"Hi Kevin
I’ve had limited success with tofacitinib and moved to 4mg beacon barcitinib. Not sure Whst different it’s making. It’s staying/ perhaps plateaued and not falling out. Wondering if beacon is weaker ?…"
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"Hi Kevin. I took tofacitinix from beacon with limited success and have switched to baricitinix from beacon and take 4 mg per day. Can I check do you take 11 mg per day ? Thanks margaret "
"Hi Linda. Very pleased for you. Can I ask where you live? I’m using tofacitinib off label and live in the U.K. "
"Hi Anna. Just read ruxolitinib. I’ll try xeljanz for bit longer then maybe consider barcitinib if no response. Thank God for being able to access Bangladeshi pharmacology "
"Hi Anna
i started oral xeljanz now on 20 mg Beacon so not full strength. I have very light vellus on my scalp. And some eyebrows and eyelashes. Don’t know which way it will go but I’ll continue to take it. Where…"
"Hi. Anna.
It’s such an interesting/ exciting time. I can remember when I lost my hair I googled alopecia and a nothing came up it. It’s been so heartening to see the explosion of treatment especially when you have kids…"
"Hi Anna.
Mum surprised your dermatologist agreed to such high levels of tofacitinib?"
"Hi thanks for your advice . I do have some faint but there eyelash/ eyebrow growth and some vellus on my head after using 20 mg generic xeljanz for around 4 months and will start minoxidil on the vellus
i have a dermatologist i…"
"Hi anna
do you mind me asking how long you have had alopecia. I read on another thread that if the onset of the disease is > 10 years ( As is the case with me unfortunately) then the likelihood of xeljanz being effective is much reduced.…"
"Hi superduper
ive been on xeljanz for 4
months now. 20 mg with faint vellus. Disppontomg to hear that chances of regrowth over 10 years is low as I’ve had this for 11 years. Is there some research that indicates this or I suppose…"
"Hi Frida. Try well put. I think I probably should have found someone to talk to over the years. This site and posts like yours are a big help / support "
"Carlie. Very very well done you ! Your hair is absolutely gorgeous. What an absolute pleasure to read your post. ! I lost my hair 12 years ago when I was 39 and there was absolutely nothing online re treatment for alopecia.…"
"Nor 75. Whst is the drug if it’s not Xeljanz ? "
"Hi Kate. How are you getting on ? Did you get sorted with a Dermatologist? "
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- Relationship Status:
- Married
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (1 comment)
- At 4:48pm on October 12, 2016,
Lucy said…
- Hi there was looking for someone nearby to chat with about alopecia the ups n downs
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