out on my page -- and let me know how else I can help.
LeslieAnn