Comment by Tallgirl on April 20, 2011 at 6:45pm

I think he is absolutely right! It IS no one's business how one takes care of one's career, clothing, make-up, hair, shoes, diet, housing, car, etc. We all end up in the same place, so what does it matter what we decide on this journey?

Comment by Lisa-Lynn Marini on April 20, 2011 at 7:41pm

i totally agree and as of tomorror I will wear whateer wig I please and dont care who sees it :) I learned alot today and I feel wonderful for a change!!

Comment by onekeylady on April 26, 2011 at 6:37am

You should feel wonderful every day. I am having a flare up with my alopecia areata, and this time it came back with a vengance. But I have had so much tragedy and so many in my family sick most of their lives and died young, parents, siblings, nephew and grandparents. I reflect back on how sick some of them were and if the only thing I ever have to go thru is my hair falling out, then I feel special. I would rather have the AA, than be sick with another auto immune disease with a head full of hair. I do get a little upset when I have a bad hair day, but I remember my granddaughter saying: "Nana, put on your big girl panties and deal with it" and laugh. Something I have told her several times....LOL And I agree, who cares, those that know me will love me no matter what. Those that don't love me, just don't know me.

Comment by Lisa-Lynn Marini on April 26, 2011 at 8:55am

Onekeylady,
I'm sorry for all the losses in your family ad it's funny how someone oce told me be grateful you dont have cancer and as she said tht to me her mother in law was dying of cancer. I still dint understand tho how that made any difference as I still had no hair how coulld I possibly be hapy bit I am finally learning to get it through my head that the only thing wrong with me is my hair, and it could be replaced by some sexy other wigs. Sure I feel down at times I cry when my husband goes to bed t night so no one sees me, and wonder why God why me? hat have I done to deserve this?
But it's an early stage for me still and I am still coping with the losss of my hair, and with all the support iget on here I kniw I will pull through including my therapy that stars in may, its supose to helo me deal with self-esteem, coing with stress and etc,,so i'm excited for tht because I am looking forward to getting better cause I WANT to be better and not feel guilty about who I have become in this world.
it was a pleasure talking with you
have a great day ((hugs))))))))

Comment by onekeylady on April 28, 2011 at 6:49am

The pleasure is all mine. You will get thru this. Last time and first time I had this flare up, was not so bad, I could cover the spots, this time I am having fun with the scarves/turbans, and my responses to the looks and comments I get at work.....LOL. Make it smile with you and have a blessed day!

Comment by Lisa-Lynn Marini on April 29, 2011 at 10:42am

Well I dot work so I wouldn't know how that would feel for you! I'm a stay at home mom as i am on disability for post dramatic stress disorder, due to this losing all my hair i took it really hard, even tried to ed my life because I thought NO WAY I was gonna live the rest of my life like this, but like my husband and psychiatrist said, what about your kids? that woke me up abitcause i love them to death. I know they couldnt care less about my hair loss as i'm still their mom. so off I went to buy some wigs I have fun with that now and I order cetain pretty turbans which i wear around my house, they are quite comfy and i'm starting to ejoy them, except now I find myself wearing more make-up to help out with the looks and I could still see a pretty face so long as I dont look ast myself bald. I have social anxiety disorder ,so ZI dont go out much especially with the way I know I am bald so my huy is uilding me a fence so I could start going in the yard , so we start with that first. Thefunny thing is this, people must wonderf if my husband has a different woman coming home with him alot, one day i' blod, ext brunette, ext curly,,too funny.
I hope you have a wonderful day and may the folks at yor work treat you well with kindness :)
Lisa

Comment by onekeylady on May 2, 2011 at 6:41pm

That is too funny about the hubby coming home with a different woman. My older sister had beautiful long hair and the thickest of all us kids (9 total) and by the time she was 23 she had to start wearing a wig from Androgentic Alopecia. We did not know that was what she had until I started having the first flare of Alopecia Areata. The Dr told me I also have the Androgentic with this flare of Alopecia Areata....just great...LOL The sister talks about how hot the wigs are in the summer and she loves to work in her garden. She is 63 years old now and looks great and has never went without the wig. She has 2 grandsons now and loves to spend time with them. There is something aobut getting older and those grandkids. They bring out a different side to us. She is now saying that if I need a wig soon, she will give me some of hers as we look so much alike I could work with them, and then she wants a couple of the hats and turbans so she can work in the flowers without getting too hot. She loves to golf and was telling me for the first time in the 30+ years she has worn a wig, the wind blew it off the other day on the golf course. 25 years ago she would have sat down and cried, now she simply looked at her friends and they all laughed together as she reached down and scooped it up to put it back on her head. I never thought I would see the day she could laugh about it.

Comment by Lisa-Lynn Marini on May 2, 2011 at 6:51pm

Oh wow, that's a amazing story thank-you for sharing it wth me!
I'm not sure how I would react if my wig came off but to be honest if I was alone id proably cry and run from where I was but if I were with my siser we'd have fun with it i'm sure, she has an amazin sense of humour like me but hes is better,lol

Comment by onekeylady on May 2, 2011 at 6:55pm

I have worked at the same job for 32 years now, so am very well known and it also helps that I am so highly respected. Being in a supervisory role, I have always portrayed a postive attitude to motivate those that are mentoring me. The people around me know my sense of humor and they laugh with me when my days are rough. When the plate runs over, they know when to lend a shoulder, when to let there be silence around me, and when to bring me something special to brighten my day. So, I don't know how well I would handle the AA if I did not have the postivie atmosphere I have spent 32 years building around me. Another reason to feel so blessed! There are some at work that don't know me so well and not been there as long, in other departments, that do stare, but it doesn't bother me as I know if they dare to ask someone that does know me, they will get an answer that will demand their respect as well.

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