Marie
  • Female
  • Bloomington, IN
  • United States
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Relationship Status:
Married
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Marie's Blog

How do I come out with alopecia?

Posted on March 7, 2014 at 2:30pm 23 Comments

I have struggled with alopecia areata my whole life, well since I was three. Now at 24 I feel that I have made peace with it and accept the uncertainty of my appearance. In the past few months I have developed totalis. Although I have accepted it and am trying to move on, my husband and 5 year old daughter do not know how to. My husband tries to be supportive and not affected by it, but he is and I can tell. It usually comes out in weird places, like critiques of my dressing, or his sudden…

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At 10:54pm on March 7, 2014, LeslieAnn Butler said…

Hello and welcome, Marie!

How are you today?


Leslie Ann

At 4:17pm on March 7, 2014, Rie said…

Hi Marie,

I am new to Alopecia World and have not posted anything yet. I can totally relate to your emotions around always covering up to protect others from our alopecia. Last summer I lost all my hair and it is not coming back. (In the past it would come back.)I now have universal,  I just turned 60!  So, I have decided to go hairless on my own terms, when I feel like it. This way I can raise awareness of alopecia a little at a time and not get overwhelmed by explaining over and over. I go to the gym and yoga without a wig, around the house I am usually without except for when I wear buffs etc.  to keep my head warm.

So, your husband and family are adjusting, hard but you have to get comfortable with you, and not be too worried about them, it is a process, they will adjust. My husband said one day "You look so cute in your wig." and it really got me feeling down, but he did not mean any harm, just said something that I decided to accept and dismiss. I hope this helps, you are young and I guess I am where I am in this process because of my age in part. My heart goes out to you, hang in there. There is nothing wrong with taking small steps toward your goal. Rie

 

 
 
 

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