So I have this delima.... I've had alopecia since October of 2005. That's a little more than two & a half years now. Mines AA and pretty bad. I'd say I have maybe 25% of my hair left. I keep it cut short & hide it under my wigs. This has made huge changes in my life. I haven't been swimming at a pool or to the lake in almost two years. I did go to the beach once but was a nervouse wreck the whole time. I am a "Summer Girl" and used to do this stuff all the time. Since I figure my hair will never probably all come back anyway, I'm thinking of just shaving it all off. However I don't know when. When is the right time to do it? My friends think I should just look at the calendar and pick a date & stick to it. Sounds like a good idea, but again I get so nervous even just thinking about it. So I was wondering if anyone had any advice for me on this matter. I really want to be able to just throw on a bandna & jump in a pool or go on the jet ski's again. I know I'll look weird but maybe it's better than it being all patchy. I don't know. Then I'm also afraid of the shock that I might have after I've done it & wished that I hadn't. So if anyone has any advice I would truly appricate it.
XOXO!
~Tiffany

Views: 12

Comment by Vicktoria (Katya's mom) on April 9, 2008 at 2:59pm
The lady that made Katya's wig is Lari Vreeken in Los Angeles. www.larivreeken.com. The wig that Katya wears now is not as versatile as a vacuum and you also can not wear pony tails with it, but it looks very natural and no one can tell it's a wig unless they knew her prior to alopecia. Even then people kind of do a double take, because the color is exactly the same, it's just thicker hair From what I have heard from people w/ vacuums, there are more natural style options with it. Also, I know one other girl in our area that wears vacuum wigs and she said that hers is not hot. She rides horses and wears her wig in the summer. California is not humid in the summer. Maybe that is the difference. This girl had her wigs made in New York. I am not sure of the name of the place, but I can find out. The wigs that Katya wears now are not hot at all. They are also pretty easy to wash and need minimal styling.
Comment by Debi on April 9, 2008 at 5:42pm
I went to that web site but it wasn't right. Are you sure it's exactly as you spelled it? Why can't she wear ponytails? She may just need to cut a few wispys at the nape of her neck and then allow the ponytails to be abit looser. My daughters wig is really nice. They don't really flow the way her own hair did.

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