• Female
  • nsw
  • Australia

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Relationship Status:
About Me:
i hav alopecia totalis i am in year 11 and have had it since kindergarten
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
No - I am not 18 or older

Emily5's Blog

My story

Posted on May 30, 2017 at 5:20am 2 Comments

Hey so my name is Emily im 21 years old have had alopecia totalis since i was 6 started to lose my hair end of kindergarten and my hair dresser started to notice patches it took us months to work out what was going on then we got sent to a dermatologist where i found out i had alopecia we then for many years tried all sorts of treatments and they worked for a bit but always ended up losing it in the end we tried cyclosplorne dcp pednislone and more.

Then one horrible day my doctor said… Continue

Embarrasing times

Posted on August 26, 2013 at 12:30am 9 Comments

So yesterday i was going from class to sit with my group when i went under a tree which i thought was taller then it was and it pulled my wig off it was so embarrassing and i wanted to go and die in a whole i ran past my group and to the toilets and sat in the toilets for the rest of lunch and sent my friend a message to ask if she could bring my bag to my next class but she had gone home sick so i had to go back out and grab my bag which i eventually did but i had waited until lunch was…



Posted on October 17, 2012 at 10:58pm 11 Comments

Hello everyone,

My name is Emily i have had alopecia totalis since kindergarten and am now in year 12. i have a subject that i am doing for my high school certificate the subject is community and family studies and i have to do an independent research project and i am going to do it on alopecia and as a part of this project i need to interview over the internet and or a question air if you would like to take part in this please message me and it is up to you if you won't your own name…


Hello. My name is Emily

Posted on May 2, 2012 at 9:30pm 2 Comments

hi i am new to this i have had alopecia since i was in kindergarten and ma now in year 11 i have tried a few different treatments but none of them have worked for long or they have a had major side effects that if i continued the treatment it cause harm to my body i would love to hear from anyone if they have any ideas of treatments that they know of

Comment Wall (4 comments)

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At 8:28pm on May 6, 2012, LeslieAnn Butler said…

Hello and welcome, Emily!
How are you today?
Leslie Ann

At 3:10am on May 5, 2012, velvet said…

hey thanks for joining my group hope u find it useful xx

At 7:41am on May 3, 2012, Vesna Devcic said…

Hi Emily welcome to AW, hope you enjoy your time on here.
Come and join our Aussie group called Australia Alopecia Areata Foundation (AAAF) to meet and chat with others! We also have a facebook page of the same name and also our website www.aaaf.org.au
Hope to chat soon

At 12:40am on May 3, 2012, Tallgirl said…

Hi! I am a teacher, age 59, with AT.

My AA started at age 10, came and went through school, and then hair grew in from age 20 to late 30s. Then slowly I went to AU. I became AT with a ring of white, wispy hair (shaved off now and then since last summer). Just last week I noticed hair GONE on legs and arms. What's up with THAT, again? College stress? Welcome to this curious world.



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