Susan S
  • Female
  • West New York, NJ
  • United States
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Susan S's Discussions

She says there's a cure

Started this discussion. Last reply by Gloria S. Mar 7, 2012. 13 Replies

I found this on an Alopecia Q & A in the NYTimes, just wondering if any of you have heard of it or tried it. Thanks, Susan…Continue

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Latest Activity

Susan S replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"So it seems major insurance companies are run by men for men. No surprise, just like the rest of the world, women are second class citizens. Yes, I know men have alopecia too but I believe a bald man is nothing near to the emotional stress of a…"
Jan 24, 2020
Susan S replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"Oy, so far no luck. But I'll keep trying."
Jan 21, 2020
Susan S replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"I will. Hopefully it will work for me too."
Jan 4, 2020
Susan S replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"I’ll post again in 6 weeks, although if I have growth I won't know if it's from the med or the shots. I've had this for 20 years and don't really know if anything really works for me. I think it comes and goes when it wants…"
Jan 4, 2020
Susan S replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"I just came from a new dermatologist. As I posted earlier I had been using Clobetasol Proponate for my AA, which comes and goes. He said to stop the Clobetsol, gave me shots, and said I could try Xeljanz which I had never heard of until I read…"
Jan 3, 2020
Susan S replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"That's awful! What is the world coming to? I do not use Xeljanz but do use Clobetasol Propionate Cream for my alopecia ariata which is $hundreds, even with insurance. I also use Elequis for a different condition which is $500 a month with…"
Dec 31, 2019

Profile Information

Relationship Status:
Married
About Me:
I'm a 62 year old woman who, since my alopecia areata got out of control this month, is acting like a 2 year old... I can't stop crying, I don't know what to do first, who I can talk to, who knows what I'm going through. Friends think I have a fatal disease I'm so upset... I know this won't kill me but I feel I might just die of embarrassment. This website seems like a great place to start.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (5 comments)

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At 1:30pm on November 12, 2009, Husband of woman with Alopecia said…
Thank you Susan, the link you gave was very helpful!
At 3:06pm on September 24, 2009, LeslieAnn Butler said…
Hello and welcome, Susan,
I know how hard alopecia can be; I have had it for about 30 years. Let me know if you need help or support. One thing that you might be interested in is my book, written for women, called "If Your Hair Falls Out, Keep Dancing!" (It just won two national awards!) It has a lot of good info in it, it can answer many questions, and it's a fun read, too. You can find out more on my page. It's available on Amazon.com. Let me know if there's anything else I can do! I am here to help.
LeslieAnn
At 7:41pm on September 21, 2009, Ben Lainhart said…
HI Susan! Welcome to Alopecia World!
At 11:57am on September 18, 2009, Cheryl, Co-founder said…
Hi Susan, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder
At 5:38pm on September 15, 2009, Roger said…
Welcome.

Roger.
 
 
 

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