I am the mother of 8-year old Griffin who has alopecia. He has lost several large patches of hair on his head and is starting to lose his eyebrows. Tough kid...handles it well...but as any parent we wish we could get their hair back for them.
Griffin is a great kid....very social ...his friends call him the 'funny guy'. He loves to play sports like hockey, baseball and soccer. He has been very brave and has not been shy to show his `patches'. When he was a baby his nickname was `BEAR"....when he got alopecia one day he stood in the middle of the room and recited `Fuzzy wuzzy was a bear.....(then he rubbed his head) and continued....`Fuzzy wuzzy had no hair'. Gotta love him. I have 5 kids and he is the middle one and out of all of them he has the best personality to cope with this. I really admire him for it.
Do you have alopecia? (Choose appropriately)
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes
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Hello Griffin and Hronn, my 8yr yr old daugther Elyse also has a great attitude in dealing with her alopecia. She also loves playing soccer and the piano. She recently started going out in public (sometimes when she feel like it ) without a bandana and I am very proud of her. Sometimes at school she takes off her bandana, yes there are some mean comments but they don't always bother her. Maybe they can get together sometime this summer?
Hi and welcome, my daughter is 8 also and was just diagnosed. This site has been great for support. We are in Edmonton and don't have any local support groups that I know of so this site has been the only way to find info. I am glad that he is coping well with it.
Karen
Hi Giffin's Mom, my name is Cindy and my 7 yr old daughter has been living with Alopecia for a year and half now..It is very hard for us moms, but the resilience our kids have is amazing. My daughter is on a regrowth cycle with treatment right now. We just need to love and support our kids and surround them with people that have positive influences over them and encourage them to do and try anything they want. My daughter does not let having no hair stop her being who she wants to be or do the things she loves. You will find some wonderful support and advice on this board. I find a lot comfort coming to this board, especially on the days I am feeling sad. I look forward to chatting with you..Cindy
Hi Mom & Griffin, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
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Welcome to Alopecia World
Karen
Roger.