• Pound, WI
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TurboK's Discussions

Thymosin Alpha 1 was a complete failure for me

Started this discussion. Last reply by Max Jan 20. 4 Replies

I had gotten on a steady routine and was getting the Thymosin Alpha 1 shots twice a week as recommended by the manufacturer. Things looked promising, because I ended up developing peach fuzz on my…Continue

Thymosin Alpha 1 Update

Started Feb 13, 2020 0 Replies

Well, I have finally gotten into a rhythm and have been going to my immunologists office twice a week to get the Thymosin Alpha 1 shots. I had to set up a schedule and go in to get them done, because…Continue

Thymosin Alpha 1

Started this discussion. Last reply by TurboK Jan 23, 2020. 5 Replies

I have suffered with AU for far too long and I have kicked too many General Practitioners to count to the curb, because they refuse to help  They all insisted that I learn to enjoy having AU. None of…Continue

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Latest Activity

TurboK commented on Cheryl, Co-founder's video

Will Smith Slaps Chris Rock after he jokes about Jada's alopecia

"I would have probably been on Will Smith's side, but I saw a breakdown of the event and he thought the "joke" was hilarious until he saw how it hurt Jada. If he had not laughed, and then took action, I would have more respect for him."
Apr 1
TurboK commented on Cheryl, Co-founder's blog post 12-Year Old Rio Allred Dies by Suicide after being bullied about her Alopecia
"This is horrible. I was bullied mercilessly when I was a child. I didn't have Alopecia at the time, so  can only imagine how much worse it would have been if I had it at the time. I was told that nothing could be done about the bullying,…"
Mar 22
TurboK liked Jackie's video
Mar 22
TurboK replied to ksed5473's discussion AU and hair growth after 8 years
"I had been dealing with AA off an on my whole life, until I went AU in 2005. As opposed to some, AA runs in my mom's family, but so far I am the only one that has gone AU. I am an Asthmatic, and had Psoriasis before going AU. I have since…"
Jan 31
Tatiana commented on TurboK's blog post Why do I fight for a cure?
"Very negative and depressing post. Just accept it and move o . I had alopecia totalis for the past 8 years and deal with it.  My business in cosmetology field is booming, I have more friends than ever, I date couple of people just for fun and…"
Oct 19, 2021
TurboK commented on HarlyQ's blog post Would you do an Alopecia medication study?
"I would do it in a heartbeat. I am sick of having to wear ball caps or wigs all the time.I am working from home full-time now, so I have minimal contact with anyone other than my animals. It was temporary, but I live in WI where the governor wants…"
Feb 28, 2021
wendy commented on TurboK's blog post Why do I fight for a cure?
"Great to read other people  experiences from the AA family. I have been fighting with my hair for over 10 years now, it is now the worst it has ever been. I fight for a cure, to help all of us get through our day to day activities. Most days we…"
Jul 12, 2020
Patricia commented on TurboK's blog post Why do I fight for a cure?
"Buy Tofacitinib There have been 80% recovery.. It is cheap from india and has been tested and is the real thing. Don't suffer like that its heart braking to read. There are a lot of people on this site with excellent results from this…"
Apr 30, 2020
Maurice commented on TurboK's blog post Why do I fight for a cure?
"There is lots of pain associated with this post. You are not hideous. You simply don't accept yourself, understandably so. But it is up to us to deal with those feelings, that's why I don't hide behind a wig. That's why I go out…"
Apr 14, 2020
DaveW commented on TurboK's blog post Why do I fight for a cure?
"It’s been 50 years now for me with AU.  I know people more readily expose their evil side to us.  There are some advantages in that way, though it took along time for me to see them."
Mar 25, 2020
Carma Harper commented on TurboK's blog post Why do I fight for a cure?
"I lost all my hair 3years ago and it was devastating to me. I do understand your frustration!! I have tried several kinds of treatments and nothing has worked so I have learned to get thru it with cute wigs and cute scarves. My family has been great…"
Mar 22, 2020
dreamscometrue commented on TurboK's blog post Why do I fight for a cure?
"@Lola, I have been losing my hair for 39 years, now Im AU.  I still havent lost hope as I've seen some who have fully recovered with many different kinds of treatments.  If you choose to not hold your breath, you have lost hope. …"
Mar 21, 2020
Lola commented on TurboK's blog post Why do I fight for a cure?
"I have been losing  my hair over last 15 years, now I can't go out without a wig. I have hair on half of my head. My hairline starts way behind my ears and I'm all forehead.  I have no eyebrows.  I would like a cure but…"
Mar 21, 2020
Leanna commented on TurboK's blog post Why do I fight for a cure?
"I want to thank you for sharing your story. It meant a lot to know that I am not alone. I’ve had alopecia for over 20yrs., at first I was able to hide but as the years passed I eventually lost all of my hair. It’s hard dealing with the…"
Mar 19, 2020
Renee commented on TurboK's blog post Why do I fight for a cure?
"I have been AU over 30 years now as I was age 12 when it happened.  I know it can be very difficult.  I think we all respond differently to it and maybe go through different phases too.  I was thinking that you would be a great…"
Mar 18, 2020
dreamscometrue commented on TurboK's blog post Why do I fight for a cure?
"I fight because I want the part of myself back that my kids never knew.  I fight because inclusion and diversity are just labels that dont work.  I fight because future generations may not learn compassion from this generation.  I…"
Mar 18, 2020

Profile Information

Relationship Status:
About Me:
It has been about 13 years since I went AU. I suffered from bouts of AA, but the shots worked, and it would go away for about 5 years. The last time, nothing worked, and I lost all my hair in a matter of 3 weeks. Shortly after going AU, I developed Psoriasis, which I have on my head as well as on other parts of my body, so I have never been without anything kind of wig or cap. I have never seen myself in the mirror without something on my head, because just the thought of it gives me a gag reflex.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

TurboK's Blog

Why do I fight for a cure?

Posted on March 7, 2020 at 12:35am 16 Comments

I have been AU for almost 15 years. I lost every hair on my body over a period of three weeks, and in the process, I lost almost everything. I lost my business because people refused to do business with me. I lost my day job because I no longer had a "professional appearance." I lost the vast majority of my family and friends, because no one wanted to be seen with me. I was told never to come back to the church I was attending because they thought it was contagious.

I fight…


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