Hi Joy,
I know how hard it is when your child has alopecia. I have a section on that in my new book, "If Your Hair Falls Out, Keep Dancing!" You might want to check it out. Take a look at my page, and my author web site at www.leslieannbutler.npauthors.com (there's a link on my page, too) and if you like what you see, you can order it online. Let me know what you think...
LeslieAnn

Hi Joy just read a comment you left on Vicktorias site, I too suffered anxiety when it all began to happen it's horrible to brush your childs hair to ready her for school and find it coming out in handfuls we collected it in a jug to begin with, then when it was lying alll around the house I would literally feel sick at not knowing what was going on and why it was happening to her, twelve months on we r still waiting for signs of life I'm half hoping when puberty sets in things might begin again, I really can't see us trying any treatment unless someone finds a miracle cure we had prediserone spelt wrong i'm sure it grew back and fell out all in the five or six weeks she was on it. councelling helped me but Cass had her own coping skills!! she is comfortable at home going bald and with her friends if they visit, tomorrow her teacher is going to share her secret with her homeroom, so we'll see how that goes tomorrow hopefully they will be accepting and caring enough to refrain from jokes and silly comments. just wanted to share this with you good luck Di

Hi Joy, I am so sorry that your daughter had such a difficult time. Katya's alopecia started last year when she was 11 and within 6 months she lost all her hair. In the beginning she was very worried about school and people's reactions, but after she told her friends what was happening to her, everyone was very supportive. In her case, being open helped her cope a great deal. Now she wears wigs and really does not talk about the alopecia. I think having the wig and just going on with life helped her alot. Now we are waiting for a vacuum wig for her, so that sports ect. are easier. Of course, we hope that her hair grows back, but we've all gotten used to just not thinking about it. It took me a long time, much longer then my daughter. My only worry now is how she'll get through the difficult teen years. What I've heard from most people is that her attitude will determine a lot in how other's treat her. Reading the posts from people on this site has helped a lot. I see that people just live their life and it's no more a problem then the many other things we have to go through in our lifetime. I hope that you and your daughter have an easier time this year. Please email me anytime you want to vent. I know it really helps to talk to someone!!!!

Hello Joy, welcome to the Parent's group. Feel free to post any concerns or questions, or just anything! I also suggest you make an introduction so everyone knows what wonderful resources there are out there! I always thought it was better to get advice from someone that has been there, not from someone that is just guessing what it is like. So take care and I hope to hear from you soon!