snoopylover
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Relapse on Xeljanz experiences!

Started this discussion. Last reply by kevin Oct 31, 2023. 5 Replies

Hello AW :-)I’ve been on Xeljanz for 13 months now (5mg x 2 daily) and have had huge success with it, went from totalis to full regrowth! But sadly 3 weeks ago I discovered a large patch the size of…Continue

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kevin replied to snoopylover's discussion Relapse on Xeljanz experiences!
"hello sydap did you use another jak before ritlecitib? It is sometimes normal to have relapses; you have to take a course of corticosteroids. I have been using cibinqo from pfizer for 1 year jak 1 and I have poor hair response I would like to know…"
Oct 31, 2023
sydap replied to snoopylover's discussion Relapse on Xeljanz experiences!
"Hi T, Sorry to hear about your relapse.  I've had a similar experience on ritlecitinib - the Pfizer medication.  It started in June 2022 with mild thinning, then a spot about the same size as yours in November.  That progressed…"
Oct 28, 2023
Apple left a comment for snoopylover
"MY DERMATOLOGIST STARTED ME ON PFIZER'S NEW ALOPECIA TREATMENT CALLED LITFULO, HAD DEVASTATING EFFECTS.. MY HAIR IS FALLING OUT ALL OVER AGAIN. OLUMIANT BLOCKS JAK1, JAK2- MY HAIR FELL OUT, LITFULO BLOCKS JAK3- MORE HAIR FELL OUT, XELJANZ…"
Oct 12, 2023
75franklin replied to snoopylover's discussion Relapse on Xeljanz experiences!
"I also take Xeljanz and/or Ilumiant (depending on which one my insurance feels like covering)  - I have had complete success with both, and complete relapse without them. if you go to India Mart, they sell generics at a much lower cost, and you…"
Sep 16, 2023
Matt H replied to snoopylover's discussion Relapse on Xeljanz experiences!
"Yes, I've had relapses/spots when going a few weeks without it.  Stopped taking it twice for the stupid vax and have a spot that is just now barely recovering.  Doesn't happen every time, but missed days/weeks seem to eventually…"
Jul 31, 2023
leah replied to snoopylover's discussion Relapse on Xeljanz experiences!
"Sorry to hear T, I have tekn this just empathize and interested. Do you have dermaologist you get  Xeljanz from and maybe could reach out to them. I wonder if could do like monthly reminder app to renew the rx. I try do things with…"
Jun 5, 2023
snoopylover's discussion was featured

Relapse on Xeljanz experiences!

Hello AW :-)I’ve been on Xeljanz for 13 months now (5mg x 2 daily) and have had huge success with it, went from totalis to full regrowth! But sadly 3 weeks ago I discovered a large patch the size of a 50c coin (I’m Australian lol) that tripled in size in the space of a week. Now at the 3 week mark, I’ve noticed rapid shedding reminiscent of when I first started losing my hair 2 years ago (I had a full head of hair and lost it all within 2 months) and I know it’s fairly early but the bald patch…See More
May 31, 2023
snoopylover posted a discussion

Relapse on Xeljanz experiences!

Hello AW :-)I’ve been on Xeljanz for 13 months now (5mg x 2 daily) and have had huge success with it, went from totalis to full regrowth! But sadly 3 weeks ago I discovered a large patch the size of a 50c coin (I’m Australian lol) that tripled in size in the space of a week. Now at the 3 week mark, I’ve noticed rapid shedding reminiscent of when I first started losing my hair 2 years ago (I had a full head of hair and lost it all within 2 months) and I know it’s fairly early but the bald patch…See More
May 31, 2023
snoopylover is now a member of Alopecia World
May 12, 2023

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Alopecia totalis
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At 5:42pm on October 12, 2023, Apple said…

MY DERMATOLOGIST STARTED ME ON PFIZER'S NEW ALOPECIA TREATMENT CALLED LITFULO, HAD DEVASTATING EFFECTS.. MY HAIR IS FALLING OUT ALL OVER AGAIN. OLUMIANT BLOCKS JAK1, JAK2- MY HAIR FELL OUT, LITFULO BLOCKS JAK3- MORE HAIR FELL OUT, XELJANZ BLOCKS JAK1, JAK2, JAK3- THE ONE THAT WORKS BEST FOR ME OF COURSE THIS ONE IS NOT MADE FOR ALOPECIA ILL SAY BUT WORKS. I JUST STARTED A NEW JOB SO I DO NOT HAVE INSURANCE YET. I BOUGHT MEDICATION FROM INDIA SAME MED AS XELJANZ BIUGHT SIX MONTHS FOR $320. NOTHING REALLY JUST A LOT OF STRESS. ANYONE BOUGHT TOFAJAK FROM CIPLA? SINCE I HAVE NEVER USED THIS MANUFACTURE BEFORE AM NERVOUS OF COURSE THAT RTHE CORRECT AMOUNT OF MEDICATION IN IN 5 MG BID IS WHAT I USE AND NEED. SINCE I USED THAT OTHER MED FOR ONE MONTH AM NOT TOTALLY SURE IF ITS BECAUSE OF THIS OR MY NEW INDIAN MED. I BELIEVE THE LITFULO IS THE CAUSE OF MY HORRID SX RETURNING. IVE BEEN ON XELJANZ FOR YEARS WITH GREAT STEADY RESULTS. BREATHE...

 
 
 

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