AlopeciaDestroyedMyLife
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AlopeciaDestroyedMyLife's Discussions

Xeljanz (Tofacitinib Citrate): My experience on the trial

Started this discussion. Last reply by ariel015 yesterday. 9325 Replies

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.I thought it would be nice for everyone if I documented my progress on here. Xeljanz is a Jak3…Continue

Tags: xeljanz, trials, treatment, tofacitnib, citrate

Got dumped because of my alopecia

Started this discussion. Last reply by Apple Jan 29, 2020. 42 Replies

I had another alopecia episode and my eyebrows fell out again. This has had a dramatic impact on my appearance. I was scared to tell my then girlfriend but eventually plucked up the courage to tell…Continue

I can't take it anymore

Started this discussion. Last reply by Rose Marie' Jul 3, 2014. 6 Replies

I have pretty no hair anywhere my only pride and joy were my eyebrows which grew back after steroid injections 2 years ago with full regrowth in 2 weeks. In the past few months they have all fallen…Continue

Please bring back chatrooms (disappeared with no explanation)

Started this discussion. Last reply by AlopeciaDestroyedMyLife Jul 6, 2014. 3 Replies

Alopecia World please bring back chatrooms there are no alopecia chatrooms anywhere on the internet. Chatrooms are the best support someone can get online as its in real time. Bring them back please.Continue

 

AlopeciaDestroyedMyLife's Page

Latest Activity

ariel015 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Gotcha okay fingers crossed mine stop actively shedding soon then! Thanks again :)"
yesterday
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi, it took 2 months for all my spots to get hair. I am back at 16 mg and no spots. "
Wednesday
ariel015 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you as well :)"
Wednesday
ariel015 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi ! Thanks for your input, I really appreciate it.. I did go back up to 20mg over a month ago once I started noticing the active patches getting worse... do you happen to have any experience with how long it takes for things to resettle?"
Wednesday
lumi replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"For me vaccines caused flares in my alopecia.... but I am not yet taking the Jak drugs so I cannot speak from experience. I hope it settles- I have heard many people in this thread mention that reducing does caused difficulty with new patches."
Wednesday
Lori replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kevin Can you send me the site information.  I was on the assistance program for three years hair grew back but have lost it again and they refused my assistance program since COVID started I need to find a company to order from.losing…"
Wednesday
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi, I think that your spots are from reducing Xeljanz and stopping it.  I reduced the dose and got spots. You, probably, need to increase your dose back to 20mg."
Jul 23
ariel015 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi everyone. I'm posting as an update/asking if anyone else is experiencing something similar... In April (2021) my hair was the best it had been for over 3 years and it seemed like xeljanz (20mg/day) was really working for me. I had no active…"
Jul 23
macdev replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"merci kevin"
Jul 18
kevin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Bonsoir marcdev je n'avais pas de problème jusqu'au fin 2020 Mes colis ont été saisis par la douane plusieurs fois c'est du au personnes non résidents en France italien anglais qui ce faisait livré…"
Jul 16
macdev replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Bonjour J 'ai renoncé à la greffe fécale car impossible à réaliser pour le moment ( en France). j'ai contacté beacon ( Abdullah Al Mamun) pour obtenir du Tofacitinix, Mais il lui est…"
Jul 15
kevin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"hello do not worry I had the same thing of big intestinal pain in the lower left and sometimes bloating and gas discomfort, me it goes in 1 to 2 weeks it's time for the body to get used to it, At the beginning I had acne a herpes sore and all…"
Jul 14
SaugaD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Question regarding Tofacinix. I have been on it for 6 weeks 5mg morning and 5mg night. Upped the dosage to 15mg for the day and started getting stomach pains. Not serious pains more of a discomfort so I stopped taking the pills for about a week and…"
Jul 14
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I had surgery on my meds, and had no issue. Ovbiously it depends on the surgery. If it is major surgery like a joint replacement, you probably will need to stop it. If its something minor or even somewhere in the middle (like me) you don't need…"
Jul 13
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey all,  Long time no see! I have been doing well. No set backs for me other than other health issues of getting older. I got scoped today and to my surprise (or not) I have Candida of the Esophgeous. I was on a low dose of minocycline for…"
Jul 13
Daire replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi all,  I've had AU for 3 years. I've now been on  prednisone and seen Vellus hair grow. I want to take my prednisone in combination with Tofacinix. I'm based in the UK and was wondering has anyone has…"
Jun 30

Profile Information

Relationship Status:
Single
About Me:
Lost all my hair when I was 18, eyebrows , beard, everything other than some parts on my chest.

I am on the study with the new drug Xeljanz for alopecia.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (14 comments)

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At 9:51am on September 28, 2019, LJBMD said…

To Alopeciadestroyedmylife: How are you doing now? Are you still on xeljanz? 

At 2:04pm on August 21, 2018, MindOverMatter said…

Hi AlopeciaDestroyedMyLife,  I have sent you a friend request...I hope you don't mind.. but you seem to be the mind all knowledge on this forum when it come to taking Xeljanz... I like you am from the UK and at the minute there is no one else I can turn to for some advice or help with taking Xeljanz in the UK..!

At 6:45am on April 19, 2017, Davy said…

Hi brother,

I live in Uk, Manchester, and have been under Xeljanz through dr. king

for more than a year now. Do you have a mobile phone, I would like

to talk to you about Xeljanz in UK, apparently it is available for

compassionate use. Have you heard about that?

Plese if possible send me a whatsapp message at the +393286266248.

very appreciated

At 9:22pm on May 20, 2016, Stressedmom said…
My daughter is on Xeljanz oral for 5 months. She is experiencing rapid regrowth since month 4 and while patchy, hair is dark and soft and her own healthy hair regrowth. The doctor is blown away with the progress.
This truly is a miracle if only for the hope that we really needed to have that one day this could be reversed.
At 2:17pm on January 26, 2016, Toxicmosquitoaf gave AlopeciaDestroyedMyLife a gift
Gift
Thanks for doing this on the forum, keep up, be great
At 3:29pm on December 20, 2015, Hope finder said…

Hi ADML

I hope your progress is being maintained. 

I'm new to this forum but I have been monitoring it since you started it. I have to commend you on your work. You have encouraged thousands based on the over 225,000 views.

You could even say that you are a pioneer. I never suspected you of being a conman because of the press, Pfizer are a multi billion dollar company who do not need crooks selling snake oil and you have been a member for quite a while prior.

What got me hooked was the letter you received from Pfizer confirming Turkey Xeljanz is genuine and affordable.

If you accept me as friend I hope you would be able to further discuss how I could obtain Xeljanz in Turkey.

Whether you accept me as a friend or not you should be truly proud of your work.

At 2:37am on October 1, 2015, Naresh said…
This is Naresh from India. How can I get tofacitinib citrate. Please reply me
At 7:38pm on July 6, 2015, LittleSadEyes said…

At 7:19pm on July 6, 2015, LittleSadEyes said…

At 8:42pm on January 20, 2015, lusha22 said…
Hi:) I sent a friend request... Would you mind if I asked you a few questions? I'm 37 yo female with AU.
Thank you!
 
 
 

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