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karma's Page
Profile Information
- Relationship Status
- Single
- About Me
- I am a 29 year old female born and raised in good ol' mass. I was just recently diagnosed with a condition called partial adrenal hyperplasia. Although this is an inherited disease I was born with and have been experiencing symptoms from for years I was only diagnosed 2 months ago (after years of seemingly unrelated trips to many different doctors)...My hair loss became noticable around my 28th birthday and has been very rapid and very severe. It has been extremely scary, but it is also the reason for my diagnosis, so for that I am grateful. When I 1st started losing my hair I thought a youngish female going bald was the worst feeling in the world; I felt helpless, desperate, very alone and shallow...since being diagnosed I now realize that it was knowing something was drastically wrong with my body but not knowing what and having complaints fall upon deaf ears that was scaring the heck out of me. Years of insomnia, constant bizarre infections, rashes, bloody noses, extreme fatigue, loss of menstruation, weight changes, anxiety/depression, memory loss, irritability, dizziness and a compromised immune system.... and hair loss solved the problem. Many women would do anything for their hair, but my hair did something unmeasurable for me, and for that I will always love it.
- Do you have alopecia? (Choose appropriately)
- Other type of alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
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Hi Karma! Did you wear a wig in your profile photo? It looks like your own hair!
Massachusetts
Support Group
Boston, MA
Chrissa Kaselis
508.668.9448
Methuen, MA
Erin Moriarty
978.975.2658
Hi there Karma, thank you for your note. Did it hurt when you were losing your hair? I hear ya with all the doctors, they don't know or do a darn thing but cost money. Some really care and others (dermatologists) are limited and never seem to think outside the box. I'm moving back to Maryland this fall from Colorado, it's too bad the NAAF conference is in the summer in DC, I'd love to be able to go but can't afford it. Would you consider going? I bet Mass. is beautiful, always wanted to go there. And you do have courage, I don't want to accept it, and miss my hair and normalcy terribly and pray every night with no outcome... come to work looking like death froze over. it has ruined my life and I'm sure many others' lives here. The strong prosper and find ways to live with it and not let it rule their lives. I'm apparently not one of them.
Hi there Karma, I'm glad for you that you are trying to accept it... I wish I had your courage. Sorry this has to happen to you and so many others... me too.
Hello and welcome, Karma!
How are you today?
Leslie Ann
You may want to go to the NAFF conference this summer. It's in DC and you will meet a lot of people who have alopecia. I made some friends there and got a lot out of it.