5DH
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  • Royal Oak, MI
  • United States
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5DH's Discussions

My experience with 2% Tofacitinib Cream

Started this discussion. Last reply by Wayne M Naughton Sep 13. 4 Replies

My dermatologist wrote me a prescription for Tofacitinib 2% Cream/Lotion Compounded from CFS Pharmacy.Thought I'd chronicle here. It was very expensive at $540 for a 60mg container. I knew this…Continue

Results: Completed my 6 months on ATI-50002 (topical tofacitinib) drug trial

Started this discussion. Last reply by Satriani Jul 3, 2019. 4 Replies

I hope i'm not misleading in the title, I believe it was tofacitinib. It could have been ruxolitinib. But a JAK inhibitor is a JAK inhibitor.Anyway I've posted a few times about this. I was enrolled…Continue

Shaving my head was awesomely terrifying

Started Feb 19, 2019 0 Replies

I wanted to share my story. I am a white man, 33 years old. I've been struggling with AA since 2007. After quite literally a decade of carefully growing out my hair and holding it in place over my…Continue

Clinical Trial Blog Part 2: Topical JAK Inhibitor

Started this discussion. Last reply by 5DH Sep 4, 2019. 8 Replies

All,I am excited. As you may have seen from my clinical trial blog, I was a patient in an Acclaris study of a topical JAK inhibitor on alopecia areata.My trial has ended, and the results were…Continue

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Latest Activity

JustAnotherBaldGuy replied to 5DH's discussion My experience with 2% Tofacitinib Cream
"That is interesting indeed. From what I've read (mainly on here) even the people who take the jak inhibitors orally sometimes need to take them over many months before they start seeing real progress. I think it's good you've stuck to…"
Sep 12
5DH replied to 5DH's discussion My experience with 2% Tofacitinib Cream
"Thanks for the reminder. I'm 11 weeks into once/daily application. A couple of eyebrow hairs have popped on on the very far outside of my eyebrow. A good amount of transparent vellus hairs have grown out. No terminal/pigmented hair regrowth…"
Sep 11
JustAnotherBaldGuy replied to 5DH's discussion My experience with 2% Tofacitinib Cream
"Update? "
Sep 11
bogoboy liked 5DH's discussion My experience with 2% Tofacitinib Cream
Aug 4
5DH posted a discussion

My experience with 2% Tofacitinib Cream

My dermatologist wrote me a prescription for Tofacitinib 2% Cream/Lotion Compounded from CFS Pharmacy.Thought I'd chronicle here. It was very expensive at $540 for a 60mg container. I knew this medicine would not work with just a few doses so if I applied to my whole scalp I'd probably run out in maybe 3-4 weeks. My goal was eyebrow regrowth only so that I could test it. I was very skeptical as everything I had read and experienced about AA was that topical applications don't really work…See More
Jul 20
5DH commented on Lexi's group Ophiasis Pattern Alopecia Group
"Hey TG - Alopecia World was never that active generally and this subgroup was basically never active, so that’s probably why. I do wish there was a more active forum for folks. My life basically changed after getting AA in 2006, developing…"
Jun 25, 2020
5DH replied to 5DH's discussion Clinical Trial Blog Part 2: Topical JAK Inhibitor
"I'm glad to hear that's working for you.My dermatologist oversaw 6 patients on this open label study. During the double blind phase, one of them grew back a ton of hair, and on the washout period it started falling out again. Then when the…"
Sep 4, 2019
chris_s replied to 5DH's discussion Clinical Trial Blog Part 2: Topical JAK Inhibitor
"I've been using a product called Biohair X from a clinic called Elite Hair Institute. It's a liquid solution with a consistency similar to mineral oil, and contains xeljanz, bimatoprost and melatonin. what I've noticed with it is that…"
Sep 4, 2019
5DH replied to 5DH's discussion Clinical Trial Blog Part 2: Topical JAK Inhibitor
"The study I was in wasn't a cream. It was a clear, liquid solution - like eyedrops but slightly more viscous. Took about 20 minutes to dry and was still slightly tacky to the touch for a while afterwards. I agree with Football fan. This trial…"
Sep 3, 2019
Majda replied to 5DH's discussion Clinical Trial Blog Part 2: Topical JAK Inhibitor
"Hi, I read in a recent research paper that the tofanicitib in liposomal base was far more effective than the cream. Is that what you also used?"
Aug 26, 2019
Football fan replied to 5DH's discussion Clinical Trial Blog Part 2: Topical JAK Inhibitor
"I tried the xeljanz cream from the Philadelphia pharmacy acouple years ago for about 5 months didn’t work.I think I read somewhere the cream doesn’t penetrate the scalp deep enough.Yet if you look at the studies with rats it worked…"
Aug 26, 2019
5DH replied to 5DH's discussion Clinical Trial Blog Part 2: Topical JAK Inhibitor
"So, it went badly. The drug appears to be completely ineffective in the topical solution that was developed. My AA has gotten worse. I don't think the drug made it worse, I think it just didn't slow or reverse the progression. The drug…"
Aug 26, 2019
Patches replied to 5DH's discussion Clinical Trial Blog Part 2: Topical JAK Inhibitor
"Hey - surprised there are no replies to this. How is the open label trial going?"
Aug 23, 2019
Satriani replied to 5DH's discussion Results: Completed my 6 months on ATI-50002 (topical tofacitinib) drug trial
"I have different information about the topical ATI-502. In the picture you can see eyebrow regrowth after 12-month treatment.  https://www.folliclethought.com/aclaris-aga-report-coming-soon/"
Jul 3, 2019
Proud Dad replied to 5DH's discussion Results: Completed my 6 months on ATI-50002 (topical tofacitinib) drug trial
"We tried a JAK cream from Philly for my daughter's eyelashes and eyebrows.  No growth on the brow, but the eyelashes grew in very quickly.  She continued to use the cream, but the lashes fell out."
Jul 2, 2019
Football fan replied to 5DH's discussion Results: Completed my 6 months on ATI-50002 (topical tofacitinib) drug trial
"Thank you for keeping us posted.I did buy the jak cream from Philadelphia for several months and it didn’t work.It was in a more of a cream base so your hair didn’t get so greasy was hoping your greasier method was the answer."
Jul 2, 2019

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (5 comments)

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At 9:20pm on September 17, 2010, JeffreySF said…
Happy Birthday Jason!!!
Jeffrey
At 1:50am on September 11, 2009, Cheryl, Co-founder said…
Hi Jason, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder
At 1:29pm on September 7, 2009, Tracy and Amanda said…
Hi Jason,
How are you?
Tracy and Amanda
At 12:04am on September 3, 2009, JeffreySF said…
Glad to have you here.
Enjoy all this wonderful place has to offer.

Jeffrey
At 6:20pm on September 2, 2009, JeffreySF said…
Hi Jason,

Welcome to Alopecia World.

Jeffrey
 
 
 

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