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Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (5 comments)

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At 3:37pm on December 19, 2017, Nancy79 said…

I have been on Dutasteride 0.5mg for 4 years with no side effects. It stopped my attack in its tracks and no new follicles became inflamed. The original inflamed follicles are very slowly still falling out four years later. I am in burn out right now.

At 9:25pm on December 1, 2015, Lauren said…

Hi Littlesadeyes,

I saw your story when reading through comments and wanted to write because I too am young like you and was just diagnosed. Not quite as young as I am 31 but still feel too young to be losing my hair. our stories sound similar too, I felt my hairline had changed but it was not enough for anyone else to notice so everyone, family, drs, etc. told me that basically it was just in my head and if there was any due to the stress of my husband walking out on me out of the blue.  Anyways, a year and tons of obsessing later a therapist felt that I had Body dysmorphyic disorder and then what do you know my biopsy came back as FFA.  I feel that it has worsened around the area where I had the biopsy but still my family says its not noticeable.  I don't ever wear my hair pulled back.  Mine recession is almost opposite of yours as I never used to have widows peak but I do now because one side has receded so much!!I also wanted to tell you that even though you notice it and it really bothers you, you still look great and it really does look like a normal hairline for now. I've decided that's what I have to tell myself since nobody else seems to notice and tells me that everyone has a different hairline.  It just doesn't look normal to us because it is definitely different than how we've always seen ourselves and I think that is the hardest thing to adjust to. Seeing yourself differently than how you know you looked.  Stay positive. If it gets bad enough there are solutions, not ones we want to have to deal with but just a reality none the less. Definitely helps to have a website such as this where people are going through the same thing. Hope to hear from you about how you are doing.

At 6:39pm on November 17, 2015, Jen said…

Hi Littlesadeyes,

How are you doing?  I have not seen any posts from you lately. I hope that you are feeling well.


At 10:33pm on July 5, 2015, Jen said…

Hi Littlesadeyes,

I am so sorry that this is happening to you. I do believe that this disease has something to do with menopause.  Your hair loss looks different from mine so I am wondering if it really is ffa. You say that there are no white shiny spots where the hair was before and also it does not seem like you have spots. If it is not the scarring type then your hair may grow back.  I had this happen when I was in my 20's. I am now 59.

At 10:15pm on July 5, 2015, Jen said…

Hello Littlesadeyes,

I have had ffa for 4 years and my hair loss consists of bald spots about 1.5 inches in diameter. Lots of bald spots on the hairline that have joined together making a complete band of hairless scalp.  Yours seems a little different. It seems like more diffuse loss along the hairline. I am using some dark eye shadow along the hairline then I pull the hair over the affected area. I am wearing my hair curly now.  It seems very unusual that someone so young is suffering from  this condition.  



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