Newjack
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  • Astoria, NY
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Newjack's Discussions

I'm having a difficult time with AA.

Started this discussion. Last reply by Karaholly Nov 19, 2017. 1 Reply

My girlfriend noticed a spot in July, I ignored it well because I didn't think it was anything. September, I went to the dermatologist, and the one spot I had, it was the size of a quarter or even…Continue

Steriod shots have adverse effects?

Started this discussion. Last reply by saba26 May 14, 2019. 3 Replies

I have had about 2 or 3 rounds of steriod shots in a couple of spots. I notice hair growth , however I am still seeing the patches travel. Also, it seems like Everytime I get myshots that is when it…Continue

Is taking a biopsy always necessary?

Started this discussion. Last reply by Alo-mom Nov 12, 2017. 1 Reply

I went to a doctor back in september and I had a circle, there was still hair in it and extremely itchy. She immediatly said it was AA. In July I would ITCH the living hell out of it, and it reminded…Continue

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Latest Activity

Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"My diet changes from Keto to the diet of eating anything. I am the same age as you too.My diet is always calorie counting though. I will eat anything as long as I am under a certain amount of calories if that makes sense?Keto-- Red meat, vegetables,…"
Oct 5
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"My LDL is still terrible but my HDL and Triglycerides are still amazing. Almost Athlete levels. My doctor isn't too concerned because of that alone.  HDL was 79 Trig 35 (around there)"
Oct 3
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
" I will probably have to stop taking my medication for a few weeks or maybe months. I am most likely going in for a spinal fusion in December/January.If anyone had a major operation please let me know, I am interested how it went and how long…"
Oct 1
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I had surgery on my meds, and had no issue. Ovbiously it depends on the surgery. If it is major surgery like a joint replacement, you probably will need to stop it. If its something minor or even somewhere in the middle (like me) you don't need…"
Jul 13
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey all,  Long time no see! I have been doing well. No set backs for me other than other health issues of getting older. I got scoped today and to my surprise (or not) I have Candida of the Esophgeous. I was on a low dose of minocycline for…"
Jul 13
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I am still on 20mg and my cholesterol sucks trig are great, HDL amazing but my LDL is horrific. My derm is not concerned and does not think it's serious because how well my numbers are with the other 2.  My other blood results are…"
Mar 5
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Sam,  I am sorry you had this experience. I hope someone on the forum can help you in your area. But there are a few avenues possible, I think here collectively have all gone through the experience of getting xeljanz and can help and give…"
Mar 3
Newjack is now friends with AloneArchitect and tiffany
Feb 17
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey all!Like everyone I am super concerned with the recent xeljanz report. I reached out to my Doctor who specializes in Alopecia and this was her response"We don't think this applies to alopecia areata patients. Rheumatoid arthritis…"
Feb 12
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"This is going to be gross, but has anyone got black spots/specks in there stool? I just noticed this like a few months ago (hasn't been consistent) and today I notice it as well. I haven't been able to test my blood with everything going…"
May 3, 2020
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I see the same doctor I'm surprised she said 2 months. When I first saw her she told me it could take 4 months. Wonder what's the factor. "
Mar 20, 2020
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks Frida, I haven't been off my meds. My doctor saw me today and said everything looks good and no infection. It's been only 9 days and could take 2 months to fully heal but the incision should take about 2-4 weeks. My stitches are…"
Feb 4, 2020
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks apple"
Jan 28, 2020
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Has anyone had surgery on Xeljanz? I just had surgery done and my surgeon wasn't all that concerned that I was on Xelijanz, he looked into it and said it, if it was prednisone than I would have to stop it but Xeljianz doesn't act the same…"
Jan 27, 2020
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Smells like a scam"
Jan 25, 2020
Newjack and Peciamom are now friends
Jan 5, 2020

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Relationship Status:
In a Relationship
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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