Started this discussion. Last reply by Vladon Apr 14. 5 Replies 0 Likes
I had gotten on a steady routine and was getting the Thymosin Alpha 1 shots twice a week as recommended by the manufacturer. Things looked promising, because I ended up developing peach fuzz on my…Continue
Started Feb 13, 2020 0 Replies 0 Likes
Well, I have finally gotten into a rhythm and have been going to my immunologists office twice a week to get the Thymosin Alpha 1 shots. I had to set up a schedule and go in to get them done, because…Continue
Started this discussion. Last reply by TurboK Jan 23, 2020. 5 Replies 0 Likes
I have suffered with AU for far too long and I have kicked too many General Practitioners to count to the curb, because they refuse to help They all insisted that I learn to enjoy having AU. None of…Continue
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Posted on July 5, 2022 at 1:18am 11 Comments 3 Likes
I was at Hobby Lobby a couple months ago when a woman came up to me and asked how my chemo treatments were going. I was wearing a ball cap. When I looked at her, I saw that she was wearing a bandana and must have been going through chemo herself.
When I explained that I suffered from Alopecia Universalis, she looked me dead in the eye and said, "Oh, you're one of them," and walked away.
Now, I have been mistaken for having cancer and going through chemo many times, but it has…Continue
Posted on March 7, 2020 at 12:35am 16 Comments 1 Like
I have been AU for almost 15 years. I lost every hair on my body over a period of three weeks, and in the process, I lost almost everything. I lost my business because people refused to do business with me. I lost my day job because I no longer had a "professional appearance." I lost the vast majority of my family and friends, because no one wanted to be seen with me. I was told never to come back to the church I was attending because they thought it was contagious.