jessica
  • 50, Female
  • Utica, MI
  • United States
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Jessica's Friends

  • james
  • Ohio
  • Lori Black
  • shuaa
  • Wayne
  • wendyrayburn
  • Carol
  • JeffreySF
  • Cheryl, Co-founder

jessica's Discussions

Born with alopecia

Started this discussion. Last reply by evapeace Jul 14, 2015. 16 Replies

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Relationship Status:
Single
About Me:
I am 34 years old. I was born with alopecia. Unfortunately I still can't except it. I wear a wig. I cannot imagine ever going out the door without it. I saw pictures on this website and I was envious of the courage people have to go without a wig. Not to mention have pictures without. I found myself wishing I had that kind of courage. I have never been too sure what type of alopecia I have. I haven't seen any described as "born with it".
Since I have been on this site I have been having more positive feelings as far as dealing with my Alopecia.





















'
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes

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Comment Wall (17 comments)

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At 1:21am on August 1, 2012, Cheryl, Co-founder said…

Hi Jessica, Alopecians in Michigan will celebrate International Alopecia Day with a late lunch at T.G.I Fridays in Livonia. We will be meeting at 3 PM on August 4th.
Come for lunch, come for dinner, come for an appetizer or just come for coffee and dessert!
Let's Meet!
T.G.I Fridays
20120 Haggerty Road
Livonia, MI 48152-1087

Please RSVP below so that we can make reservations if needed.

http://www.alopeciaworld.com/events/international-alopecia-day-detroit-michigan-2012

Thanks and we really look forward to meeting you!

PS: Please note that this is a dutch treat and everyone is responsible for their own bill!

Thanks,

Cheryl

At 8:35pm on July 28, 2011, Cheryl, Co-founder said…
Hi Jessica, Alopecians in Michigan will celebrate International Alopecia Day (August 6th, 2011) with a late lunch at T.G.I Fridays in Livonia. We will be meeting at 3 PM.

Come for lunch, come for dinner, come for an appetizer or just come for coffee and dessert!

We want to meet you!

T.G.I Fridays
20120 Haggerty Road
Livonia, MI 48152-1087
(734) 464-8443

Please RSVP on the Events page:

http://www.alopeciaworld.com/events/international-alopecia-day-det, so that we can make reservations if needed.

Thanks and we really look forward to meeting you!

TGI Fridays has been kind enough to offer our group a 10% discount on the meals.

PS: Please note that this is a dutch treat and everyone is responsible for their own bill!
At 4:25pm on July 4, 2010, Tallgirl said…
Still waiting for those conference photos and videos, Jeffrey!
At 1:42pm on July 4, 2010, JeffreySF said…
Hi Jessica,

Happy Independence Day!!!

Jeffrey
At 5:34pm on January 13, 2010, jessica said…
Any time I can help. Good Luck!
At 11:08pm on January 12, 2010, Ohio said…
Thanks Jessica, Jack has become very curious about his condition over the last year and that is why I want to pursue it and find out if he has alopecia or a genetic disorder such a form of Ectodermal Dysplasia, which is what his Dr believes to be the case. I have made an appointment with his dermatologist to decide on which direction to take, a byopsy or genetic testing. I can't tell you how much your info has helped me to take that step and make it my goal this year to determine the reason for Jacks condition. Thanks I will keep you posted.
At 8:40pm on January 4, 2010, Ohio said…
Jessica,

Thank you so much for the info. I was not given details about the bisopsy just that it would leave a small scar. I am familiar with the tool that you are refering to. Jack had a skin condition in which they used this tool to remove a few of the areas under his arm that were effected and the scars are extremely small. What were they able to determine from the biopsy? I was informed the longer you have alopecia the harder it would be to determine if you truly have alopecia from a biopsy and that is why genetic testing was also recommended. Since Jack was born with it, I am being told it may produce little to no results. Your comment has caused me to rethink the situation and reconsider. I realize that reagardless of the reason it can not be reversed however it would be great for Jack to understand why he has the condition so that he will know if it is something that he can pass on to his children. I am releaved to find that it is such a common condition after all, to be born with alopecia, apparently much more so then I originally thought. Any additional info you can provide me with is really appreciated it. What I am really curious to know is can it be determined if it is genetic from a biopsy? It has been years since my husband and I considered investigating his condition any further but you have helped me to rethink the situation.
At 10:07pm on January 2, 2010, jessica said…
Hey everybody, I want to thank each and every member of Alopecia World for being so positive and supportive. For almost 35 years of my life I would never have stepped foot out of my front door with out my wig on. However, this year I celebrated Independence Day in my own way. Since Independence Day I have NOT worn a wig. I have changed my look completely. I used to only wear a wig. Now there is no wig. I do wear hats every day, but it is part of my new "LOOK". I actually wear makeup, earrings and hats. I have never felt so free in my life. Don't get me wrong, I am not wearing the hats to replace the wig. I have actually been showing people my head. I take off my hat to try other ones. So, I don't think I am trading one for the other.It's funny because someone commented on not liking the word "wig". I must say I feel the same way.
Alopecia World has been a blessing for me. Thank You. Jessica
At 4:00pm on April 18, 2009, Lori Black said…
HI Jessica!! Thanx for adding me as a friend!! Blessings to you!! Contact me anytime!! Lori
At 3:40pm on January 14, 2009, Lori Black said…
HI Jessica, I have been AA since I was 12 and AU since I was 28. I understand the urge to hide. I don't go out without my wig either, I dislike the word "wig". Anyways, I have found that if I am comfortable about it, others are too. Not so as a teenager, but God is Good and He is my Hiding Place. Blessings!!
 
 
 

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