Tamera
  • Female
  • Trail, MN
  • United States
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Tamera's Friends

  • Tamara
  • Hope
  • Angie
  • Frank Pratt
  • Nancy and Owen O'Brien
  • Joy
  • Jessica
  • Holly
  • LeslieAnn Butler
  • Mary

Tamera's Discussions

Looking for feedback on Xeljanz!!

Started Jan 28, 2017 0 Replies

Good Afternoon All,I am wondering what others that use Xeljanz  have experienced as far as side effects go??  I know medications affect everyone differently....but I'm still curious!  I have had…Continue

Tags: Xeljanz

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Tamera's Page

Latest Activity

Tamera replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"My hair status when I started Xeljanz was 60% bald on my head....no eyelashes &very sparse eyebrows no other body hair.  The regrowth took about 4 months into the Xeljanz.  I was 37 when I started Xeljanz.  I did continue my…"
Jan 8, 2020
Tamera replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Is this question directed to me?"
Jan 6, 2020
Tamera replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"I took just Xeljanz for 1 1/2 years without the Allegra and I still had to get the steroid injections every month.  I switched dermatologists in Dec 2017, the first thing my new derm Dr told me to try was the Allegra with the 2x daily…"
Jan 6, 2020
Tamera replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"It has something to do with tricking your body's immune response. My Dr said it had to be Allegra, I take a generic of Allegra daily."
Jan 6, 2020
Tamera replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"I take xeljanz 5mg twice daily along with 1 Allegra 24 he allergy tablet and I have a full head of hair and have since pairing the Allegra with the Xeljanz 2 years ago. They work well together for me, I also have eye lashes, eye brows, some leg and…"
Jan 4, 2020

Profile Information

Relationship Status:
Married
About Me:
I am a happily married mother of three wonderful kids... two boys and one girl. We live on a farm in rural Minnesota where we have a horses, donkeys and beef steers. I have had alopecia in a variety of forms for 25 years. I am looking forward to being able to communicate with others that understand the hold that it can have on your life. I am also looking for new ideas on how to deal with the ongoing effects that it has on me and my family.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Tamera's Blog

Day 1 with squaric acid treatment

Posted on May 29, 2013 at 9:30pm 1 Comment

Today is day one, May 29th 2013. I am to apply it every night to my head for 2 weeks and then every other night following. I sure hope this works, I would love to have something work! I try to be tuff, keep a stiff upper lip and say I don't care that I have no hair, but I do.... I want to have something....even if it is short I don't mind. I guess time will tell, wish me luck!

Alopecia...its effects on my kids

Posted on February 20, 2011 at 3:00pm 4 Comments

I have had AA for 25 years, and in the last 9 years it has progressed to varying forms of AT and AU. I have always had a life with Alopecia, it has NEVER ruled my life, until now. I am in a rutt, I worry nonstop about the effect that it has on my husband, my kids and my life. My husband came back from his second deployment in Dec 10' I had enough hair to cover, a little hair glue here....a little hair spray there.... you know I was making it work. After Christmas I gave up on… Continue

New hair

Posted on January 16, 2011 at 8:33pm 1 Comment

Well I have new hair!! My sis helped me on Thurs bond my new lace wig to my head. It is so odd to look in the mirror and see me with hair....lots and lots of hair! So far so good, it is different to have something on when I go to sleep or workout, I have wore regular wigs off and on over the last 15 years, but this is the first bonded one. My kids and super pumped about me going swimming with them or down a waterslide....I can't wait. I have spent way too much time on the sidelines.

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At 4:07pm on October 17, 2012, Tamara said…

Thank you so much! I am actually more comfortable in public with my shaved head than with a wig. I just feel like everyone should be free to be who they are, and not feel like they should hide their real self. The blonde is just because it hides my bald spots better...and I just like being a blonde :)

At 8:48am on January 18, 2011, Jessica said…
ok so the hair in your profile pic is a wig?. or do you have a pic would love to see your lace wig. I really want to try one for the summer. i'm right with ya i have been sitting out watching for way too long. what do you bond with? glue ?tape?
At 11:10pm on January 3, 2011, LeslieAnn Butler said…
Hello and welcome, Tamera!
How are you today?
Leslie Ann
 
 
 

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