Everywhere I read about alopecia everyone has lost all their hair and started to wear a wig or a scarf around their head.

I don't want that,I wanna keep my hair, I wan't it to grow back.
I can't see a future without my own hair, it might sound silly, but for me it's not.

I just wanna crawl in to bed and cry right now.
I'm having a hard time facing the throuth.

Views: 7

Comment by lauren on August 12, 2008 at 10:22pm
i can understand how you feel its hard losing your hair . you might not lose all your hair i havent yet and i have had it all my life and some peoples hair grows back you just never know. rember you have a bunch of people going through the same thing that can help and give advice.(sorry if i wasnt much help)
Comment by Lisa on August 13, 2008 at 9:57am
Hi Pamira - I feel exactly the same way. I do not want to lose mine either and I want it to grow back. Every day want to cry about it. I hate having to wash dry and style my hair. I do it as quick as possible so I can get away from the mirror. I wonder if it will make me look older. I wonder if I will think that I am attractive anymore. I do not know how to prepare myself for what may be ahead of me. It is devastating to feel helpless as I watch it fall out, as I watch my appearance change. It is more damaging to try and tell yourself that it is not cancer etc.. and feel like you are so vain that you cannot handle this. IT ALL MATTERS!!! This is the place we are allowed to say these things and not feel bad for them. I believe I feel as you do and I am pissed off too!!! More importantly, I am scared. We will find a way to cope because we have to. We will be happy again because we have to. So I say allow yourself your moments of despair and do not beat yourself up. But also allow yourself to open up to hope - a lot of these people have the happiness you and I want. We will get there - but in the mean time - I am comforted by your words that I am not alone in how I feel because you had the courage to share your feelings on here. You are brave, you are courageous and I congradulate you. I hope I have helped in some way.
Comment by Cheryl, Co-founder on August 13, 2008 at 10:27am
Hi Pamira, I honestly think that Lisa has said it all. So I just want to 2nd her thoughts. Thanks Lisa.
Comment by Anna on August 14, 2008 at 3:39am
Pamira, I know those feelings so well, not that long ago I was there myself. I just couldn't imagine how I would cope if my hair fell out and I'd have to wear a wig, couldn't understand why this was happening to me. But 6 months down the line the worst has come to the worst, I'm now AT and in a wig but I can honestly say I am the happiest I have been in a good 1 1/2 years, I'm a lot stronger than I thought I was and I have learnt so much about myself. I'll never say that I'm glad I'm bald but in a weird way I am glad for this experience as a whole, it would be so pointless to go thru something as traumatic as this and not gain something from it. The stage where you are at is the worst, the not knowing what will happen and the stress and anxiety that goes with it. But there is a light at then end of the tunnel and every hurdle you pass gets you closer to it. Hang in there, you're a lot stronger than you think you are :-)

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