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About Me:: Diagnosed in 2012 with frontal fibrosing alopecia. In 2007 my Mom passed after 8 month illness and in 2011 my husband passed after a 3.5 year illness. Both had cancer and I was the primary caregiver for my husband secondary caregiver for Mom. I noticed thinning hairline in 12/2010 but did not pay much attention since I was busy with my husband. Two months after my husband's death, I noticed my first bald spot on the hairline. I went to the derm who did the injections and I developed more bald spots around the temple to the ears. I am frustrated with that and have decided to stop the treatment since I do not want to lose more. I know that nothing will stop the hair from falling and so I am concentrating on getting hairpieces for the bald areas. If anyone has been successful with this please let me know.

Do you have alopecia?: Scarring alopecia

Are you age 18 or older?: Yes - I am 18 or older

Comment Wall (9 comments)

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At 8:51pm on January 5, 2016, Wyobalance said…: I'm glad your hair loss has settled! Plus, we are great camouflager's :)

At 11:12pm on January 4, 2016, Wyobalance said…: Yep, still gradually losing hair. I really don't pay attention, until I need to use more Covier camouflage, and then needed to add another smaller piece. It's slow, thankfully, but I feel the need to be prepared for the next step. I'm glad your curly hair is still doing its job. We know where our original hairline was. Others don't and if it's not too far along, they just think we are normal.

At 3:14pm on January 4, 2016, Wyobalance said…: Hi Jen, I was wondering if you have gotten around to finding a hair piece that fits your needs. I'm still taping mine in. I now need 2 instead of 1 above my forehead :( But they still work well for me.

Thinking of you, and Happy New Year - Wyobalance

At 4:58pm on November 17, 2015, Wyobalance said…: Hi Jen, I'm in Nashville at the moment as my daughter will be having surgery. I am available by phone after Thanksgiving 307-635-7898 (mountain time). You are also welcome to email me at whitepov@gmail.com. I look forward to talking to you!

At 6:53am on July 6, 2015, LittleSadEyes said…: Jen did you develop ffa in your 20s? Just seems like the pattern of loss fits and I also am losing lashes, brows and I have noticed arm hair. U hairline has receded so much. I get such an itchy scalp and sore eyelids. It just fits :(

At 10:27pm on July 5, 2015, LittleSadEyes said…: Hi Jen

I am young yes but I am also going Ito early menopause.. I think maybe there is some hormonal relationship between the disease and menopause

At 5:44pm on November 2, 2013, LeslieAnn Butler said…: Hello and welcome, Jen!

How are you today?

Leslie Ann

At 9:10pm on October 21, 2013, Veronica (Renata) said…: Hi Jen it sounds like we have a lot in common, I would live to talk to you if you want to send me an email at renatamazzaferro@rogers.com and I will give you my number

At 12:59pm on October 19, 2013, SPIKE said…: Hi Jen. Left you a private chat.

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