"They just extended my trial another 2 years to keep following me. So far its been awesome. Starting to get hair every where. Sort of funny I got hair on my head way before my body hair started growing back. After 2 years on the this my hair is to…"
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Xeljanz (Tofacitinib Citrate): My experience on the trial
Started this discussion. Last reply by Jim In Cali Apr 28. 9515 Replies 55 Likes
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.I thought it would be nice for everyone if I documented my progress on here. Xeljanz is a Jak3…Continue
Tags: xeljanz, trials, treatment, tofacitnib, citrate
Got dumped because of my alopecia
Started this discussion. Last reply by Apple Jan 29, 2020. 42 Replies 1 Like
I had another alopecia episode and my eyebrows fell out again. This has had a dramatic impact on my appearance. I was scared to tell my then girlfriend but eventually plucked up the courage to tell…Continue
I can't take it anymore
Started this discussion. Last reply by Rose Marie' Jul 3, 2014. 6 Replies 0 Likes
I have pretty no hair anywhere my only pride and joy were my eyebrows which grew back after steroid injections 2 years ago with full regrowth in 2 weeks. In the past few months they have all fallen…Continue
Please bring back chatrooms (disappeared with no explanation)
Started this discussion. Last reply by AlopeciaDestroyedMyLife Jul 6, 2014. 3 Replies 3 Likes
Alopecia World please bring back chatrooms there are no alopecia chatrooms anywhere on the internet. Chatrooms are the best support someone can get online as its in real time. Bring them back please.Continue
AlopeciaDestroyedMyLife's Page
Latest Activity
"I had skin cancer way before starting Concert Jak3 inhibitor. If you are fair skinned, grew up in an era where you used tan accelerator instead of sun block, the likely cause is years of exposure. Ask for Luvelan Kerastick Photo Dynamic Therapy or…"
"Hi, how is the efficacy of abrocitinib? First time I hear about it :-) "
"That's sad to hear. I really hope it goes well. Good luck. Thanks for letting us know."
"I know it's late. I haven't been in the forum in a while. I have been using Tofacitinib for 6 years now. I have bought from beacon a couple of times.
The website is…"
"hello starshine I've also been on jaks since 2018 I'm sorry for you, it may be a coincidence or related to the drugs only god knows, with the arrival of new less dangerous jaks because it selects the immune system less, I am on a new jak 1…"
"Hi, I wish you a full recovery. I've been on Tofa for 4 years now. I started to get different small growths on my fingers, legs..... I will be more careful in the sun. Thank you "
"Hi all, I have been on Xeljanz for 7 years now and was just diagnosed with superficial skin cancer across my nose. My derm said this is most likely related to Xeljanz. I was wondering if anyone had any similar side effects. I am…"
"Hello, I have been reading this forum for a long time. I am in France, I have had alopecia for 30 years which has become universal for 10 years. For 18 months I have been participating in a clinical trial based on jak initiators and this has made my…"
"Following "
"As I am on XR (with the extended half-life) I may tweak my daily administration to the full 22mg once in the morning.
This is protocol for UC patients using tofacitinib / xeljanz:
Usual Adult Dose for Ulcerative Colitis
Immediate-Release…"
Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.I thought it would be nice for everyone if I documented my progress on here. Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for…See More
"What's everyone's dosing schedule?
Do you split your dosage or do you take it all at once?
The half life of tofacitinib is 3 hours ( the 11mg XR is 6 hours).
Just wondering :) "
"Well, topical is demanding. I can't seem to keep a protical. Oral works better for me overall.
I have had AA for a very long time. I believe I need to adress the disorder in any way possible.
Studies show it has an effect on AA."
"Why would you be on Xeljanz and minoxidil? Minoxidil did nothing for me, oral or topical. "
Profile Information
- Relationship Status:
- Single
- About Me:
- Lost all my hair when I was 18, eyebrows , beard, everything other than some parts on my chest.
I am on the study with the new drug Xeljanz for alopecia.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (14 comments)
- At 9:51am on September 28, 2019,
LJBMD said…
To Alopeciadestroyedmylife: How are you doing now? Are you still on xeljanz?
- At 2:04pm on August 21, 2018,
MindOverMatter said…
Hi AlopeciaDestroyedMyLife, I have sent you a friend request...I hope you don't mind.. but you seem to be the mind all knowledge on this forum when it come to taking Xeljanz... I like you am from the UK and at the minute there is no one else I can turn to for some advice or help with taking Xeljanz in the UK..!
- At 6:45am on April 19, 2017,
Hi brother,
I live in Uk, Manchester, and have been under Xeljanz through dr. king
for more than a year now. Do you have a mobile phone, I would like
to talk to you about Xeljanz in UK, apparently it is available for
compassionate use. Have you heard about that?
Plese if possible send me a whatsapp message at the +393286266248.
very appreciated
- At 9:22pm on May 20, 2016,
- My daughter is on Xeljanz oral for 5 months. She is experiencing rapid regrowth since month 4 and while patchy, hair is dark and soft and her own healthy hair regrowth. The doctor is blown away with the progress.
This truly is a miracle if only for the hope that we really needed to have that one day this could be reversed.
- At 2:17pm on January 26, 2016, Toxicmosquitoaf gave AlopeciaDestroyedMyLife a gift…
- At 3:29pm on December 20, 2015,
Hi ADML
I hope your progress is being maintained.
I'm new to this forum but I have been monitoring it since you started it. I have to commend you on your work. You have encouraged thousands based on the over 225,000 views.
You could even say that you are a pioneer. I never suspected you of being a conman because of the press, Pfizer are a multi billion dollar company who do not need crooks selling snake oil and you have been a member for quite a while prior.
What got me hooked was the letter you received from Pfizer confirming Turkey Xeljanz is genuine and affordable.
If you accept me as friend I hope you would be able to further discuss how I could obtain Xeljanz in Turkey.
Whether you accept me as a friend or not you should be truly proud of your work.
- At 2:37am on October 1, 2015,
- This is Naresh from India. How can I get tofacitinib citrate. Please reply me
- At 7:38pm on July 6, 2015,
- At 7:19pm on July 6, 2015,
- At 8:42pm on January 20, 2015,
- Hi:) I sent a friend request... Would you mind if I asked you a few questions? I'm 37 yo female with AU.
Thank you!
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