Make Lemonade … Right!! Well, I am So sick of drinking lemonade I could PUKE!! Please bare with me, this could get long..I just need to vent! And what better place than with women that have walked in my shoes.

I’m really not looking for sympathy; more like answers or someone that has gone through a similar experience. Some of you might have seen my post on the Thyroid thread a few weeks ago. At the time I was dealing with my “issues” pretty well. Unfortunately, things have changed drastically in a few short weeks!! Around mid August I switched from Levoxyl to Synthroid because I had been told it (Synthroid) was a better form of the medication. Anyway, since I have switched my hair has begun to fall out AGAIN!!

Let me give you some background…In April of ’97 I literally woke up one morning and my hair started falling out in clumps! I spent SO much time and money trying to figure out a cause!! To no avail!! I lost SO much hair I had to wear a wig to cover up the numerous bald spots! And I mean BALD … there was NO new growth!! And yes, I AM a woman that considered my hair one of my most prized possessions!! Call me vain ~ I don’t care!! Needless to say, I went into a terrible state of depression!! I gained a ton of weight, (being put on Prednizone didn’t help) became a hermit and overall completely shut down!! In February of this year, I decided enough was enough!! I pulled up my big girl panties and dealt with it so to speak!! Then out of absolutely No WHERE, my hair started to come back!!

SO fast forward!! By August the majority of my “spots” had filled-in with new hair growth; I finally had enough hair to achieve a super cute, short and sassy haircut!! Woo Hoo!! I also had my hair highlighted. I was feeling ON TOP OF THE WORLD again!! I had also managed to lose 30 lbs!! I FINALLY recognized the person looking back in the mirror at me :)! Because honestly, I hadn’t for YEARS!!

Okay, here’s where it ALL goes away!!! Around Labor Day I noticed a very small bald spot starting … You can imagine the words that came out of my mouth!!!!! But it was only one, so I thought I could catch it in time so to speak. I contacted my doctor immediately and asked about the change in meds and he assured me that wasn’t the cause!! Then I began to think it could be the hair dye??? Again, I’m grasping at straws!!

Fast forward to today … My hair has been falling out in “sheets”!!!! Everytime I notice it on me, my clothes, my shower, my sink, my towel … I WANT TO SCREAM!! I now have several bald spots.. new ones! And I noticed yesterday that a few of the areas that I “had” new growth are now falling out again!!!! Honestly, last night I wanted to open my medicine cabinet and dump every freakin pill in there down my throat!!! I CAN’T go through this again!!! Okay, I know I can!! But DAMN IT!! Why?? Why is this happening? Why can’t one damn doctor in this town help me? Why won’t my insurance cover the treatments to get to the bottom of this? WHY ME?? Honestly, (I know I’m a smart a$$), I just want to crawl under a rock and eat worms!!

I’d like to hear ANY opinions you have. Could this be from changing my meds?? I think so!! I am also suffering the hot flashes and night sweats again too! OR could it be from an allergic reaction to hair dye?? Anything you suggest? I appreciate your help and your time!! Thank you for taking the time to read my “pity party”!!

FYI ... THis is a copy of a post that I had put on a local networking board. I wanted to share it here too. I have seen SEVERAL doctors about my condition and they all have different opinions. Yes, one of them included Alopecia. Here's where I am absolutely DUMBFOUNDED!! My insurance WILL NOT cover one red cent of treatment for Alopecia!! Because it falls under a general category of hairloss and male pattern baldness :( in their policy!!! UNBELIEVEABLE!!

Views: 7

Comment by Celeste Edwards on September 30, 2008 at 1:41am
Thank You ... You made me laugh!! So, I'm reading A LOT on here and I think my AA is back?!?! Oh, it's SO frustrating!! I wish I would have NEVER had the false sense of hope that it could and DID grow back in!! Only to lose it within three months!! and only 3 weeks after my first cut & color in over a year :( I know I'm NOT alone!! I know there could be MUCH worse dx to have!! I just wasn't prepared to do this again! But, I will be :)
Comment by Sarah McIntosh on September 30, 2008 at 11:56pm
I often wonder if there was a string connection to changes that are being done in my life weather it was my dose of synthroid or changing shampoo,I think now and only because I have had alopecia for so long I chose not to ask why because I think the why's for myself and what are the most gut wrenching. Once I was able to do this I was able to start accepting me for me and the reality that we live.I know that it is hard for you right now,but it does get better,just not aways in the way we want it to.Self acceptance is what i'm starting to believe as the only available cure for what we have and it isn't an easy journey to begin. I wish you the best of luck and hope you know how special you are.
Comment by Laurie on October 1, 2008 at 10:43am
Have you been to womenshairlossproject.com? There are a lot of women there dealing with thyroid related hair loss. I don't have the problem but I do recall seeing several having trouble with Synthroid. I'm going through shedding right now (chronic TE or pattern loss, not sure) and I know how frustrating it can be. I feel for you...
Comment by Reen on October 15, 2008 at 2:52pm
I'm there with you! It's so frustrating...

and remember... when life hands you lemons, either break out the tequila and salt, or stick em down your bra and make your boobs bigger!

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