Smitty
  • Female
  • Addison, IL
  • United States
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Smitty replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Have you ever had a prednisone pulse?  My dermatologist had me take prednisone for the initial month of getting onto methotrexate a few years back. She said that it would stop the loss and initial regrowth and then the other medicine would have…"
Jun 9
Smitty replied to wfz's discussion vaccination and alopecia areata
"Hi guys, I have had both doses of Moderna vaccine and to date, no shedding or any difference from pre-Covid vaccination.  I am one month out from second dose. Just wanted to bring hope to all of you!"
May 2
Smitty replied to wfz's discussion vaccination and alopecia areata
"Just got my second dose of Moderna yesterday.  My are is very sore and achy.  About 10 hours after my vaccine, my body was feeling very achy (flu like symptoms) and this morning, I was very fatigued. I had trouble sleeping last night and…"
Apr 3
Smitty replied to wfz's discussion vaccination and alopecia areata
"Thanks so much for your reply.  I truly appreciate it. :)"
Apr 2
Smitty replied to wfz's discussion vaccination and alopecia areata
"Hi Nat, Did you pause tofa at all after each vaccine?  I am hearing some say they withheld tofa for a few days afterwards. Just wondering your thoughts. Thanks!"
Apr 2
Smitty replied to Patchylatchy's discussion How soon after your first spot did it take to become AU?
"Kimmy68, I noticed my hair "stabilizing" in terms of shedding after about 2 months of being on Tofacinix. I believe if I were to stop taking it, all of my hair would fall out again.  I am doing okay on this drug with no side effects…"
Dec 15, 2020
Smitty replied to Patchylatchy's discussion How soon after your first spot did it take to become AU?
"I had my first two patches (that I found) while I was on a cruise ship in the caribbean.  Within 3 months I was AU.  Worst summer of my life for sure.  However, I have a full head of hair now and most of my body hair with Tofacinix…"
Dec 8, 2020
Smitty replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Joja101, I just received an email from Mouree stating that they had trouble with their server.  She is accepting orders for Tofacinix now.  You might want to reach again. Be well!!"
Nov 18, 2020
Smitty replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nat, Do you take fish oil pills each day?  I take 2 Nordic Naturals (690 mg.) pills each day and it keeps my HDL at a great level. Be well. :)"
Nov 16, 2020
Smitty replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Joja, I reached out to Mouree two weeks ago wanting to place another order as my last order took over 3 months to receive.  This time, I want to be pre-emptive and allow "waiting time" if it the order is delayed.  I have not…"
Nov 16, 2020
Smitty replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nat and Nicole, My total cholesterol was 140 prior tofacinix.  Now it is 210.  Quite a difference, yet I have not been restricting my diet.  I am going to try to put more fiber in my diet with more salads and fruit plus drinking…"
Nov 15, 2020
Smitty replied to Cow's discussion Is it possible that Alopecia Areata could be caused by fake jewelry?
"I am also allergic to nickel.  I found out when I was 12 years old and got me ears pierced.  However, I did not get alopecia until I was 41.  It would be interesting to see how many of us on this forum are allergic to nickel.…"
Sep 18, 2020
Smitty replied to NicoleT's discussion Xeljanz from India
"I ordered mine at the end of March.  Mouree told me that they would be processing orders soon and EMS was working.  I have reached out to Mouree this week but have not gotten any email back.  I am confused as Mouree usually emails me…"
Jul 24, 2020
singh and Smitty are now friends
Jul 7, 2020
Smitty replied to LJBMD's discussion Shipments from Beacon
"Carlie, No, it was EMS but this was last spring (2019).  I placed an order at the end of March 2020 and I am still waiting for it to be shipped from Beacon.  I will be out of medicine very shortly. "
Jul 6, 2020
Smitty replied to NicoleT's discussion Xeljanz from India
"Hi Carlie, Is your source from Beacon or another pharmacy? Thanks, Smitty"
Jun 3, 2020

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Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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