It's been awhile. September 17th marks 4 years since I found my first bald spot on my head. My hair has fallen out 4 times now. Currently I have almost a head full of hair (again) and it's curly and fun, but no hair on my temples and my hair line is way back from where it used to be. I don't feel comfortable going without a wig on the daily. Now in the last week I noticed fresh spots and losing more in the shower. So here we go again. I found the best way to cope for myself is to push it out of my mind. I have my hissy fits here and there when I see old pictures. It makes me sad. But I have no hope that I will ever have that back again. I have learned after these last few years not to hold hope in any of it. This post seems super down and depressing, but it's not- I've grown comfortable with where I'm at with it, and I've accepted it. It is what it is. I get to buy fun wigs and it only takes me 5 seconds to do my hair in the morning, so that's great. The only time I get frustrated is the dead heat of the summer when I spend a lot of time outside at work. Holy cow, I sweat buckets. Or when I want to ride a roller coaster with my son. That's not really an option. My family will try and talk to me about it, and give me hope that I'm going to get over it all. I've tried googling success stories of people getting all their hair back after alopecia.... not too much out there.  Anywho- I can only continue to hope that we will find some sort of medicine that is going to help it all. Or try and alter my diet.... but GF is a hard one for me to follow!!! Who knows?? Good luck everyone on your journey. 


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Comment by rmoore on September 1, 2016 at 9:05am

August marked 1 year since I found my first bald spot.  Since then I've lost just about all my hair except for a cross shaped spot on the back of my head.  I'm 55!  My immune system is attacking my thyroid too.  I've since been diagnosed with Hashimotos.  Dr.s don't know what to do with me because I don't fit their "mold" for medical protocol.  So, I've taken it upon myself to get healthy.  I've been GF for a year now and feel so much better.  I don't think I have celiacs but I do have intolerance...bloating, gas, discomfort.  (bummer because I love beer! LOL)  Anyway, there's a book I read by Sarah Ballantyne, PHD on autoimmune disease.  It's super scientific and I skipped over some of that but she's researched and has a paleo protocol for autoimmune.  I've been following it not super strictly but I will say I feel amazing.  Better than I've felt in years.  More energy, my skin is clear for the first time in years too. Anyway, I can feel your pain with good days and bad days.  I teach computer lab and gym class.  I absolutely die with my wig on outside in the summer.  I totally admire women who can go bald and beautiful but I'm not quite there yet.  I have hair in my dreams.

Good luck to you too. You are beautiful and smart and you are not alone.

Comment by Sierra D on September 28, 2016 at 1:23pm

Thanks for your response. I was in a low place when I decided to type this one up. I tried eating better...gluten and dairy free... it's hard! I lasted about a week. Trying to get back into it. Not a lot of options to go grab lunch that fit that. My bf read up about taking Zyrtec daily in case it's an allergy to something... trying that.... no difference yet. I ended up shaving my head again because I was watching too much hair go down the drain in the shower. That's the saddest for me... Anyway. It's growing back, again. But I know it's not forever. We will see what the future holds! I'm sorry to hear your thyroid is all crazy... that's got to be the worst. I try reading the books too, but can't stick to it. My thoughts are if I can realize I want my hair bad enough, I can put the focus and attention into the literature and the diets. Until then, I'm only holding myself back. 


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