Alopecia World
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Being comfortable with Alopecia.
Every day I came on the website and read blogs of people who are dealing with alopecia and it hurts me to know that we can't all be comfortable with Alopecia, go bald, and be accepeted! I know it is an emotional roller coaster but we can all get through it!
I know, for me, it was a big struggle at first but I think I came to terms with it fairly quick. I have now gone without wearing a wig over an entire year straight. I used to wear it out sometimes and then sometimes not and gradually just stopped. I could not be happier. This way, I get to educate people and so people can finally realize we aren't any different than anyone else!
The one thing that really made me realize that I had to be comfortable with myself is because of my faith in God. I have never been a religious person and I rarely ever go to church but I do have faith. I know that God has a plan for me and he gave me Alopecia for a reason. I used to pray EVERY SINGLE DAY that He would heal me and get rid of the pain. Well, He did..just not in the way I intended. lol He healed me emtotionally. I used to cry myself to sleep every night or every time I found a new spot but now I just don't care! I love my life and wouldn't trade being bald for anything! That saying I don't miss having hair at times but that is normal, I think.
I know not everyone is going to be okay with going bald all the time but I encourage everyone to at least educate people about it. It may be hard at first but it has to be done! In high school I would wear my wig and people would ask and I never hesitated to give them a little bit of knowledge. People never know if it could happen to them one day or someone they love!
Here is an awesome story that happened to me about 4 years ago. This is a condensed version of the story. lol
I was loosing my hair and I had spots all over the place well a lady approached my friend's mom and was asking about the disease (not in front of me of course) and she told my friend's mom that she wanted to buy me a wig if I wanted. Well my friend's mom got the lady's number and gave it to my mom and dad and they didn't do anything else about it (and this was all behind my back). Well months later, my parents were a little broke at the time and they thought I needed a wig to feel more confident so they called the lady and well..months later I got my first wig. Well this lady was a blessing in disguise for me because it made me feel like a whole new person.
Well months later, she calls my family and tells us that her son had been diagnosed with Alopecia! She didn't even know about the disease until after she met my family and me. It was just a very moving situation for me because I knew God was working in not only my life but others as well! It was as if God was preparing her and her family for the disease while also helping me feel more confident in myself. It was really then that I knew there was a reason for all of this mess.
I just want everyone to be happy and now that everything will get better, at least I can only hope it does!
If ANYONE needs to talk to someone, I would love to. Just message me anytime!
Hope everyone has a good week!!
I know, for me, it was a big struggle at first but I think I came to terms with it fairly quick. I have now gone without wearing a wig over an entire year straight. I used to wear it out sometimes and then sometimes not and gradually just stopped. I could not be happier. This way, I get to educate people and so people can finally realize we aren't any different than anyone else!
The one thing that really made me realize that I had to be comfortable with myself is because of my faith in God. I have never been a religious person and I rarely ever go to church but I do have faith. I know that God has a plan for me and he gave me Alopecia for a reason. I used to pray EVERY SINGLE DAY that He would heal me and get rid of the pain. Well, He did..just not in the way I intended. lol He healed me emtotionally. I used to cry myself to sleep every night or every time I found a new spot but now I just don't care! I love my life and wouldn't trade being bald for anything! That saying I don't miss having hair at times but that is normal, I think.
I know not everyone is going to be okay with going bald all the time but I encourage everyone to at least educate people about it. It may be hard at first but it has to be done! In high school I would wear my wig and people would ask and I never hesitated to give them a little bit of knowledge. People never know if it could happen to them one day or someone they love!
Here is an awesome story that happened to me about 4 years ago. This is a condensed version of the story. lol
I was loosing my hair and I had spots all over the place well a lady approached my friend's mom and was asking about the disease (not in front of me of course) and she told my friend's mom that she wanted to buy me a wig if I wanted. Well my friend's mom got the lady's number and gave it to my mom and dad and they didn't do anything else about it (and this was all behind my back). Well months later, my parents were a little broke at the time and they thought I needed a wig to feel more confident so they called the lady and well..months later I got my first wig. Well this lady was a blessing in disguise for me because it made me feel like a whole new person.
Well months later, she calls my family and tells us that her son had been diagnosed with Alopecia! She didn't even know about the disease until after she met my family and me. It was just a very moving situation for me because I knew God was working in not only my life but others as well! It was as if God was preparing her and her family for the disease while also helping me feel more confident in myself. It was really then that I knew there was a reason for all of this mess.
I just want everyone to be happy and now that everything will get better, at least I can only hope it does!
If ANYONE needs to talk to someone, I would love to. Just message me anytime!
Hope everyone has a good week!!
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Comment by Mandy on October 8, 2008 at 11:23am
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Thanks for sharing that story - how touching! And kudos to you for having such a great outlook on alopecia and not being afraid to be yourself! You are awesome.
Hugs,
Mandy
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Comment by Mary on October 8, 2008 at 4:26pm
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Thank you for sharing! I know that going bald isn't for everyone, but it's working out for me, too. I long for the day when I run into another bald woman in a store or restaurant or on the street. I think it would be wonderful just to see someone else who looks like I do. It's funny, but the more I go bald, the harder it gets for me to wear a wig.
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Comment by Brianne on October 8, 2008 at 4:54pm
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I have ran into someone else bald (actually 2 other bald women) but the one didn't seem as happy to see me. lol All of her family smiled really big at me and she just looked at me and walked by like nothing!! I mean it would have been nice to talk to her but you never know what someone is going through so I wasn't hurt or anything!
The other woman was at a restaurant and so I didn't want to be rude and go up to her while she was eating and after a while, I forgot about it! lol
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Yes, it's hard to know what someone else is going through. One of the most interesting things I've experienced was a man coming up to me in Costco and asking me whether I have cancer. I said that I don't, and explained about alopecia. He then proceeded to talk with me for 10 minutes about his wife who died of ovarian cancer last year. I could tell that it was somehow comforting for him to talk with me, even though he knew I don't have cancer - I just looked like her. It's difficult being mistaken for a cancer patient, but every time it happens, I'm just thankful that I'm healthy.
Wouldn't it be great if enough women went out in public bald so that we wouldn't be automatically assumed to have cancer? Bald men sure aren't. Maybe someday....
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That is the one thing that bothers me is being asked if I have cancer. I mean I have talked to someone who said i reminded him of his mom who had died of cancer and it was comforting to him in a way as well..BUT other than that, I don't like it!
A lot of cancer survivors come up to me and talk to me and it can kind of make me uncomfortable because I can't relate to them like they think I can. I try to just talk to them and congratulate them on being a cancer survivor but it can still be weird because I haven't even been through anything like they have. My struggles were all emotional..theirs were emotional and physical.
Yeah and every time someone said ask me I do just thank God that I am healthy and just happen to have a disease that isn't life threatening!
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Comment by Linda on October 8, 2008 at 11:47pm
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Hi Brianne, check out my page when you have time!
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