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When to introduce a wig and how to a young child?

Started this discussion. Last reply by Matica Jan 5, 2014. 28 Replies

Dear friendsWhen do you introduce a wig and how to a young child? I have a 3 year old daughter with AT since the age of one. She asks everyday about her hair, and if she can have it. I explain as…Continue

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I am a mum of a 21 months old girl who just got diagnosed with AA. I`m in shock. She`s so young and we just thought she lost her babyhair before the real hair started growing. It never grew back. Is there any treatment for children at this age and are there really no hope for her to get hair? She is now bald but have eyelashes,Though they are fragile and blond...much shorter than before. Is there really no hope?
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 6:56pm on June 5, 2013, Dena said…

Thank you. My daughter wasn't diagnosed until she was 5. She had never shown any signs of AA. In fact she had long blonde hair down to her waist. So she was older than your daughter and was at an age that she knew something was happening. At first it scared her, because the only people she had known with hair loss were people going through chemo. I knew then that I had to be totally honest with what was happening. She was able to understand that it was an autoimmune disease. I told her what an immune system was and that hers just didn't know when to stop fighting and picked a fight with her hair. We really didn't say anything to anyone until it all started falling out. There was no hiding it then. She went from no spots to no hair in about a month. I took some pictures of her playing around and asked if it was o.k for me to put on Facebook. She picked the one she liked the best. My friends and family saw it and I explained what was going on. Most people asked us out of concern. I have to be honest and say we never said anything to anyone, because I was able to hide it and I just didn't want to face that fact that it could get worse. I guess I secretly hoped it was just a one time thing that would correct itself and if it didn't I would deal with it when the time came. I was definitely in denial. Unfortunately people we don't know assume it is cancer and look at us with pity. I am quick to tell them she is healthy and that it is just an autoimmune disease. She is almost 7 and she knows when people assume she has cancer. She is quick to let them know otherwise. We have gotten her a wig and she has a ton of hats and bandanas, but she prefers to go bald. Sometimes she likes to put temporary tattoos on her head for fun. A lot of people comment and she likes the attention. I have always left it up to her. So far we haven't had a single kid give her a hard time. She even has two little boys with crushes on her. I am almost grateful this is happening now instead of junior high or high school. She is gaining confidence at a young age that I am sure will help her deal with people later on. I really think she gets enjoyment out of being unique. Your daughter will be fine. Just let her know how beautiful you think she is and love her. It took a while for us to get to this point, but things are good. Dena

At 9:37am on June 5, 2013, terri said…
Hi Matica
Thanks for the friend request. I know this is horrible for you. My daughter lost her hair around the same time as your daughter. I cried for 6 weeks (never in front of her) then I realized if I was fine with it, she would be too. I was scared she would not have friends, get bullied, have low self confidence. NONE of that ever happened. She is completely bald since late 2yrs and is now 10yrs. Lots of friends, she is joyful, funny, charming, never been bullied.
99% of people she meets are super amazing to her.
Your daughter will be fine, it is worse for you at this time than her.
At 9:28pm on June 3, 2013, Dena said…

Thanks for the friend request, Matica. It is really hard when your child is first diagnosed, but things do get better. We have tried a lot of different treatments, but none of them ever provided any lasting results. Some people react better than others to treatments. AA seems to react different to different people. Some people grow hair back, but some never do. That is what is so frustrating. There just isn't any answers. My daughter is 6 and lives a normal life with dance classes, gymnastics, friends, parties, etc. It was a shock at first to everyone, but now no one seems to care. She is just a normal kid. She is just bald. She may not have a fancy hairstyle, but you should see her nails. Best of luck to you and let me know if you have any questions.



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