• Female
  • Flagstaff, AZ
  • United States
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Joanne posted a discussion

Shampoo without the ingredient Cocamidopropyl Betaine

Does anyone else have to use shampoo without the ingredient Cocamidopropyl Betaine?  Am definitely allergic to this ingredient which leads to major sheds.  Had found a great shampoo product but they just switched frothing agents to include cocobetaine so am on the hunt for a product without this ingredient -- just went through every shampoo in the grocery store and every single one had this ingredient.  Does anyone have a shampoo without it they like?See More
Jun 20
Joanne liked Cheryl, Co-founder's group Oluminant Aloepecia Community Watch – The Good, The Bad and The Ugly!
Dec 23, 2022

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About Me:
Life in General: Love gardening, tennis, traveling, reading, exploring in my community, entertaining, and hiking, and exploring this beautiful country in our small RV. Enjoying retirement by volunteering in a lot of community activities

Alopecia Story: Full head of hair until Nov 2007 and was enjoying growing it out for the first time in 25 years. It became thin and turned very white and started to fall out in Jan 2008 with circles that started dime size and increased to 1/2 dollar size. Then major shed in the shower, on the pillowcase, and all over my clothes. Learned I had alopecia areata from my family practice doc and the dermatologist. Started various treatments but didn't see any improvement for a while. More hair gone so I put on scarves and hats. Lost all the eyelashes on my left eye - lots at first and then down to four on the bottom, then two, then one, then all gone. Then I fractured my patella in May 2008 and remarkably, the regrowth started amid the recovery of the knee. The top areas of loss seem to be filling in. Still no eyelashes on left eye and no hair on the sides above my ears. Stopped covering my hair June 25, 2008! And now in October 2008 I'm walking and almost have a full head of hair back. Still no left eyelashes and bald above my right ear but hair above is mostly covering that. This has been an interesting year of turning 50! Since then have been through a lot of hair loss followed by some regrowth.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (9 comments)

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At 7:54am on May 22, 2009, Paula said…
hi joanne. thanks for the update. i hope that loss continues to slow!
At 5:35pm on April 19, 2009, Paula said…
Hi Joanne,

I feel like my story is similar to yours. How are things going now?
At 12:03pm on June 28, 2008, Kelly said…
Hi Joanne, hope you can attend our next meeting! Would enjoy meeting you.
At 3:12pm on June 25, 2008, sgomez said…
Hi! So how's it going w/ your recovery? I just wanted to let you know that our next meeting will be on July 19th at 10:00am at the Pyle Rec center. I hope you will be well enough to go. Take care, Sarah :-)
At 8:00pm on June 17, 2008, Ev said…
Hey Joanne, well I moved here to work at ASU. I came with my boyfriend. We were lucky enough to both find a job on campus. We didnt specifically search in any one place but we ended up here!! and I have to say I am enjoying it alot..- I don't miss the rain too much ;). I am from Limerick, where have you visited?
I see that you are a trader joes fan as well!!! I just love that place. I have even sent home their cool carrier bags to my mum!! ha ha.
I can't imagine how difficult it must be to have a broken patella!! ouch...
At 11:40pm on June 16, 2008, Cheryl, Co-founder said…
Hi Joanne, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
At 7:48pm on June 16, 2008, Ev said…
Hey Joanne, Welcome to Alopecia world and to Alopecians in Arizona..Hope to see you at the next meeting!!
At 2:15pm on June 14, 2008, LeslieAnn Butler said…
Hi Joanne,
How are you doing with the alopecia? I think losing eyelashes is the hardest part. I have had au for about 20 years, and aa for over 30.
Just wanted to say hello!
At 10:51am on June 14, 2008, sgomez said…
Hey Joanne! Welcome! I'm glad you joined. I am looking forward to meeting you in person some day. I hope that all goes well with your recovery. Take care, and God bless
Sarah :-)


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