TurboK
  • Pound, WI
  • United States
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TurboK's Discussions

Thymosin Alpha 1 was a complete failure for me

Started this discussion. Last reply by Max Jan 20. 4 Replies

I had gotten on a steady routine and was getting the Thymosin Alpha 1 shots twice a week as recommended by the manufacturer. Things looked promising, because I ended up developing peach fuzz on my…Continue

Thymosin Alpha 1 Update

Started Feb 13, 2020 0 Replies

Well, I have finally gotten into a rhythm and have been going to my immunologists office twice a week to get the Thymosin Alpha 1 shots. I had to set up a schedule and go in to get them done, because…Continue

Thymosin Alpha 1

Started this discussion. Last reply by TurboK Jan 23, 2020. 5 Replies

I have suffered with AU for far too long and I have kicked too many General Practitioners to count to the curb, because they refuse to help  They all insisted that I learn to enjoy having AU. None of…Continue

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Latest Activity

Adnan Shah commented on TurboK's blog post You're One Of Them
"with Alopecia we have to let go many comments and learn to be happy what we are and what we have. This is the only way we can live peacefully. responding to each comments and some times actions is hard and will bring negativity in…"
Aug 10
OsmanTheGreat commented on TurboK's blog post You're One Of Them
"Cheers, mate.I hope you will be fine. Let me hug you, dear."
Aug 7
Marie commented on TurboK's blog post You're One Of Them
"I truly hope that you don't let one woman's comment take up too much space in your heart and mind. I've had more conversations than I can count over the past 8 years about the condition of my scalp; so far the record is six in one…"
Aug 6
Marie liked TurboK's blog post You're One Of Them
Aug 6
Larry Barbee commented on TurboK's blog post You're One Of Them
"I think you have every right to be upset.  Recently I was in a chat room discussing who has a harder time dealing, coping with hair loss, men or women? I won't go over that now, but the one difference that I've noticed is that for…"
Aug 6
dreamscometrue commented on TurboK's blog post You're One Of Them
"I'll be honest; I know me, and I'm a reactive me.  Those that can dish it out better be ready to take it.  She was looking for company called Misery, and she didnt find it in you and your condition.  She was pissed that you…"
Aug 6
dreamscometrue liked TurboK's blog post You're One Of Them
Aug 6
Paulina commented on TurboK's blog post You're One Of Them
"*said"
Aug 6
Paulina commented on TurboK's blog post You're One Of Them
"this same thing happened to me at the grocery store months ago. A woman with short-cropped hair chased me down even though I was clearly evading her. When she finally got to me she say “breast cancer?” Obviously  she was desperate…"
Aug 6
Paulina commented on TurboK's blog post You're One Of Them
"I don’t even tell people what I have anymore when cancer patients ask or anyone else- I just say no I don’t have cancer and smile and walk away- that’s your choice to engage or not to. But I find it best to not expend the emotional…"
Aug 6
Danielle Christine Moreau commented on TurboK's blog post You're One Of Them
" I work at a grocery store and people think because I have no hair, I have cancer. I've also heard the response "Oh. You're one of them" response to which I calmly replied "Alopecia is a disease too." She was…"
Aug 6
Danielle Christine Moreau liked TurboK's blog post You're One Of Them
Aug 6
Debbi Fuller commented on TurboK's blog post You're One Of Them
"Don't let it bother you.  She is obviously going through something life-threatening and she has projected her fear onto you.  Feel sorry for her and wish her the best, and let it go.  She only meant that you are one of the people…"
Aug 6
Cheryl, Co-founder commented on TurboK's blog post You're One Of Them
"One of them? Wow.  Wonder what she meant by that? "
Aug 4
TurboK posted a blog post

You're One Of Them

I was at Hobby Lobby a couple months ago when a woman came up to me and asked how my chemo treatments were going. I was wearing a ball cap. When I looked at her, I saw that she was wearing a bandana and must have been going through chemo herself.When I explained that I suffered from Alopecia Universalis, she looked me dead in the eye and said, "Oh, you're one of them," and walked away.Now, I have been mistaken for having cancer and going through chemo many times, but it has always been by…See More
Jul 7
TurboK commented on Cheryl, Co-founder's blog post FDA Approves New Drug, Olumiant, for Alopecia Areata
"I would try it, but I want a permanent cure, Besides, my primary care doctor is already pissed off that I am seeing a specialist and am currently taking LDN (Low Dose Naltrexone). She is one of those that believes that if God gives you an autoimmune…"
Jun 18

Profile Information

Relationship Status:
Single
About Me:
It has been about 13 years since I went AU. I suffered from bouts of AA, but the shots worked, and it would go away for about 5 years. The last time, nothing worked, and I lost all my hair in a matter of 3 weeks. Shortly after going AU, I developed Psoriasis, which I have on my head as well as on other parts of my body, so I have never been without anything kind of wig or cap. I have never seen myself in the mirror without something on my head, because just the thought of it gives me a gag reflex.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

TurboK's Blog

You're One Of Them

Posted on July 5, 2022 at 1:18am 11 Comments

I was at Hobby Lobby a couple months ago when a woman came up to me and asked how my chemo treatments were going. I was wearing a ball cap. When I looked at her, I saw that she was wearing a bandana and must have been going through chemo herself.

When I explained that I suffered from Alopecia Universalis, she looked me dead in the eye and said, "Oh, you're one of them," and walked away.

Now, I have been mistaken for having cancer and going through chemo many times, but it has…

Continue

Why do I fight for a cure?

Posted on March 7, 2020 at 12:35am 16 Comments

I have been AU for almost 15 years. I lost every hair on my body over a period of three weeks, and in the process, I lost almost everything. I lost my business because people refused to do business with me. I lost my day job because I no longer had a "professional appearance." I lost the vast majority of my family and friends, because no one wanted to be seen with me. I was told never to come back to the church I was attending because they thought it was contagious.

I fight…

Continue

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