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Sever scalp pain, itching, some hair loss.. What is this?
My story is kind of weird and I don't know if it's related to the pain. My boyfriends 3 year old grabbed my hair one night and pulled it VERY hard. The next morning my scalp was on fire and hurt so bad. The hair loss started shortly there after. It hurts to go in the sun, wind, touch it, comb it, get it wet, etc... The doctors don't know what's wrong and I have yet a doctor to tell me it's NOT "all in my head". That is so frustrating because the pain is very real. I do obsess about it because the pain is constant and the hair loss seems to be more severe when the pain is severe. Sometimes it's like acid, sometimes it feels like someone is pulling on hairs, etc.. When I get the pulling feeling, I can go to that spot and if the hair comes out, it feels better. I'm so lost... Thanks for any advice on what this is!
Replies to This Discussion
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Permalink Reply by Tamara on
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Well my whole scalp will tingle, itch, and sometimes slighty burn, to the point I am pulling on my hair and rubbing my head to make the feeling go away. I have quite a lot of bald spots, and it seems the spots the feel like that the most, are the spots I loose hair at next. I was told the feeling is a inflammed hair folicle, so maybe thats when its about to fall out? Im not really quite sure...did you go to a Dermatologist?
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Permalink Reply by Julie Koch on
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Oh thank you! I felt so alone... I have been to 4 dermatologists in different cities here in Wisconsin. They are all clueless as to what is causing the scalp pain. I had 14 vials of blood drawn today to test for a whole bunch of things like Lupus, auto immune diseases, nutritional deficiencies, etc... I PRAY they find something. I broke down at the doctors today and they want to admit me to a psych ward just to keep me safe. I have always loved to style my hair as it was past the middle of my back and super thick. Now, I can't even touch it throughout the day. I gently comb through it after a shower and that's it. I agree with what you said about the hair loss being greater in the areas where it is prickling. It seems that when the hair falls out in that spot, even if it's just one, it feels a little better. Now, to wait for the results! They didn't want to do a biopsy because they didn't think it was necessary and they didn't want to cause me anymore psychological pain. I have read about an anti-depressant called DOXEPIN.... It has been found in research on people with scalp pain and hair loss to almost "cure" the patient and halt the hair loss. I have it in my purse from my psychiatrist but am hesitant because I am sick of meds... I have battled for 18 years with eating disorders and my weight has dropped back into the 80's because of the stress and pain. I have to be so careful because I already had a heart attack 5 years ago when my weight was 57 pounds. I'm eating OK and I never thought I would go through something more difficult than eating disorders until this. Thank you so much for your thoughts! I am so glad to have found this site. I have been very suicidal and down and everyone on here is so helpful and non judgemental. Not to mention, absolutely beautiful! I never though bald could be beautiful because I really don't know anyone who is bald, but they show a new and amazing side of beauty... Thanks again darling! I'm here if you ever want to talk!
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Permalink Reply by Chefpam on
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Hey, I just wanted to say to you that I have had the same thing going on for years. Sorry if I already posted this to you, I also have memory loss. Anyway, I had 5 scalp biopsies that left scars, saw so many derms that didn't know that they even brought me before a group of derms. Still all they could come up with is telogen effluvium. Which just means your hair is falling out. I have been to Cleveland Clinic, Vanderbilt University, Un. of Ky, you name it. Still shedding and still no answers. I have 3 autoimmune issues going on so I have just come to the conclusion that my body is trying to compensate and spitting out the hair in the process. I too had long thick hair that I loved to style and such. So I know what you are feeling. I was given Neurontin at one time for the scalp pain and it did help some. Also if you rub a medicated shampoo or green tea shampoo on your scalp and let it sit awhile it is relieving. My Mom had to help me with my hair again today. It is still coming out in huge piles. So I know your heartbreak. The shedding has to be the worse part in my case. Hugs, and message me any time. BTW, suicide is never the answer. I too have been hospitalized due to depression from illness. Holding on to my family and God has brought me through though.
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Permalink Reply by Maddie on
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I also live in Wisconsin with this very same problem. It hurts so bad sometimes. If you find a good dermatologist with any ideas on what it is, please let me know. I’ve been to marshfield, several in Green Bay and I think somewhere else. I just stopped going because they seem so clueless sometimes.
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Permalink Reply by Heather Bloom on
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You are not crazy....I had the same thing. It was my whole head, and it felt like it was on fire. I was like, WTF?!!!! Turns out that I have diffuse alopecia areata, and it's very common to have that burning sensation.
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Is this permanent? Will it lead to total hair loss or is it like TE where it will grow back once the stress is taken away.. Is there treatment? Thanks!
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Permalink Reply by estella garcia on
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I also have the same pain,feels like i have been dragged around by my ponytail.also lots of itchiness.my doctors don't know what it is.
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How did they diagnose you? I have had diffused hairloss for years but after 5 scalp biopsies was told it wasn't AA because there weren't any lymphocytes(?) present. My hair still continues to fall out and always looked normal all these years but this last round isn't slowing down.
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I am loosing up to 600hairs per wash and maybe 200 between. I have the same symptoms-itching, some times burning and some flaking. The roots have white, golf like bulbs. All dandruff shampoos Clobetasol, Nizoral, Cyclosporine make it worst. I have no idea what is happening to me from 3 months. Everything started when I went to salon to cut and color my long thick hair. For 3 months I've lost 70% of it.
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WOW,THAT EXACTLY WHAT HAPPENED TO ME...........
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