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Sara 39, Female Annapolis, Maryland United States: Like

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Relationship Status: Single

About Me: I was diagnosed with "alopecia areata totalis" in August 2007 at Johns Hopkins.

I had super long hair, and lost about 95% of it. However, after tons of Anthralin, chinese herbs, acupuncture...and who knows what else...my hair grew in very thick! Hurray.

Things are going much better for me now, and I hope to provide support and friendship to others who have or have had alopecia.

I was very lucky to have very understanding friends and family, but I know not everyone is as fortunate.

Send me a message, I'll be there!

**update** - I keep going through bouts of alopecia, but it has never been as bad as it was back in 2007. Every few months I'll get some bald spots, use my anthralin, and then some regrowth happens. My doctors and acupuncturist can't figure out what the cause is, just that anthralin tends to work on it, as long as I keep to it. Which is very taxing! Ha.

Do you have alopecia? (Choose appropriately): Alopecia totalis

Are you age 18 or older?: Yes - I am 18 or older

Comment Wall (30 comments)

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At 5:31pm on July 14, 2011, Adrian Theopulos said…: How big of a part do you think the acupuncture played in your hair regrowth?

At 12:44pm on July 4, 2010, Kimberly said…: Hello. Can you tell me details about the cream? I've been doing the injections, but they are no longer working. Would the cream be my next step? What are the side effects?

At 9:39pm on July 2, 2009, janice lightsey said…: hi sara i just wanted to stop in and wish you an awesome 4th of july hope you have a great weekend xoxox..jlightsey

At 7:49pm on June 17, 2008, Drew said…: So I've been going to the acupuncturist for a while now and today she finally used what you were talking about the 5-star hammer, only mine has 7 and I have to do it myself once a day. But like you said, anything to make it work. Hope things are going good with you.

At 1:25pm on May 30, 2008, LeslieAnn Butler said…: Oh, I'm so glad you're feeling better about things.
This is a great place for support.
I've had AU 20 years...not much support back then! That I knew of, anyway!
LeslieAnn

At 4:24pm on May 19, 2008, Drew said…: Thank you for all your help! My accupuncturist said she wants to focus on the kidneys and their energy, so at least I know I'm on a similar path that you were on. The 5-star hammer sounds more like torture than treatment, but right now I'm getting Gua Sha which is basically taking a dull wooden knife and scraping my head until it turns a redish color to try and draw blood to the area, I had to sign a bunch of waivers saying that is intended to cause bruises and all this other stuff. But if it helps then I'm willing to try it. If all else fails going to an accupuncturist will relax me and put me at ease for a little while which with this disease I welcome. Thanks again for all your help, I'll keep you updated.

At 6:55pm on May 18, 2008, Drew said…: Hey Sara, I was browsing through the forums and searched for acupuncture since I have just began going to have that done. I was wondering when you went (since it worked) what areas and energies they focused on. Thanks for your help

-drew

At 12:02pm on May 5, 2008, Jill Newman said…: Hey i'm Jill your story makes me very hopeful, i'm very happy for you that all your hair is growing back .. THICK!! i wish mine would :( i dont have alopecia totalis, only areata, but sometimes i feel like that is worse because i feel so in between because right now i am on the verge of wondering if i want a wig or if i want to keep gruelingly hiding my spots and styling my hair perfectly so no one can see it.

I would love to hear about the chinese herbs you used and what Anthralin is. I tried acupuncture about 3 years ago and never really helped much.

Lastly, you mentioned in your about me that you felt so bad about yourself when things were bad, and i'm kind of in that position right now, i would love to just chat about things and how you dealt with everything back then

At 5:27pm on April 8, 2008, Matt said…: Yeah, it's not a great movie, but it is quite affecting when you watch it through the lens of alopecia.

The dude's freaky abilities (Jeff Goldbloom: "He is electrolysis." -gasp!) take a back seat when you consider that his lack of hair is more than enough to account for his extreme introversion.

At 1:14am on March 17, 2008, Dotty said…: It's national care week...
time to send messages to all your friends, telling them how much you care about them.

Without friends
you would be missing out on a lot.

A friend should be radical;

They should love you when you're unlovable,

Hug you when you're unhuggable,

And bear you when you're unbearable.

A friend should be fanatical;

They should cheer when the whole world boos,

Dance when you get good news,

And cry when you cry.

But most of all, a friend should be mathematical,

They should multiply the joy, Divide the sorrow,

Subtract the past, And add to tomorrow,

Calculate the need deep within your heart,

And always be bigger than the sum of all their parts.

I care about you.
Have a nice day, and
I'm glad we are friends!!! Delete Comment

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