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Starshine's Discussions

Insurance companies that have covered Xeljanz

Started this discussion. Last reply by sampeckard Jul 26. 11 Replies

I was wondering what insurance companies people have been able to get to cover Xeljanz for our condition. I am currently with Blue Cross and they have covered it for the past two years, but I now…Continue

Is anyone else not responding to Xeljanz?

Started this discussion. Last reply by ariel015 Oct 12, 2020. 34 Replies

,So I am now at 15 weeks on Xeljanz and have only gotten some diffuse vellus on scalp and sporadic tiny vellus elsewhere.  This is very disheartening after seeing all of the other people who are…Continue

Starting Xeljanz, have some questions

Started this discussion. Last reply by katiegirl Jun 7, 2015. 12 Replies

So after switching insurance companies,my derm was finally able to get my new insurance to approve Xeljanz for alopecia which is amazing. They pay half and the Pfizer Co-pay card pays the rest. I…Continue

Dr. King comment on Xeljanz trial to date

Started this discussion. Last reply by lara Feb 4, 2015. 19 Replies

I was lucky to get a response from Dr. King regarding an inquiry as to the results of the initial trial for Xeljanz.  I had spoken with him at the onset of the trials which is the only reason I think…Continue

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Latest Activity

sampeckard replied to Starshine's discussion Insurance companies that have covered Xeljanz
"It depends on the insurance company you are willing to contract for insurance. Some companies failed to pass through this challenging period and remain on the market, and they have nothing else to do except lift their prices. Still, there are…"
Jul 26
cagefaj replied to Starshine's discussion Insurance companies that have covered Xeljanz
"Nowadays a lot of insurance companies in the market and offering many great plans to their customers But this insurance agency have great deals for their special customers."
Jul 8
Starshine replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Nat, if it's not too much trouble, could you also send me a pic of your screen shot from Transferwise.  My cell is 443-416-2314.  Thanks."
Jan 9
Starshine replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you, you have been so helpful.  I will start the process and see how it goes, but I may take you up on that if I get stuck.   This is all new and a bit scary for me. it is so unfair that we all have to go through this to get…"
Jan 7
Starshine replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you so much, Nat.  I think I've got this, but not sure how Transferwise works.  Can you explain how that works for payment once I register with them.  "
Jan 6
Starshine replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi everyone.  I am one of the long-timers on this forum and have been on Xeljanz since 2014 with full regrowth (had universalis) and no relapses.   Up to now, my insurance has covered, reluctantly, but this year they are firmly…"
Jan 5
Yringel replied to Starshine's discussion Insurance companies that have covered Xeljanz
"Many consider them to be planned, others say many conspiracy theories. My opinion is that - you can't be sure for 100% in mass media. News for me were like a hypnosis machine that instructs and indicates people how to think and believe.…"
Dec 28, 2020
Demixl replied to Starshine's discussion Insurance companies that have covered Xeljanz
"Well yeah. I'm in a search myself because strange things are happening around the world."
Dec 28, 2020
ariel015 replied to Starshine's discussion Is anyone else not responding to Xeljanz?
"Hi!  Since I posted that update, I increased my dose to 20mg/day mid August 2020 and it seems to be working but it is a bit too soon to say as I said I have kinda always had regrowth so I am waiting to see if the new patches stop. As for body…"
Oct 12, 2020
elizabetham replied to Starshine's discussion Is anyone else not responding to Xeljanz?
"Ariel015- would love to hear how you have progressed since May. I started 5mg 2x per day on August 10th, 2020. I very recently have started to notice a few blonde hairs on the top of my head. I was in the Baricitinib trial and had no regrowth on my…"
Oct 12, 2020
ariel015 replied to Starshine's discussion Is anyone else not responding to Xeljanz?
"HI guys! I have been on 10 mg Xeljanz per day (5mg every morning and night) for just over 1.5 months now and I am still not seeing any results, in fact I am still getting new patches. For some background - I have had alopecia areata for 2.5 years…"
May 22, 2020
Merry and Starshine are now friends
Apr 20, 2020
Starshine replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"What insurance do you have?  I am pretty sure that is illegal.  They should be reported to the Insurance Commission.  I have always found Zelsource to be helpful.  They sent me several bottles while I was waiting to see if I met…"
Mar 19, 2020
Starshine replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Merry, have you tried to contact Zelsource Assistance.  Even if you don't  qualify, if you explain what happened, they may send you a bottle to get you through.  Just a thought.  Did you get a confirmation in writing from…"
Mar 19, 2020
Scalp Allure replied to Starshine's discussion Trying to cope with diffuse AA
"Alopecia is a serious hairloss condition that affects more and more people each year. Scalp Micropigmentation is a great solution for many people dealing with Alopecia.  Throughout years of my SMP practice, I have worked with big number of…"
Aug 28, 2019
Starshine replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Football Fan.  Nice to hear from you as well.  You are also a long-time pioneer for this forum Even though Xeljanz did not work as well for you, you have not given up.  "
Jul 3, 2019

Profile Information

Relationship Status:
About Me:
I live in Baltimore, Maryland and have recently been diagnosed with diffuse
AA. I am a legal secretary, married with three great kids.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (15 comments)

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At 11:06am on November 4, 2015, Bee said…
Thank you so so much for the reply! I am starting the appeal process for Xeljanz with my Blue Cross. I am also considering changing my insurance now that it's open season. I just added Plaqunil, but would really love to give Xeljanz a shot. Did your insurance cover half right away, or did you go through the appeal process?
At 5:07pm on July 16, 2015, Jlhollow said…
Thanks for responding so quickly. I am sorry to hear you now have AU. I am feeling very lonely so it's nice to have some support.

