Comment by Galvin on August 5, 2010 at 10:16am

You gotta get it together! Not sleeping and not eating is gonna give you more problems.
Your going through the toughest time right now. I hope and pray you get better........
and eat something!

Comment by Cheryl, Co-founder on August 5, 2010 at 2:28pm

Nari, reading your blog brought back many memories. It was a VERY emotional time. To me finally losing the last strands was almost a relief. Then there was no longer the torture of watching it fall all over the place.

Galvin is right. Let your survival instinct take over. Be good to yourself and give yourself some time. There is no way that anyone would find this stage easy. Only know that you are not alone and we are here to support you.

Comment by Chefpam on August 5, 2010 at 3:24pm

I could have written this...except I am still shedding and prolly at 75-80% loss. I feel your pain....you are not alone. I am also dealing with the pain of AS with no meds currently so I do feel overwhelmed. Some how will make it though.

Comment by KATHLEEN B. on August 5, 2010 at 8:09pm

Nari...Big Hug..Hair loss is not fun and super traumatic.... I remember when my shedding was at its worse... I almost became OCD... i would run my fingers over and over through my hair... I think it was due to shock.. i just couldnt believe this was happening.... and I couldnt stop it.. no matter how hard i tried... it felt almost the harder i tried the worse things got.. Not being in control was the hardest part...i became obsessed over my hairloss.. it was the first thing i thought about when i woke up and the last thing i thought about before i went to bed...Aimees got a good tip..maybe start wearing a hat?.. that helped me out alot... when i wore a hat i felt like my "old" self bc i wasnt obsessed with or worried about "spots" showing.. Things do get better dont worry... try not to obsess to much/stress... it just makes things worse... you need your sleep!!.. and proper nutrition... try and do activities that make you not think about your hair.. Your a tough cookie.. you`ll get thro this....

Comment by Nari on August 6, 2010 at 2:52am

Thank you so much for taking the time to comment! I thought I'd blog for my own personal documentation reasons, so I could look back and see if I was making progress (hopefully)... I didn't think so many people would bother to read let alone comment. Thank you! <3

Aimee, Kathleen B.,- Ironically, I ordered a few hats online about a week before this started. Now I don't even want to look at them! :(

Comment by Lexi on August 8, 2010 at 12:54pm

Nari, the wonderful thing about this site is that you get to interact with others that know exactly what you are going thru and what you are feeling. You wonder if you are the only one that lined up piles of hair after every combing, enough to make a sweater I would say..You wonder if you are the only one that didn't want to wash their hair every day, to lose more hair, or didn't want to brush or comb but once a day, didn't want to "do" anything to the hair they had left, lest it make them lose more hair..so careful when shampooing, so careful when towel drying, combing out, etc...always in fear of how much more hair you would lose..always looking at your head with a mirror, seeing your scalp. Wearing a baseball cap almost always-when you never did before. Going out into the wind and what hair you have left now tangles up. Picking hair off your clothes, off your bare arms, it is just everywhere. When it finally stops or slows down for abit, you breathe a sigh of relief and hope that was the last of it, but NO, it comes back again with avengence. If you dare go out without that trusted hat, you fear everyone is looking at your head. You wear a wig, and you still feel everyone is looking at you, knowing that you are wearing a wig, but why?? It is a hard road. I have so many hairclips I used to use to put my hair up, but cannot use them anymore. We all feel your pain, Nari

Comment by Nari on August 9, 2010 at 3:41am

Lexi, what you wrote really hit home. I am so alert now to hairs falling. As if one less shampoo, one less combing is going to save that hair. I make myself brush my hair once a day, and it feels almost like a religious ritual. I'm constantly "feeling" my hairs falling on my bare arms, and so conscious of tangles. Thanks for reading my post, and replying/relating. :)

Comment by Lexi on August 9, 2010 at 12:17pm

It is at least somewhat comforting to know we are not alone, and others can truly relate to what we are going thru...when I thought it was only me, no, it is many of us. Keep in touch please...It does help to "talk" to someone and share the same experiences in our journey.

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