"Hey guys I was on xeljanz and am now on litfulo , very similar - there is an alopecia survey just to get more info you don’t have to participate. If you qualify for the survey you can get $60 . If you are interested here is the link . Of…"
Alopecia World
www.alopeciaworld.com
-
AlopeciaDestroyedMyLife
- Male
- UK
- United Kingdom
- Blog Posts
- Discussions (274)
- Events
- Groups (3)
- Photos
- Photo Albums
- Videos
AlopeciaDestroyedMyLife's Groups
AlopeciaDestroyedMyLife's Discussions
Xeljanz (Tofacitinib Citrate): My experience on the trial
Started this discussion. Last reply by Jcortez05 Jan 9. 9531 Replies 55 Likes
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.I thought it would be nice for everyone if I documented my progress on here. Xeljanz is a Jak3…Continue
Tags: xeljanz, trials, treatment, tofacitnib, citrate
Got dumped because of my alopecia
Started this discussion. Last reply by Apple Jan 29, 2020. 42 Replies 1 Like
I had another alopecia episode and my eyebrows fell out again. This has had a dramatic impact on my appearance. I was scared to tell my then girlfriend but eventually plucked up the courage to tell…Continue
I can't take it anymore
Started this discussion. Last reply by Rose Marie' Jul 3, 2014. 6 Replies 0 Likes
I have pretty no hair anywhere my only pride and joy were my eyebrows which grew back after steroid injections 2 years ago with full regrowth in 2 weeks. In the past few months they have all fallen…Continue
Please bring back chatrooms (disappeared with no explanation)
Started this discussion. Last reply by AlopeciaDestroyedMyLife Jul 6, 2014. 3 Replies 3 Likes
Alopecia World please bring back chatrooms there are no alopecia chatrooms anywhere on the internet. Chatrooms are the best support someone can get online as its in real time. Bring them back please.Continue
AlopeciaDestroyedMyLife's Page
Latest Activity
"Anyone ordering Olumiant from Medisellers, Indiamart? Has anyone had it tested to determine if it is the same medical ingredients as what would be given in North America? Can’t afford it in Canada even if I could find a prescriber. Thanks for…"
"Hi, I think some people moved to Facebook. They have an Alopecia group. "
"Happy new year I was wondering what happened to this discussion group.In the last year or so it has dwindled down to less than one reply a month.It was so active in the past not a day went by without multiple comments.Did everyone grow back their…"
"Hi,
Bad news for me. I was just 6 weeks taking the medicine, with an important regrowth, still White hair but I would say around 40-60%. The doctor told me that I was an "early responder".
However, I started to have the symptoms of…"
"They did finally fill the minoxidil but it took a few weeks it was out of stock.Going to Mexico in February going to try and pick up a couple bottles so that won’t keep happening.Djp are you on Olumiant too."
"Why can’t your pharmacy fill the minoxidil. Adding minoxidil was a game changer for me regimen. "
"Hi Joserid any more regrowth on the Olumiant?I can’t tell if it’s working for me I do have about 30 percent hair on my head so can’t see any short white hair yet.Its been exactly 3 months for me.Think my eyebrows are more…"
"Hello from Spain,
I am 44 yrs old and AU from 2016. I have started to take Olumiant 4 mg/day exactly 1 month ago.
In the 3rd week I observed a around 5 hair isolated and 1 week later, I have too many in Head, beard, eyebrowns.
They still are…"
"Hi everyone! I have been taking Xeljanz 15mg for 4 years now, and for the last 6 weeks I’ve had headaches, nearly every day, every time… is there anyone out there that has experienced headaches together with Xeljanz? Maybe it’s…"
"YOU CAN GET MEDS FROM INDIA AT A FRACTION OF A COST, I JUST BOUGHT 6 MONTH SUPPLY FOR $320."
"Hi everyone xeljanz did not work for me and I tried every dose for years.My doctor left for another state during Covid so I had to find a new one.It took me a year to get in with a new doctor and she was great put me on olumiant no problem with…"
"I am curious to know if you have any updates?"
"I have also used Xeljanz and Ilumiant, both were successful.
- my biggest difficulty that I had to overcome was getting insurance to cover it.
during the periods where I couldn’t take it due to insurance issues, I had complete…"
"for my part olumiant is less effective than xeljanz. i am currently taking for 6 months abrocitinib from pfizer 200mg which is the best jak i have taken"
"Yes, it does. Thank you. I am also waiting for the new One to come out. It sounds great."
Profile Information
- Relationship Status:
- Single
- About Me:
- Lost all my hair when I was 18, eyebrows , beard, everything other than some parts on my chest.
I am on the study with the new drug Xeljanz for alopecia.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (16 comments)
- At 5:39am on October 19, 2023,
Arsenalauba said…
Hi everyone! I have been taking Xeljanz 15mg for 4 years now, and for the last 6 weeks I’ve had headaches, nearly every day, every time… is there anyone out there that has experienced headaches together with Xeljanz? Maybe it’s weird that I got this symptom 4 years after I started taking it, but as I understand, headaches are one of the main symptoms. Please help me with some more information. Thanks 🙏
- At 6:33pm on October 12, 2023,
Apple said…
YOU CAN GET MEDS FROM INDIA AT A FRACTION OF A COST, I JUST BOUGHT 6 MONTH SUPPLY FOR $320.
- At 9:51am on September 28, 2019,
To Alopeciadestroyedmylife: How are you doing now? Are you still on xeljanz?
- At 2:04pm on August 21, 2018,
MindOverMatter said…
Hi AlopeciaDestroyedMyLife, I have sent you a friend request...I hope you don't mind.. but you seem to be the mind all knowledge on this forum when it come to taking Xeljanz... I like you am from the UK and at the minute there is no one else I can turn to for some advice or help with taking Xeljanz in the UK..!
- At 6:45am on April 19, 2017,
Hi brother,
I live in Uk, Manchester, and have been under Xeljanz through dr. king
for more than a year now. Do you have a mobile phone, I would like
to talk to you about Xeljanz in UK, apparently it is available for
compassionate use. Have you heard about that?
Plese if possible send me a whatsapp message at the +393286266248.
very appreciated
- At 9:22pm on May 20, 2016,
- My daughter is on Xeljanz oral for 5 months. She is experiencing rapid regrowth since month 4 and while patchy, hair is dark and soft and her own healthy hair regrowth. The doctor is blown away with the progress.
This truly is a miracle if only for the hope that we really needed to have that one day this could be reversed.
- At 2:17pm on January 26, 2016, Toxicmosquitoaf gave AlopeciaDestroyedMyLife a gift…
- At 3:29pm on December 20, 2015,
Hi ADML
I hope your progress is being maintained.
I'm new to this forum but I have been monitoring it since you started it. I have to commend you on your work. You have encouraged thousands based on the over 225,000 views.
You could even say that you are a pioneer. I never suspected you of being a conman because of the press, Pfizer are a multi billion dollar company who do not need crooks selling snake oil and you have been a member for quite a while prior.
What got me hooked was the letter you received from Pfizer confirming Turkey Xeljanz is genuine and affordable.
If you accept me as friend I hope you would be able to further discuss how I could obtain Xeljanz in Turkey.
Whether you accept me as a friend or not you should be truly proud of your work.
- At 2:37am on October 1, 2015,
- This is Naresh from India. How can I get tofacitinib citrate. Please reply me
- At 7:38pm on July 6, 2015,
© 2024 Created by Alopecia World.
Powered by
