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Desiree Bazile
- 41, Female
- Oxnard, CA
- United States
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- Relationship Status:
- Engaged
- About Me:
- I am a proud mother of a beautiful 2 year girl who was diagnosed with Alopecia Universalis at around the age of 10months. I'm currently in nursing school and wrk partime. My daughter is very active, lovable and very smart. My fiancé and I do not have alopecia nor do I know any family members with this condition. So this is all new for my family. What I've noticed with my daughter is the realtionship between her eczema and alopecia. Her hair started to grow, but recently fell out after an eczema outbreak, which I find interesting. I'm just here to gain support, I find myself very sad at times. I know hair doesn't define her beauty, it's just all the questions and sometimes stares that we encounter. That's pretty much it.. Oh yeah my daughters name is Soraya which means Women of strength ( how crazy is that) were walking by faith and not by sight. :-)
- Do you have alopecia?
- Parent or guardian of child with alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
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How are you and your little one doing today? I know how hard it can be for parents. Sometimes harder than for the kids themselves!
LeslieAnn
Claudia has had alopecia universalis since age 2. She is now 7. It is very sad and frightening at times. Please remember that it does not matter to Soraya at this time. It is very painful to you. She will count on you to help her get through this and to have a great attitude about alopecia.
When Claudia first lost her hair, I cried everyday for 6 months. If someone stared or made a comment I would stare them down or make a comment to them. I eventually realized that she didn't care at that young age and most people really were kind. I realized I needed to be strong and set a great example for her sake on how to handle something as tough as hairloss. I took her everywhere, and if someone stared, we greeted them with a smile and a hello. It is amazing at how something this simple really made a difference. People quickly realized we weren't scary or ashamed and very approachable. Claudia is one of the most friendly children you will ever meet. Her alopecia really isn't a focus for now at age 7. She does like to wear wigs although I always tell her she doesn't need to wear a wig but she is very flashy and likes lots of glitter and sparkles.
Take care
Terri