Tina (Jillians mom)
  • Female
  • Eureka, MO
  • United States
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Tina (Jillians mom)'s Discussions

Post-surgical alopecia?

Started this discussion. Last reply by Tina (Jillians mom) Aug 19, 2010. 10 Replies

8 year old daughter to have tonsils & adenoids removed next week. Just started to regrow hair all over head in May. Anyone with recurrent patches post surgery? This was just brought to my…Continue

Swimming with AA

Started this discussion. Last reply by Sadness Jun 22, 2017. 4 Replies

Looking for a swim cap or hat with hair attatched for swimming. Daughter does not like the regular swim caps (she has never seen anyone wear one other than the Olympics on TV).

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Profile Information

Relationship Status:
In a Relationship
About Me:
daughter diagnosed in 2009 with AA.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (10 comments)

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At 5:03pm on July 11, 2011, michelle webb said…
Hello tina ,thanks for adding us...ღ
At 1:59pm on June 9, 2011, Gabriela Gonzalez said…
Hi tina, question about DCP. My doctor said I have to do it weekly and he says I cannot be in the sun or shower for 48 hours after using it? Also I have to go to his office every week because only he can apply it? I was just wondering if that is how it works for you? It is really frustrating because I am moving to a small town on the outskirts of London and that means I have to take a 1 hour train every week there and back to go to a 10 minute appointment! Let me know, hope all is well with you and jillian!
At 9:27am on May 31, 2011, Gabriela Gonzalez said…
Hi Tina ! I just started doing DCP here in Switzerland and I was just wondering how it went for Jillian under that treatment?
At 7:14pm on May 20, 2011, Samantha said…
Hi thanks for the message. What are you doing this summer? Tomorrow I'm going to a KISS 108 concert , the next day I'm going to my bro's collage graduation on Sunday, I'm so exited!!!!
At 7:21pm on March 6, 2011, Samantha said…
Hi, How are you? I'm fine ! I'm doing a skating shown called Ice Chips , my pro is the Bewitched theme song! but we have to use fake brooms and wear a pom pommy hat.
The 2 boys are lucky!! >:(
By Peace and Harmony,
Sam.K.
At 8:23am on May 19, 2010, Cindy said…
HiTina,, I am sure what you are seeing is positive. Just keep thinking positive thoughts and I wish Jillian the same success Sam has had. As far as CAP, they offer alot of different supports such as pen pals, online parent chats, support groups forming across the country and there is one in MO if you ask Betsy for the info, Alopeciapalooza and more. . Good luck.
At 8:38am on May 15, 2010, Samantha said…
Hi , My name is Samantha and I am 8 to . What a insidious . I also have American girl dolls ,I have Rebeca and Emily , you now one of the friends . I have a puppy a mutt . Her name is Harmony because I love music . My mom told me that you do something kind of the same as me . I do squarer aside , and my hair is growing bake . Bye .
At 8:19pm on May 14, 2010, Cindy said…
Thanks...We have an AG store here in Mass nears us. No we won't be going to NAAF. Do you know about the Childrens Alopecia Project? www.childrensalopeciaproject.org. They will have Alopeciapalooza in Aug and it is all geared towards the kids. You should register with them, It is free. CAP also has support groups lead by parents through out the country. I think there maybe one in your area. I run a group her in Mass.
Yes, be patient with the treatment. How does the DCP work? Do you apply it on the whole head or half a head at a time. We apply it in small sections. We worked our way up. I say you need to give it at least 6 months . It took Sam only 12 weeks to see the start of regrowth once we went to weekly treatments. Good luck!
At 7:04pm on May 12, 2010, Cindy said…
Hi Tina, My name is Cindy and you sent my daugther Samantha a request to write to your daughter. I know Sam will love that. I can have her post a message on your wall once she has some down time. She also has her own email address if Lillian would like it. How is your daughter doing? I see your using DCP. Sam has been using the sister treatment SADBE and if you be patient you may see results. Sam has regrown most of her hair head to toe in the 2 years she has been using it. We are finally seeing some eyelashes and she has a good amount of eyebrows now as well. Cindy
At 8:08pm on May 6, 2010, LeslieAnn Butler said…
Hello and welcome, Tina!
How are you and your adorable daughter doing today?
LeslieAnn

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