What year did this all begin?

Did you have an initial round patch or was it always diffuse?

Also did your hair grow back while if was falling out?

Did you see exclamation point hairs? I haven't seen any.
At 11:11am on July 16, 2015, Jlhollow said…
Hi starshine. I seem to have a very similar experience to you. It's been 11 months of diffuse scalp loss. And 9 months of diffuse eyelash, eyebrow, nose hair loss. Recently I just noted that my leg hair and arm pit hair are growing very slowly. All my blood work came back fine. I do have hypothyroid but I'm on synthroid and have been on it for 3 years never with a problem. The last derm I went to was telling me she thinks it's diffuse alopecia areata. She said a biopsy wouldn't be able to tell. I'm wondering if I have chronic telogen effluvium.

I have a few questions for you. Did your hair grow back right away when you lost it. My hair is growing back but my growth can't keep up with my shedding. Also, do you see exclamation point hairs that fall out? I haven't seen any. Did you ever have any bald spots?
At 9:47am on May 22, 2015, Anisha said…

Hi, I have some questions about your insurance coverage. I have BCBS Carefirst insurance, but they just denied my claim for Xeljanz. I was wondering if you maybe elaborate on your approval process, or what your doctor specifically wrote or told the insurance company. I'd really appreciate it.  Thanks so much!

At 12:09pm on May 12, 2015, Julie said…

I have been aa on and off for about 7 years but lost all the hair on my head about three years ago.. i lost most my arm hair and leg hair, eyebrows.. but grew my eyebrows back when i was on methotrexate for about 8 months. i stopped the methotrexate to go onto xeljanz and have noticed my leg hair coming back and my underarms but still the same vellus hair on my head.. no terminal hair yet and its starting to get me worried because like you said it just makes you wonder if it's not for you when you see so many people having amazing results only after a few weeks! im on week 10 of it so am hoping that within the next couple weeks i see something.

i am getting the xeljanz through cvs using the pfizer copay card. that is up in two weeks os currently my dermatologist is trying to work with my insurance to get some of it covered. i may try to go through a rheumatologist if that doesnt work.

how about you?

At 11:32am on January 21, 2015, Gail said…


I would love to compare treatment..I just went yesterday and I'm having some strands come in so the doctor is happy about it but I want it grown in yesterday lol....but we shall see....hope you have a good day! :)

At 10:02pm on September 18, 2012, dmf said…

Hi Starshine. Funny coincidence - I was sitting in my derm's waiting room when I read your post. It was a very long wait to see him and the results were mixed.

The biopsy showed that I do have AA. He said that he trusts the results with 98% certainty. He explained that the biopsy showed a lot of inflammation around the bulb of the hair, at the root, beneath the scalp. So the idea is to get the inflammation to calm down which should create a healthier environment for hair to (hopefully) start growing again. This means steroids and we had a long discussion on what sort. He would have liked to do steroid shots but he respected my belief that the shots last time POSSIBLY triggered this shedding - like a rebound effect. He actually said, "Most other doctors would say that's impossible and it's just coincidence, but I'll say it's a possibility...but a very, very small one." What we decided to do is increase the steroid lotion to 4 times per week and continue the Rogaine 5%. I've been having quite a bit of scalp pain so I really hope it helps.

I'm going to see him again for a follow up in 5 weeks. If the inflammation doesn't look like it has subsided, I'll be more willing to try the shots again. I'm really uncomfortable with the idea of oral steroids, so that would be a last resort, and he'd need to be really persuasive! So that's my story and where I'm at.

It made me feel so good that you thought about me and checked in! How are you feeling? I hope you've had some better days than the last time we wrote to each other.


At 3:16pm on August 24, 2012, dmf said…

Thank you, Starshine. It helps a lot to know that you REALLY understand how I feel. I'm seeing my doctor on Sept 17 and it will be interesting to see what he says. When he did the biopsy he mentioned some more aggressive treatments like DCPC and oral prednisone. I am leaning away from using those but need to hear when he says first and then do more research. I'm glad we've become friends here and we can compare notes and get each other's opinions. They say knowledge is power - today I feel like that's kind of up for debate, though. Anyways, I appreciate your quick response and your support.

On another note, I think you have kids? How old are they and do they know what you're going through. I have not told my kids yet. The whole idea of telling them worries me. It might be easier once I have more info. I dunno.

At 2:07pm on August 24, 2012, dmf said…

So, I had an awful morning. I went to get my biopsy stitches out - and that was painless and easy. But it turned out they had received my biopsy results. AA was confirmed. My doctor wasn't there to discuss it with me - they brought in another doctor who had to rush out to see her own patients. The only good thing was it meant they found a way to move up my follow up appointment to mid-September.

I guess it's a good thing that I have a confirmed result. But it sure doesn't feel like a good thing. Even though I expected that result, it sure is hard to see it in print.

Sad day for me today. Struggling not to cry and just to cope. Going away on a vacation tomorrow and don't even feel like going. :(

At 10:07pm on August 23, 2012, dmf said…

I do use Rogaine only at night still. I plan to keep getting injections in brows but not sure about my head. Unfortunately, my derm's availability is very limited now so I'm not seeing him again until October! Till then it's just Rogaine and Nioxin. It is all very frustrating and confusing. Again, I am sorry if I made you feel worse, Starshine. Next time I share info I will choose my words more carefully. I'm stressed tonight because tomorrow I am getting my biopsy stitches out by someone (?) - I don't even know by who in my doctor's office since he won't even be there. Still waiting for my results. Hope you have a good night and that tomorrow is a good day for us both.



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