Julie Koch
  • Female
  • Wausau, WI
  • United States
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Julie Koch's Discussions

Biopsy advice please!

Started this discussion. Last reply by Chentil Changing Nov 20, 2010. 10 Replies

Hello everyone! I was wondering if any of you could share your experiences with having a biopsy. I don't know much about them and was hoping to gather some information from all of you!My…Continue

Seborrheic Dermatitis?

Started this discussion. Last reply by Tony J. Jan 16, 2011. 3 Replies

Hey everyone. Me again asking for help and advice!I was diagnosed with Seborrheic Dermatitis yesterday. I have severe itching and sometimes pain in my scalp along with lots of dandruff like stuff.…Continue

Is this bad? Any ideas?

Started this discussion. Last reply by Julie Koch Aug 16, 2010. 3 Replies

Hi all... I was hoping for some ideas of what is going on with my hair and scalp. I examine the hair that falls out and most of them have a white jagged crusty sheath near the bulb. I can sometimes…Continue

Sever scalp pain, itching, some hair loss.. What is this?

Started this discussion. Last reply by Maddie Jan 26, 2020. 10 Replies

My story is kind of weird and I don't know if it's related to the pain. My boyfriends 3 year old grabbed my hair one night and pulled it VERY hard. The next morning my scalp was on fire and hurt so…Continue


Julie Koch's Page

Latest Activity

Maddie replied to Julie Koch's discussion Sever scalp pain, itching, some hair loss.. What is this?
"I also live in Wisconsin with this very same problem. It hurts so bad sometimes. If you find a good dermatologist with any ideas on what it is, please let me know. I’ve been to marshfield, several in Green Bay and I think somewhere else. I…"
Jan 26, 2020

Profile Information

Relationship Status:
About Me:
I'm a 30 year old female that was just diagnosed with Chronic Telogen Effluvium. I also suffer from Trichodynia which is the medical term for severe scalp pain. I don't know why I fell victim to either of these. I have lost about 40% of my hair and it has been very depressing and life changing. The pain may be the worst part of it all. It hurts to touch my head, shower, comb it, etc... I never experienced anything like it before.

I also have battled eating disorders (anorexia/bulimia) for 18 years now. I am unsure as are the doctors whether or not it contributed to all this. I also suffer from severe anxiety and panic attacks. I never thought anything could be worse than an eating disorder, but I may have been mistaken.

I just need a break from constantly being sick and fighting to find peace within myself and my body.
Do you have alopecia?
Telogen effluvium
Are you age 18 or older?
Yes - I am 18 or older

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Julie Koch's Blog

Vitamins and supplements

Posted on November 7, 2010 at 1:40pm 5 Comments

Hi all. I am just wondering if anyone thinks that vitamins and supplements are worth the money?

I take SO many pills and I am afraid I am just wasting my hard earned money.. I take the following:

Prenatal once a day

Biotin 15000 mcg a day

MSM 2500 a day

Fish oil (Omega 3) 2400 mg a day

Vitamin E

Vitamin D

I take the basic vitamin because of some low levels, but does anything REALLY help?

Thanks in advance! I would love… Continue

My apologies to all

Posted on October 7, 2010 at 8:21pm 20 Comments

I posted a rather upsetting blog yesterday and I noticed today that it "mysteriously" disappeared. I don't know if someone asked that it be taken down since it was kind of a very telling blog or if the website somehow deleted it. I don't know but I want to apologize if it hurt anyone to hear how upset I am and how badly I am handling the scalp pain and not liking myself or how I look. Today was a bad day. I had to leave work and may take a few days off. I woke up this morning with a numb and… Continue

I finally have a diagnosis after 11 doctors

Posted on September 7, 2010 at 5:34pm 9 Comments

Hi everyone. Well it took me seeing 11 different medical professionals including 4 dermatologists, endocrinologist, internal medicine specialists, allergist and the dermatologist I saw today.

The only dermatologists that I had been able to get into see up until today were all male. I found the experience of seeing them intimidating and not very helpful because they couldn't understand the emotional stress I felt being a female. They all believed it was in my head and told me that I… Continue

Ketoconazole 2% and Corticosteroid Betamethasone

Posted on August 16, 2010 at 8:00pm 2 Comments

Me again with another question! I was prescribed by my dermatologist the 2 above treatments for my itchy scalp and sensitivity. He always said my scalp looked healthy on previous visits and I called him today and told him my head was itching severely with tiny white balls of gunk... He prescribed me these two things without even looking at my scalp. He is about an hour drive away...

Have any of you ever used either of these? I am very nervous about using them. I know the steroid… Continue

Comment Wall (93 comments)

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At 2:10am on December 10, 2015, Burningscalphl said…
At 7:33pm on January 5, 2014, Erin said…

Hello lovely, how are you? Are you on here much anymore? Send me a message and let me know how things have been! Happy New Year and I hope all is well :)

At 6:07pm on August 17, 2012, Sarah said…

Hey there Julie, thanks for your note... going to send you a friend request so everything isn't on your home page :-) Then I'll reply through a message. Hope you're ok today, I know every day is a struggle....

At 12:40am on August 17, 2012, Sarah said…

Hi Julie How are you doing? I have the same thing as you... deal with scalp / hair follicle pain and I'm 28. I'm seriously close to suicide, have had it with doctors and life as I know it now is not life at all... hope you've had some improvement.

At 2:47pm on March 21, 2012, Volker said…

möp möpppppp .-)

At 12:12am on December 26, 2011, tim75 said…

You ought not to tell folks about your innermost troubles cause it only makes you vulnerable. Bad people in the world target those that are vulnerable. Internet messages and what not should be a little more anonymous. Just a thought, have a happy and safe new year. You might be self-destructive like a lot of people who are messed up but take of care yourself right now so you can at least have a 'chance' to get better. Cheers.

At 4:15pm on December 24, 2011, Piotr said…
Thanks. We all have something in common Julie. That is we care about our emotional and physical well being, even caring about you. I don't even know you. But I went through that. It is hard for you. Please believe positively. It will work out. Merry Christmas. I will talk more with you.
At 9:15pm on December 5, 2011, Susan Innes said…

Hello Julie - I hope things are improving for you. This message is to let you know that there is now a Wisconsin group on AW called Alopecians in Wisconsin, and we'd love to have you join us. (I loved all of your pictures, such a beautiful lady and adorable little Shih Tzu:). Susan

At 11:56am on November 24, 2011, Erin said…

I hope all is well :) Happy thanksgiving!

At 10:58pm on October 31, 2011, Erin said…
Hey Beautiful! How are you??


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