Dina
  • 55, Female
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Dina's Discussions

Xeljanz for alopecians

Started this discussion. Last reply by Barbara Steinberg Dec 20, 2014. 15 Replies

Wig Pro Wigs - Human Hair Wigs getting knotted

Started this discussion. Last reply by willow Apr 23, 2013. 1 Reply

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Dina's Page

Profile Information

Relationship Status:
Single
About Me:
Hi, My name is Dina and I am 40 years old. I am from New England. I have had Alopecia Areata for almost 10 years now. With the help of great wigs and supportive family and friends, I have adjusted very well to the disease.
I am here to share how I feel about alopecia. I know many feel sad or bad about having the disease. I have to say, I have never felt that way. The only time I felt scared was when I found my first bald spot and all I could think was that I was seriously ill. However, after finding out what i had and my bloodwork and my check-ups all coming back clean, I was not only RELIEVED but thankful. I have lost many friends and family members to cancer. I thank god that if I was to be given anything at that point in time that it was alopecia. I remember sharing with my hairdresser the news and sort of whining a bit about what was I going to do? She told me she was recently diagnosed with MS - another reality check for me. From the beginning I carried on as normal. I wore pieces for awhile and transitioned into full wigs when needed. Nothing special or custom either, human hair by Wig-Pro - not terribly expensive but very natural and no one was the wiser. I of course tell people I have the condition but I have to tell them. I own a retail business so I am around people all of the time, I have never let this disease get in the way of going boating, being around people, working out, etc etc. I have alopecia but I don't let it have me. I have had men not want to date me because of it, I feel more badly for them than myself. I can't relate sometimes to people with this disease who totally let it ruin their lives because when I was first diagnosed I joined NAAF.org and gosh, those stories scared me, these women were just about suicidal. I was worried that would happen to me, I actually stopped going to that website because I didn't want their experiences hurting mine. I tried some treatments early on. However, my dermatologist put it into perspective for me right from the beginning, you can try different treatments Dina but there is no cure. Some treatments might work some might now, but you will have to be diligent about the ones that do. I am just not willing to poke my head with needles, pour solutions on my head or take any type of medication orally to grow hair only for a short time.
I think you just have to put it into perspective that it is hair, for the 10 years I have had it, I have been healthy and I really don't give it much thought or attention. It has to become your new norm!!
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes

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Dina's Blog

family history

Posted on April 14, 2008 at 4:20pm 7 Comments

I have had some questions concerning my family history with Alopecia. I have an aunt who has had hair loss since her youth. She is in her 70's now and years ago she told me that they never heard of alopecia and she never thought to go see a dermatologist back then. She has been wearing wigs for many years and I just assume her hair loss is alopecia related although she never pursued a diagnosis and just dealt with it all these years. I have a cousin who has alopecia areata. She was diagnosed… Continue

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At 1:25am on October 17, 2013, bbonbi said…

Just sent a friend request b/c am not sure how to use the site! I"m new here but have had AU for 30 damn years. Like you, I try to have perspective, cuz this is a fact of life. I want more style/color options - where are your wigs from? thanks, Dina. Have a good day -

At 2:10pm on November 10, 2010, semih develi said…
hi babaes !
At 8:39pm on January 24, 2010, Jennifer Krahn said…
Hi Dina,
Thanks for the add . I really enjoyed reading your profile. Your attitude is fabulous and seems similar to mine in that I'm not into all of these treatments. I did them at first as this was the doctor's recomendation but man i am relieved that it is over. I too also get a bit scared in reading about the insecurities of women with this condition...I understand having some bad days...I mean who doesn;t have an insecurity day about themselves regardless of hair, but there is no way I would let being hairless stop me from doing the things I love. I really appreciate your attitude and pictures. Have a good one
Jenn
At 11:24pm on December 2, 2009, Richard Alan said…
To Dina,
Just getting to my mail and returned greetings.
Rich
At 7:01pm on November 29, 2009, Roger gave Dina a gift
At 10:28am on September 25, 2009, Donna DeHoog said…
Hey Dina....Thank you so much for the information you sent me! Definitely been a trying time to say the least. I will definitely check out those monofilament tops ones too....I hope you have a fab weekend. Hope to talk to you again! :)
At 7:13pm on July 3, 2009, Karina said…
Hi Dina...my mum has the same name like you..it´s very sweet...O´m writing from Argentina nad I want to know what type of wig you wear and if it´s comfortable. Thanks, Karina
At 1:07pm on May 30, 2009, JeffreySF said…
Hi Dina,

I remember the Big 40. Now I'm at the Big 45.

Enjoy your cake.

Jeffrey
At 12:27pm on May 30, 2009, SHAILENDER SINGH CHAUHAN said…
hi Dina
need not to mention that. it is your day and you deserved that. keep sharing
take care
bye
At 8:47am on May 30, 2009, SHAILENDER SINGH CHAUHAN said…
hi Dina
wish you many many happy returns of the day. may all your dreams and ambitions come true and may you are blessed with wonderful memories, lots of success and above all true and honest friends when you add another year to your life.
have a great day
shailen
 
 
 

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