• Female
  • Woburn, MA
  • United States
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karma's Discussions

Does this sound crazy?

Started this discussion. Last reply by ASRN Sep 1, 2012. 9 Replies

So I'm really at a point where my confidence is minute...I want a great wig that I can be happy with and excited about but I don't trust wig shops or salons, I want to know if shaving is a good idea,…Continue

My first wig...complaints and advice

Started this discussion. Last reply by Merlin Aug 22, 2012. 10 Replies

So I finally bought a wig. I went to an actual wig salon to talk to the ppl there, they mostly dealt with synthetic wigs and they were all adjustable one size fits all types....the reason I bought…Continue

Advice from wig wearers please

Started this discussion. Last reply by Alliegator Apr 9, 2012. 9 Replies

Ok so I'm getting to the point where I need to start looking into my options for supplemental hair. If I could get my hair to stop shedding right now, I would probably be able to pull off extensions,…Continue

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About Me:
I am a 29 year old female born and raised in good ol' mass. I was just recently diagnosed with a condition called partial adrenal hyperplasia. Although this is an inherited disease I was born with and have been experiencing symptoms from for years I was only diagnosed 2 months ago (after years of seemingly unrelated trips to many different doctors)...My hair loss became noticable around my 28th birthday and has been very rapid and very severe. It has been extremely scary, but it is also the reason for my diagnosis, so for that I am grateful. When I 1st started losing my hair I thought a youngish female going bald was the worst feeling in the world; I felt helpless, desperate, very alone and shallow...since being diagnosed I now realize that it was knowing something was drastically wrong with my body but not knowing what and having complaints fall upon deaf ears that was scaring the heck out of me. Years of insomnia, constant bizarre infections, rashes, bloody noses, extreme fatigue, loss of menstruation, weight changes, anxiety/depression, memory loss, irritability, dizziness and a compromised immune system.... and hair loss solved the problem. Many women would do anything for their hair, but my hair did something unmeasurable for me, and for that I will always love it.
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (6 comments)

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At 1:54pm on March 5, 2015, Mary said…

Hi Karma! Did you wear a wig in your profile photo? It looks like your own hair!

At 6:05pm on August 24, 2012, Tallgirl said…

Support Group
Boston, MA
Chrissa Kaselis

Methuen, MA
Erin Moriarty

At 1:43pm on April 28, 2012, Sarah said…

Hi there Karma, thank you for your note. Did it hurt when you were losing your hair? I hear ya with all the doctors, they don't know or do a darn thing but cost money. Some really care and others (dermatologists) are limited and never seem to think outside the box. I'm moving back to Maryland this fall from Colorado, it's too bad the NAAF conference is in the summer in DC, I'd love to be able to go but can't afford it. Would you consider going? I bet Mass. is beautiful, always wanted to go there. And you do have courage, I don't want to accept it, and miss my hair and normalcy terribly and pray every night with no outcome... come to work looking like death froze over. it has ruined my life and I'm sure many others' lives here. The strong prosper and find ways to live with it and not let it rule their lives. I'm apparently not one of them.

At 10:25pm on April 25, 2012, Sarah said…

Hi there Karma, I'm glad for you that you are trying to accept it... I wish I had your courage. Sorry this has to happen to you and so many others... me too.

At 6:53pm on April 22, 2012, LeslieAnn Butler said…

Hello and welcome, Karma!
How are you today?
Leslie Ann

At 2:42am on April 4, 2012, Kevin Woolen said…

You may want to go to the NAFF conference this summer. It's in DC and you will meet a lot of people who have alopecia. I made some friends there and got a lot out of it.



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