magmck
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  • glasgow
  • United Kingdom
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Latest Activity

magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kevin  I’ve had limited success with tofacitinib and moved to 4mg beacon barcitinib.  Not sure Whst different it’s making. It’s staying/ perhaps plateaued and not falling out.  Wondering if beacon is weaker ?…"
Mar 26
magmck replied to NicoleT's discussion Xeljanz from India
"Hi Kevin. I took tofacitinix from beacon with limited success and have switched to baricitinix from beacon and take 4 mg per day.  Can I check do you take 11 mg per day ? Thanks margaret "
Feb 11
magmck replied to Jim In Cali's discussion Pfizer Trial
"Hi Linda.  Very pleased for you.  Can I ask where you live? I’m using tofacitinib off label and live in the U.K.  "
Apr 12, 2021
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Thank you x"
Feb 13, 2020
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi Anna.  Just read ruxolitinib.   I’ll try xeljanz for bit longer then maybe consider barcitinib if no response.  Thank God for being able to access Bangladeshi pharmacology "
Feb 8, 2020
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi Anna  i started oral xeljanz  now on 20 mg Beacon so not full strength. I have very light vellus on my scalp. And some eyebrows and eyelashes.  Don’t know which way it will go but I’ll continue to take it.  Where…"
Feb 8, 2020
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi. Anna.   It’s such an interesting/ exciting time. I can remember when I lost my hair I googled alopecia and  a nothing came up it.  It’s been so heartening to see the explosion of treatment especially when you have kids…"
Feb 7, 2020
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi Anna.  Mum surprised your dermatologist agreed to such high levels of tofacitinib?"
Feb 5, 2020
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi thanks for your advice .  I do have some faint but there eyelash/ eyebrow growth and some vellus on my head after using 20 mg generic xeljanz for around 4 months and will start  minoxidil on the vellus  i have a dermatologist i…"
Feb 4, 2020
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi anna do you mind me asking how long you have had alopecia.  I read on another thread that if the onset of the disease is > 10 years ( As is the case with me unfortunately) then the likelihood of xeljanz being effective is much reduced.…"
Jan 7, 2020
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi superduper ive been on xeljanz for 4 months now. 20 mg with faint vellus.  Disppontomg to hear that chances of regrowth over 10 years is low as I’ve had this for 11 years. Is there some research that indicates this or I suppose…"
Jan 7, 2020
magmck and Kate are now friends
Jan 2, 2020
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida.   Try well put.  I think I probably should have found someone to talk to over the years.  This site and posts like yours are a big help / support "
Dec 12, 2019
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Carlie.  Very very well done you !   Your hair is absolutely gorgeous.  What an absolute pleasure to read your post.  ! I lost my hair 12 years ago when I was 39 and there was absolutely nothing online re treatment for alopecia.…"
Nov 21, 2019
magmck replied to Sj0909986's discussion Treatments coming up
"Nor 75. Whst is the drug if it’s not Xeljanz ? "
Nov 3, 2019
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kate. How are you getting on ? Did you get sorted with a Dermatologist? "
Nov 1, 2019

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 4:48pm on October 12, 2016, Lucy said…
Hi there was looking for someone nearby to chat with about alopecia the ups n downs
 
 
 

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