mastros
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  • Amsterdam
  • Netherlands
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  • AloneArchitect
  • Majda
  • hellopeesha
  • YRDRV
  • Frida Rupert
  • zarrin
  • Ithastogetbetter
  • lu391
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Latest Activity

mastros replied to nancy's discussion Just told I have Alopecia
"A large amount of people have been doing great in terms of hair regrowth with JAK inhibitors.  There is a large thread of people using Tofacitinib…"
May 29
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello all, I have been doing really well in terms of hair. My bloodwork has been also all ok. I have been tapering my dose since December 2020. Instead of taking 20mg/day for the whole week, I am taking 15mg/day for two days and 20mg/day the rest.…"
May 29
mastros replied to wfz's discussion vaccination and alopecia areata
"I am having my first covid vaccine dose in June 12th. My plan is to not stop Xeljanz most probably. I will be sharing how it goes."
May 24
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"that's great to see :-)"
Apr 28
mastros replied to Jim In Cali's discussion Pfizer Trial
"that's awesome"
Apr 17
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"The recommendation from doctors is to taper to lower dosages very slowly, so you can find the balance for your body.  I have reduced my dosage from 10mg Xeljanz 2x per day to 2 days a week to take 10mg in the morning and 5 mg in the night…"
Apr 17
mastros replied to wfz's discussion vaccination and alopecia areata
"thanks for the update. good luck :-) wish all goes well"
Apr 8
mastros and AloneArchitect are now friends
Apr 3
mastros replied to wfz's discussion vaccination and alopecia areata
"Sad to hear that you are having a setback. I wish baricitinib kicks in soon to help control the situation. Hang in there. "
Apr 3
mastros replied to wfz's discussion vaccination and alopecia areata
"I am also in Europe, and I am interested too in this in case anyone has gotten it. "
Apr 2
mastros replied to wfz's discussion vaccination and alopecia areata
"it would be great to know which vaccine each person received, as there are different covid vaccines in different parts of the world. "
Feb 12
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"thanks for the great info Kevin. that's really insightful and helps us have hope for a prescribed medicine :-)"
Feb 12
mastros replied to wfz's discussion vaccination and alopecia areata
"Great thread. Thanks for creating it. Let's see how things evolve. "
Jan 25
Ithastogetbetter left a comment for mastros
"Hey! My doctor is Thio at Erasmus MC. Are you also on Xeljanz? Cheers!"
Jan 10
Ithastogetbetter and mastros are now friends
Jan 10
mastros replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"You can always e-mail someone else from Beacon from here https://www.beaconmedicare.com.bd/medicare-team.php and wish someone replies soon. "
Jan 8

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (3 comments)

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At 1:03pm on January 10, 2021, Ithastogetbetter said…

Hey!

My doctor is Thio at Erasmus MC. Are you also on Xeljanz?

Cheers!

At 4:28pm on July 31, 2019, zarrin said…

Hi Mastros,

could you pleaselet me know how I can make an appointment with Dr.Harris?

i am living in The Netherlands.

thank you in advance and best regards,

zarrin

At 5:01am on February 7, 2019, zarrin said…

Dear Mastros,

My name is zarrin.

 I am living in Almere, I am suffering from AU.

At this moment I am on Xeljanz 20 mg daily and have 100% eyebrows ,eyelashes  and 90% of scalp hair (thin). I realized you are living in Amsterdam.

i would like to talk you regarding dermatologist in NL ,insurance coverage and buying Xeljanz from beacon pharmaceutical.

Best regards,

shahla

 
 
 

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