Kathy in Denver
  • Female
  • Denver, CO
  • United States
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Rachel joined Kathy in Denver's group
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Frontal Fibrosing Sucess and Burnout Stories

A site dedicated to tracking success separate from a broadly focused site on FFA. When people are new to the diagnosis and searching for info, the success side of things is elusive while the dark side is at every turn. I think this is in part because with success, one moves on. I want to make a plea for people to leave their good stories --- timeline and treatment --- here as those of us who are early in the process need the hope and understanding that success and burnout do happen.
Feb 25, 2023
BubbaLu joined Kathy in Denver's group
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Frontal Fibrosing Sucess and Burnout Stories

A site dedicated to tracking success separate from a broadly focused site on FFA. When people are new to the diagnosis and searching for info, the success side of things is elusive while the dark side is at every turn. I think this is in part because with success, one moves on. I want to make a plea for people to leave their good stories --- timeline and treatment --- here as those of us who are early in the process need the hope and understanding that success and burnout do happen.
Dec 4, 2020
DW joined Kathy in Denver's group
Thumbnail

Frontal Fibrosing Sucess and Burnout Stories

A site dedicated to tracking success separate from a broadly focused site on FFA. When people are new to the diagnosis and searching for info, the success side of things is elusive while the dark side is at every turn. I think this is in part because with success, one moves on. I want to make a plea for people to leave their good stories --- timeline and treatment --- here as those of us who are early in the process need the hope and understanding that success and burnout do happen.
Nov 4, 2020
Eve joined Kathy in Denver's group
Thumbnail

Frontal Fibrosing Sucess and Burnout Stories

A site dedicated to tracking success separate from a broadly focused site on FFA. When people are new to the diagnosis and searching for info, the success side of things is elusive while the dark side is at every turn. I think this is in part because with success, one moves on. I want to make a plea for people to leave their good stories --- timeline and treatment --- here as those of us who are early in the process need the hope and understanding that success and burnout do happen.
Sep 6, 2020
Eve liked Kathy in Denver's group Frontal Fibrosing Sucess and Burnout Stories
Sep 6, 2020
GLMV joined Kathy in Denver's group
Thumbnail

Frontal Fibrosing Sucess and Burnout Stories

A site dedicated to tracking success separate from a broadly focused site on FFA. When people are new to the diagnosis and searching for info, the success side of things is elusive while the dark side is at every turn. I think this is in part because with success, one moves on. I want to make a plea for people to leave their good stories --- timeline and treatment --- here as those of us who are early in the process need the hope and understanding that success and burnout do happen.
Feb 1, 2020
CBF joined Kathy in Denver's group
Thumbnail

Frontal Fibrosing Sucess and Burnout Stories

A site dedicated to tracking success separate from a broadly focused site on FFA. When people are new to the diagnosis and searching for info, the success side of things is elusive while the dark side is at every turn. I think this is in part because with success, one moves on. I want to make a plea for people to leave their good stories --- timeline and treatment --- here as those of us who are early in the process need the hope and understanding that success and burnout do happen.
Oct 20, 2019
CBF left a comment for Kathy in Denver
"Hi Kathy, I’m new to the site, and am also in Denver. I was diagnosed with FFA two years ago while I was pregnant and put any kind of treatment on hold until I had my baby and finished breast feeding. When I look back at pictures, I see…"
Oct 20, 2019

Profile Information

Relationship Status:
Single
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Kathy in Denver's Blog

New member...

Posted on November 24, 2016 at 1:00pm 0 Comments

Hi, everyone. I just found out I have FFA. Going through all the emotion that you all know about. Looking forward to connecting with this community. Wondering if there is anyone else out there from Denver. 

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At 12:19am on October 20, 2019, CBF said…

Hi Kathy,

I’m new to the site, and am also in Denver. I was diagnosed with FFA two years ago while I was pregnant and put any kind of treatment on hold until I had my baby and finished breast feeding. When I look back at pictures, I see symptoms started soon after my first child which makes me think there is a hormonal component. I’m now taking duasteride and plaquinil. Seems to have helped cease the redness. Also, someone mentioned CBD oil. Have you tried anything? Who is your doctor? I was seeing Dr. Norris, but recently left. 

At 2:02pm on December 2, 2016, StephD said…

Hi Kathy, I've reached out to a couple of others locally who seem to be active on here, but no response yet. So far it would be just us, but it's a start, and I'd love to grow a wider circle that includes all the hair loss types. The more the support the better. I'll send you a msg with my info so we can figure out a date/time. Looking forward to meeting you!

 
 
 

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