Merry
  • Female
  • Madison, In
  • United States
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Merry's Friends

  • Nat
  • Frida Rupert
  • mtran2000
  • Mary
  • Arun B
  • asp2014
  • Bumblebeee
  • JHen
  • Starshine

Merry's Discussions

Inspiring photos of progress

Started this discussion. Last reply by sadele Sep 15, 2015. 6 Replies

I have been very inspired by the photos of people on xeljanz who are regrowing their hair. Some of these people have not had hair for years, maybe even decades. Through these photos, I have seen that…Continue

Xeljanz: When should I worry that it won't work for me?

Started this discussion. Last reply by Merry Apr 29, 2015. 11 Replies

  I started using Xeljanz on March 12. I have been lucky in that my insurance is paying for it, but I'm beginning to worry that it won't work for me. I have seen some exciting photos of others'…Continue

Hopeful after a visit to Cleveland Clinic

Started this discussion. Last reply by LJBMD Feb 11, 2019. 7 Replies

My reasons for writing this are to share my experience and give others hope and encouragement. I have not felt this hopeful for years, but I think there are reasons to hope now. I have had AU for…Continue

Cholesterol drug, Vytorin, used for alopecia

Started Oct 29, 2014 0 Replies

My doctor has prescribed Vytorin for my alopecia. We have tried many other medications. Cyclosporine works to cause regrowth, but I always have to stop using it because of the side effects on my…Continue

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Latest Activity

Merry replied to NicoleT's discussion Xeljanz from India
"Sukriti, Congrats on getting your order! How long ago did you order? I placed an order with Beacon in late March right before the Covid shutdown. The latest I heard from Mouree was that they would start shipping again on July 15, but still nothing.…"
Aug 13, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Will I get an email before Beacon ships my meds, or will they just show up?"
Jul 24, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I finally heard from Mouree today. She said that EMS will begin shipping on July 15, and I will get my meds soon. Of course, she thought they would start shipping in May and then June. I just hope this newest email is correct."
Jul 12, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you!"
May 29, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for finding this source. I never want to be at the mercy of  any insurance company again! As soon as I ordered from Beacon, they shut down. Someone on here loaned me two boxes, which was incredibly unselfish and kind, but I ended up…"
May 21, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I would be interested in ordering from Venkat Pharma also since Beacon still seems to be at a stand still. Can you please share the process you followed to order?Thank you so much!"
May 15, 2020
Merry is now friends with Arun B, asp2014, mtran2000 and Starshine more
Apr 20, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"The  only place I could find to add the invoice number was a section for a message to Beacon. It said it was for an email only. I don't know if it helped with my order or not. I have not received my order yet. "
Apr 4, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Dip, They told me that they are only in M-Th, so maybe they haven't had time yet. Good luck!"
Mar 24, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you, Kevin! I was able to place my order today."
Mar 23, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you so much,Frida! I have placed an order with Beacon and I received 2 boxes that Nat was kind enough to send me to keep me until it arrives.Such a relief! You all are such good people! I thank God that I found this site years ago. "
Mar 23, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you, Frida!"
Mar 19, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you, Kevin!"
Mar 19, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you!"
Mar 19, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you, Starshine! I am ordering from Beacon, but I will also contact Zelsource. Yes,my doctor and my pharmacy both got written notification that I was preauthorized through October. I plan to mention this to Zelsource. "
Mar 19, 2020
Merry replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have some questions about ordering from Beacon. They sent me an invoice to sign. Do I need to make a hard copy or can I sign on line? How do I send the money? Check, Wire, Certifided Check?  They asked me to send my payment slip. What is that…"
Mar 19, 2020

Profile Information

Relationship Status:
Single
About Me:
I am a 53 year old teacher who developed AU after losing my husband of 30 years to suicide.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 3:35pm on November 7, 2013, LeslieAnn Butler said…

Hello and welcome!

I'm sorry about your husband. How are you today?  I have AU, too.

Leslie Ann

At 11:21pm on August 29, 2013, Bumblebeee said…

Merry,

Thank you so much for replying and letting me know how things are going with the Orencia. It's great to hear that you're seeing improvement! It also gives me some hope. I went to NY in July to sign up for the AA Registry and I spoke with the investigators there - they sounded pretty optimistic about Orencia. They also said that they'll be starting a trial for a promising new topical.

I am so sorry to read about your struggles. My thoughts are prayers are with you on this journey and I wish us both the best in our quest. Please let me know how you do with the Orencia. Best of luck to you too!

 
 
 

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